Hi all. In the last 3 weeks I'm loosing slot of hair. I recently had my vitamin levels tested,
B12 355 (187-883)
Vit D 50 ( 30-125)
Folate 13.2 (3-17.7)
Ferritin 35 (5-204)
I'm using zinc, selen 50, b12 1000mg, iron 16mg, kelp iodine 150 mcg.
Am I missing something?
Goldy82
What is the unit of measurement for Vit D, nmol/L or ng/ml?
Folate is fine.
B12 is low, should be at least 550pg/ml according to Sally Pacholok's book "Could it be B12?".
Ferritin is low, should be at least 70 for thyroid hormone to work properly, recommended is half way through range.
Why are you taking iodine/kelp? Have you tested and are deficient? Iodine is anti-thyroid and used to be used to treat overactive thyroid so it's not recommended for hypothyroid patients and especially not when Hashi's is present which it seems from previous posts that you have Hashi's.
Vit d is nmol
Vit D 50nmol/L = 20ng/ml
The Vit D Council recommends a level of 125nmol/L (50ng/ml) and the Vit D Society recommends a level of 100-150nmol/L (40-60ng/ml).
To reach the recommended level from your current level, based on the Vit D Council's suggestions you could supplement with 4,000-5,000iu D3 daily
vitamindcouncil.org/i-teste...
Retest after 3 months.
As you have Hashi's, for best absorption an oral spray is recommended, eg BetterYou, or sublingual drops, eg Vitabay Organics. These are absorbed through the mucous membranes in the oral cavity so bypass the stomach.
Once you've reached the recommended level, then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:
There are important cofactors needed when taking D3 as recommended by the Vit D Council -
vitamindcouncil.org/about-v...
D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray
Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.
Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.
naturalnews.com/046401_magn...
thefamilythathealstogether....
drjockers.com/best-magnesiu...
Check out the other cofactors too (some of which can be obtained from food).
As for raising ferritin, it's not a good idea to take iron tablets without doing an iron panel. The reason being, if you have a decent level of serum iron already then taking iron tablets could well increase it to too high a level without making much impact on your ferritin level.
Humanbean recently posted about ferritin and serum iron levels here, 6th reply down
healthunlocked.com/thyroidu...
A good way to raise ferritin is by eating liver regularly, maximum 200g per week due to it's high Vit A content, also liver pate, black pudding, and including lots of iron rich foods in your diet
apjcn.nhri.org.tw/server/in...
So helpful for me too this. Thank you SeasideSusie
Have you any thyroid bloods to share as low thyroid hormones can lead to hair loss. You B12 is low considering you supplement. I would want mine at the top or over range. Are you taking B12 lozenges, you might need to inject.
I started b12 after results came in. I'm taking solgar b12 methylcobalamin
It’s when I have low iron (ferritin) levels - under 40 or 50 - that I start to lose hair. As a previous commentator has said, your iron is low.
Oh, and when I was first diagnosed as hypothyroid too. So yes, thyroid bloods might help too.
I didn't do thyroid testing
How much iron should I take? And for how long?
Hi just have to pass this on heart palpitations, can be another symptom of iron-deficiency anemia.
I was having heart palpitations for month Thought maybe it might be my thyroid pills. I was so very tired all the time . I bought Geritol A liquid iron supplement . And in a week I was feeling so good my head was clear and my heart palpitations STOP. 😊feel great.
Iron deficiency anemia is a condition that occurs when a person does not have enough iron in their body, or their body cannot use iron properly. While severe iron deficiency anemia can cause symptoms such as shortness of breath, fatigue, and chest pain, some people also experience hair loss. Please look up and read about iron-deficiency . Hope this helps someone .
Do you have a diagnosed thyroid issue - and are you on any medication, if so? Or do you think you have an issue?
Previous post says GP has stopped all your Levothyroxine?
Last blood test may have picked up temporary hyper flare
You need thyroid bloods retested 6-8 weeks after any dose change
Iodine/kelp not recommended with Hashimoto's
Hair loss, sudden, can be a result of an underactive thyroid or an overactive. You might
wanted to have your levels tested.
