Is my B12 too low: Briefly have been treated for... - Thyroid UK

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Is my B12 too low

Trish profile image
7 Replies

Briefly have been treated for hypothyroidism for 25 years with various medicines. Currently on 1 naturethyroid daily. I know there have been some problems with it but I feel o.k.

I monitor with finger prick blood tests every now and then.

Recent blood results

TSH 0.09 (0.27-4.20)

T4 total 69.3 (66-181)

Free T4 13.1 (12.0-22.0)

Free T3 4.98 (3.1-6.8)

Anti-thyroidyperoxidase 39 (less than 34)

Anti-thyroglobulin 36 (less than 115)

Vitamin D 76 (50-175)

B12 388 (insufficient 145-300)

Serous Folate 9.83 (8.83-60.8)

Ferritin 180.0 (13-150)

CRP 2.18

Vitamin D is the highest it’s ever been (after a good summer with plenty of sun)

Ferritin is always high.

My ability to loose weight has always been my main problem so quite overweight at present, otherwise I am quite healthy.

Problems now are my legs don’t work properly, really ache now after a few minutes walk. Numbness in feet, really bad in left foot. Burning feet, sleep with feet hanging out of bed! I really have to concentrate to put one foot in front of the other and balance is awful.

Looking at the B12 result, is this too low?

I avoid the doctors. But do I need him to investigate these symptoms and rule out some degenerative disease or shall I try some b12 tablets or whatever. If he tests B12 will he think it’s within range and ignore it.

I don’t take any supplements at the moment although I might try D3 during the winter.

I would be grateful for any comments and suggestions.

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Trish
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SlowDragon profile image
SlowDragonAdministrator

Yes both B12 and Folate are low

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

With such low B12 result taking a B12 supplement and a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

cytoplan.co.uk/vitamins/vit...

SlowDragon profile image
SlowDragonAdministrator

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

If/when On NDT make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Ft3 is perhaps a little low

Retest thyroid levels in 6-8 weeks after working on improving low B12 and folate

As you have Hashimoto’s....Are you on strictly gluten free diet?

Trish profile image
Trish in reply toSlowDragon

No I am not gluten free. I followed all the advice about testing. I think I would find it very difficult to be totally gluten free and considering I usually feel fine when medicated I haven’t gone down that route. Do you think it would make any difference to legs/balance problems. I did experiment with no medication and my TSH shot up so I obviously do need it.

SlowDragon profile image
SlowDragonAdministrator in reply toTrish

See how much symptoms improve once you are taking vitamin B complex, (plus possibly sublingual B12 as well for couple of months)

userotc profile image
userotc

Is the B12 reading or range shown incorrect or am I missing something? It shows upper range of 300 (yet 388 considered too low)?

Trish profile image
Trish in reply touserotc

The 145-300 is the range for insufficient. Higher than 300 is considered O.K. But 388 is quite low in that range and I know from reading posts here that anything under 500 might need supplementing.

userotc profile image
userotc

OK thanks. It seemed different via mobile tel. and I was also unaware they provide a "range" for insufficient rather than a "below" figure. My mum's last reading was 312 ng/l with range provided of 170-730 and we have requested a retest for the reasons youve indicated.

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