Thanks to the members on this site: I have been... - Thyroid UK

Thyroid UK

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Thanks to the members on this site

Gerri030306 profile image
9 Replies

I have been unwell for 2 years with symptoms of high Cortisol. I had started a new job which was very stressful, was taking HRT tablets and propranolol for anxiety. My Cortisol level was high.

I left that job but my symptoms remained. All the fat was on my stomach and back with a fat pad on the back of my neck.

I have seen 4 Endocrinologists and not one of them has been able to help me. One told me I ate too much and was very patronising. One tested me for Diabetes and told me to drink less water. Not one tested my T3 and vitamins.

Then I found this site. I read on here about conversion from T4 to T3.

I switched from HRT tablets to patches.

I didn’t realise the stress, oestrogen and propranolol blocked the Thyroxine and prevented conversion.

I told the next Endo what I wanted testing, T3, T4, TSH, zinc, Selenium and all the vitamins suggested on here.

I got my results: T3 low below range, T4 slightly low, Testosterone low, Ferritin low, She is increasing my Levo and retesting in 4-6 weeks.

Thanks to the people on this site I am on my way to feeling better and loosing weight.

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Gerri030306
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9 Replies
SlowDragon profile image
SlowDragonAdministrator

Brilliant

Make sure to get FULL thyroid and vitamin testing 6-8 weeks after each dose increase

Do you always get same brand of levothyroxine

What vitamin supplements are you currently taking

GOOD vitamin levels help improve conversion of Ft4 to Ft3

Common to need to supplement continuously to maintain optimal vitamin levels

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels if not been tested recently

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Also vitamin D available as separate test via MMH

Or alternative Vitamin D NHS postal kit

vitamindtest.org.uk

Gerri030306 profile image
Gerri030306 in reply to SlowDragon

Thank you so much for your informative posts on here. I will get some good vitamin supplements as you suggest. I have followed all your suggestions and thank you for your help. Currently I only take vitamin D so I need to source the others.

SlowDragon profile image
SlowDragonAdministrator in reply to Gerri030306

Exactly what were vitamin results

Never supplement iron without doing full iron panel test for anaemia

SlowDragon profile image
SlowDragonAdministrator

How low was ferritin

Has GP/endo prescribed ferrous fumerate

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Post discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

What were vitamin D, folate and B12 results?

Gerri030306 profile image
Gerri030306 in reply to SlowDragon

B12 was 500, Folate 13 and Ferritin 21. Not got zinc and Selinium back as yet but will ask about a full iron panel thanks.

SlowDragon profile image
SlowDragonAdministrator in reply to Gerri030306

What’s the range on folate?

Vitamin D?

Gerri030306 profile image
Gerri030306 in reply to SlowDragon

I will come back to you when I have them, I have asked for all my results by e mail and I will ask for the iron panel. Thanks for your help!

Tayamil profile image
Tayamil

Well done you!

Smash49 profile image
Smash49

Great to hear your on the road to recovery. What would we do without this forum!

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