Hi just have to pass this on heart palpitations, can be another symptom of iron-deficiency anemia.
I was having heart palpitations for month Thought maybe it might be my thyroid pills. I was so very tired all the time . I bought Geritol A liquid iron supplement . And in a week I was feeling so good my head was clear and my heart palpitations STOP. 😊feel great.
Iron deficiency anemia is a condition that occurs when a person does not have enough iron in their body, or their body cannot use iron properly. While severe iron deficiency anemia can cause symptoms such as shortness of breath, fatigue, and chest pain, some people also experience hair loss. Please look up and read about iron-deficiency . Hope this helps someone .
Hi, it is awful to experience this, it happened to me at the start too. My hair turned to a dry thin strange texture that would not last beyond collar length. I have had hashis for twenty years now, it affects everything. Hiwever one thing that I found helpsmy hair now is hydrolysed collagen. I get a marine derived product and after a couple of months of perseverance, my hair started growing like hair again. I dont know if it will help the hair loss but it has helped with the condition of my now very fine thin hair.
OMG. That is exactly what is happening to me! My long (down almost to my waist) very healthy silky hair became so brittle and is breaking off at my shoulders! It is sickening but mine is happening from being on 7 months of the dreaded Prednisone! It has gotten so bad I have to wear my hair up & attach a fake hair scrunchie.
This is what they look like. I bought a bunch of different textures & fullness!
I too had hair loss. GP said blood test all normal, then said Ferritin on the low side (mine was 28) so I could take some iron - no indication of what strength, etc. I went to a trichologist who said the 'over the counter' supplement I was taking was not strong enough - recommended to take Galfer capsules 305 mg. Normally prescribed but managed to buy some from chemist. I initially took 1 capsule daily, but then increased this to 2 daily. My ferritin level went up to 144, so I should have tested a bit sooner.....but hair started growing. Ferritin needs to be 70 or over for hair to grow. Hope that helps - hair problems are distressing.
Me too. My hair has thinned gradually over the last year or so. Don't know how long I had Hashi's before it was finally diagnosed but outer eyebrows gone too. My hair is too thin to keep even a tiny hair elastic in. It always slowly slides out of my hair as it is so limp and thin. I lose little hair elastics all over the place because they are always dropping out. Yes, it is quite distressing. Hair loss is a very outward sign of things not being right on the inside.
Hopefully, things will improve with the right medication and supplementation.
If this is a sudden loss in the last three weeks, think about was has changed. Stress, different shampoo, any new medication? Have you recently had sudden heat where you live or the reverse?
Yeah this started 4 weeks ago I would say. I change shampoo often but the same brands that I used as always. No stress, I live in Ireland, here is not that hot. I did noticed my head is ichy sometimes and I have dandruff
Sounds like medical problems going on here from the other posts.
I was diagnosed with hashi a year ago. I'm on 100 mcg eltroxin. My last test 2 weeks ago showed tsh 5 (0.24 - 4.94) and t4 16 (9-19)
My stupid go didn't test t3 this time. I will stop using iodine. I don't have any other symptoms except hair loss. I'm feeling fine. I'm on gluten free diet. My weight is fine.
Let me just say that 8 weeks before this test, my tsh was 10, t4 was 12
I lost 10p piece size hair leaving gaps in my thick hair. My doctor immediately tested my thyroid and the hair grew back when I was put on armour. There was no levi in those days.
Someone else who started on ndt years ago. I thought I was the only one. Levo was around when I was diagnosed, maybe mot NHS go to. I don’t remember the make I had. We clearly are a minority. x
Hi Goldy82, Brilliant advice from Seaside Susie, take everything on board . Any Functional doctor (the ones that want to find the root cause of ill health and not just write a prescription) would want to see Vit D blood levels up at 125mmol/L minimum more towards 150mmol/L I will post the chart showing levels D should be at for various disease prevention. I would say though that note this is prevention, once you have an issue you need more. Vit D is used up by your immune system. I know a clinician who takes 25,000iu for a few days if feels is coming down with a cold, illustrating how the immune system needs and uses up. Dr Hollis (researcher of vit D for 30+yrs) explains in his you tube presentation why vit D needs to be taken daily 2-4000iu (unlessyou get midday sun on most of your bare skin for 20 mins with no sun protection, just on that day then you don't need to supplement) And that's just to retain levels. My personal opinion - you need to get yours up so need to take more The form of vitamin D that is absorbed/diffused directly into cells only has a 24hr half life (lasts for 24 hrs) that is the form our organs and immune system use so we need a daily source.
