Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed ringing in ears and fullness in ear with popping noises...these things wasnt there before except i was pregnant and delivered nov18....i found lump on neck during pregnancy...it was ectopic thyroid tissue and fna said thyroid cancer...my ears rang. Anyways back to time line...by feb/ march i seen endo who then put me on synthroid. She put me on 100mcg synthroid and next symptom still tired but got a newborn ...stiffness in neck..lot stiffness. Ringing in ears worse. I had random pin pricks before i got pregnant but rare and ramdom in feet. Well i started feeling random electric shock pins pricks more often in arms and feet..i ignored it cause i read ppl post amd assumed it was thyroid adjusting...next see took me to synthroid 112 and more stiffness noted in neck upper left back and left hip some...random tailbone pain but rare...i was kinda dreading if she wnt up...next synthroid 125 i get tingling in hands and feet her nurse said it could be levels leveling out ...now pin prickly more often in arms and legs...out bad cold dudnt finish antibiotics..cause breastfeeding and baby got sick...she didnt go up on dose. I got sick again ans 3days into abx developed burning mouth that ending up settling to left in jaw numbness and left inner roof mouth burning....still present today and started in may or june...a week after this went up into my face and eyes.i went to ED and calcium in upper range normal and Vit d good...and also had extreme fatigue ...so current day they are all through my body and are constant...i will tell more later...tingling in mouth too. I got neurologist referral...mri showed 2 punctuate nonspecific white matter lesion...which could be MS. I got lumbar puncture...all normal...not nerve conduction test and EMG all normal. Then i noticed left side of adbomen muscle sore or felt tight and left area in butt and got shooting pain down it. I have pulling sensation under left rib too .
All these things happen slowly from feb til july. Then i noticed small twitching under belly button at random. And then one night under left side of sternum twitching. In August i developed dizziness almost occuring everyday like somebody pushing head forward and 1 week later constant floaters with occassional blurry vision. Over 2 weeks ago now the twitches are everywhere.
I have pain that feels like bone and /or muscle pain that shoots through my hands and fingers forerams mostly but also in a toe or hip or back. Over a month ago my endocrinologist check several labs for me sge said never heard of thyroid causing pins and needles but lowered synthroid 100mcg and t3 5mcg 2x a day cause due to fatigue.
Labs Aug 2 2019
First TSH is only this high cause i was playing around with time taking medicine to see if it would make change in symptoms before TSH 0.6 2 months prior
Free T3 2.16
Free T4 1.16
B12 693....vit d 41.3...iron 85....ferritin 68.5...thyroglobin ab less than 1.0. Sodium 143 and potassium 4.3..magnesium 2.3
I get levels rechecked after starting t3 next week but i can tell u it only help slight difference with energy.
I saw a 2nd neurologist who is a MS specialist 3 days ago and he said based off my mri it doesnt look a person mri with ms and said he will do mri of neck and thoracic since i do have pop neck a lot and pulled muscle in back and not had mri and if i have ms lesions could be in that mri too
So current day
1Legs and arms easily go numb or sleep when bent
2. Extreme fatigue
3. Constant wide spreadpins and needles. Mostly on left side of body but everywhere..also feels like ant bite or flicking water on me
4. All over twitching
5. Hip pain neck pain joint pain ...mostly left side but is on both
8. Brain fog ..cant concentrate at times.
9. Ear ringing and popping..
10 sometimes eye pain
Any advice welcome.