Near infrared light at a certain frequency (so much ongoing research) is said to be beneficial for health including hair growth specifically. Go to redlightman.co.uk website - read the articles especially the one about how beneficial it is for the Thyroid. The Thyroid governs your energy/metabolism, lets face it nothing is going to work correctly if your thyroid isn't functioning optimally.
Cortisol production (stress - not just mental stress, worrying stress, stress at work type stress but stress in your body caused by diet; lack of nutrients or illness or overdoing exercise, not enough sleep) Cortisiol and thyroide hormone in balance, picture a set of scales. If one is up the other has to be down.
Too much stress of whatever cause= too much cortisol production = not enough thyroid hormone production = hair loss. So you don't have to have a problem with your thyroid to show poor thyroid results, you can just have a problem with getting enough sleep or eating the wrong foods, too much exercise and exhausting your body.
I am reading a book written by a well respected doctor /researcher, Dr William Li. He set up with colleagues The Angiogenesis Foundation. Angiogenesis is the term given to our body's ability to build new blood supplies (which is ongoing) Interestingly, a hair follicle dies and we lose the individual hair but new hair grows to replace the lost hair. This needs a new follicle which needs a blood supply - angiogenesis in action. Dr Li writes of how it has been scientifically proven that chemicals in specific foods promote or block angiogenesis. Lists the foods in his book - fascinating. Obviously the body needs these chemical /nutrients to perform function as all organs /tissue require angiogenesis. It just reminded me because he uses hair follicle growth as an example. We eat for no other reason than to provide nutrient chemicals for our function and that of our microbiomes (micro-organisms that also govern our function) You could possibly be putting petrol in your diesel engine.
Here is the Vit D Disease prevention chart grassrootshealth.net/docume...
You are not on a low fat diet are you? We need saturated and monounsaturated fat not industrialised chemically refined polyunsaturated seed oils, the type that line the supermarket shelves and are unstable and cause inflammation in our body. If you are afraid of natural saturated fat (understandably as we all have been told to eat low fat and polyunsaturated fat by Govt guidelines for the last 50yrs) then watch you tube videos of Ivor Cummins sttarting with the Cholesterol Conundrum - you'll love him , he is Irish.
I have just read some of your answers - so if you have antibodies and on a gluten free diet, I presume that you know the importance of healing your leaky gut which can be caused by more than just gluten. the LPS , the waste of the more unwelcome residents of the gut if in excess - microbiome not in balance will cause. All grains basically digest directly to sugar, try to remove all grains including cornflour etc. You are not feeding yourself , you are feeding your gut bugs. If you eat sugar and foods that digest rapidly to sugar then you are feeding the least desireable gut bugs, you will still have leaky gut and so stuff will get through provoking your immune system to create antibody attacks against your thyroid and other organs including your brain. See Dr Datis Kharrazian you tube videos - molecular mimicry. Read Dr Datis Kharrazians book 'Why is my Thyroid still not Working' and also Why isn't my Brain Working'
What a brilliant post - thanks LynneG - going to go an read/watch all of these suggestions. Have you followed any of this advice yourself and found it to work - what is your experience? I’m going to look for a Functional Doctor too. Have a good day!
Hi misrees, I realise that I forgot to state the title of Dr Li's book, it was published 2019 so very current/cutting edge 'Eat toBeat Disease'
Yes, I follow the Functional Forum - Organised by James Maskell just register for email notifications of their doctors/scientists presntation videos. So I learn from the cutting edge people in the health arena and read any books they may publish. Also there are all the Health Summits, where many in the functional medical world are interviewed. Register and emails are sent daily for approx 1 week when a particular summit is on. It is free to listen to interviews for a 24hr period then taken down for the next days interviews. Obviously the organiser has costs and so sells DVDs and transcripts of the interviews. But you do not have to buy - just listen to as many of the interviews broadcast at the time that you want to. At the moment I am listening to the odd interview of a summit being broad cast at the moment the Viral and Retroviral summit, yeah sounds geeky but these doctors being interviewed are easily understood. The first summit that I listened to years ago was Dr Tom O'Bryan's, Gluten Summit. All the info learned blew my mind, I scribble away making notes. Dr O'Bryan and all from the 'Functional World' state that it takes on average ( once science has proven and protocol has been accepted by the medical world) 17yrs for the information to filter down into practice so your hospital consultants and GP's. 17 years ! so you learn for yourself. Functional medicine (you need a practitioner that is IFM registered Institute of Functional Medicine) google for worldwide list. Functional Medicine is making waves in the US and across the World - not so in the UK (well we don't like paying for our health care as we have the NHS) but lots of conferences held in London now. British Doctor Chatterjee (who I am sure it was did the doctor in the house series during the last couple of years on the BBC - he is onboard with Functional medicine/ stop the mindless prescription writing - he was the one who went into peoples homes and lived with them, determined what they were eating and chucked all the bread and pasta and processed foods out of their fridges and cupboards) so there is some progress mainly because diabetes is going to bankrupt the NHS in the not so distant future
Some names I can think of from the top of my head, you will find you tube video presentations /lectures. Your health in general but focus
Brain health Dr Datis Kharrazian, Dr Daniel Amen
Vit K2, Kate Rheaume Bleu - 'Calcium Paradox - a little known vitamin that could save your life'
Heart health - Ivor Cummins (all of his you tube videos). British GP Dr Malcolm Kendrick (not your usual GP, once advisor to the European Board of Cardiology and NICE - Blog what causes heart disease (so far approcx 60 blog posts- need to start at no.1) his book: the Great Cholesterol Con and Doctoring Data (brilliant writing style, so funny- UK health care expose - you'll never be conned again)
Cancer: The Truth About Cancer - documentaries
Gastroenterology/Gluten Dr Tom O'Bryan
Science /Research/ Epegenetics/blood sugar, Dr Kara Fitzgerald
Health info podcasts: Chris Kresser. Chris Masterjohn (find him and podcasts via facebook) Dave Asprey - Bulletproof interviews/videos , Dr Mercola
The Human Gut Project/ Microbiome Project British, European and American wings
Documentary - Held in Guernsey. Live to 100
Yes I eat a diet of natural food, no sugar or v low, 85% chocolate, Bulletproof coffee only I substitute cocoa for coffee ( cocoa, butter from grass fed herds, coconut oil, boiling water and blend with hand blender to make frothy) I practise intermittent fasting allowing body to reset (so don't eat breakfast - long fast between evening meal and the first meal the next day. often midday even 2pm with me just hot water or hot water poured on ginger root and or turmeric root. First meal is the Bullet proof cocoa. Milk is basically sugar water, Butter contains the fat soluble vitamins/provides butyrate. A liitle later I would have lunch - all foods that I consider are good for me eg eggs, berries, baked apple with peel cooked with creamed coconut and berries, or fish like tinned sardines, anchiovies. bacon and eggs, fruit, a few brazil nuts for selenium. fresh beetroot /apple/ ginger/cranberries smoothie for a meal. Basically high good fats (butter,coconut oil, olive oil cold). low carbs, fruit and veg no gluten /no grains at all.
When first started eating this way I lost 1lb per day for 28days - I was worried I would fade away but stabilised at what was my weight in my 20's - 2 stone lighter and a waist. All delicious foods as lots of fat, I shop at farmers markets for humanely raised meat - grass fed, eat potatoes veg and salad. Wild fish never farmed as toxic. So I eat as I have learned about. Always organic and add organic herbs wherever I can)
I use an essential oil diffuser (organic rosemary essential oil - rosemary - studies: inhale for beneficial brain health/ add herb to food) Try not to have antibiotics - use oregano oil (nature supplies web site) I apply frankincense oil in coconut oil on neck area of thyroid. I use nr infra red light on thyroid and full body. I am not on thyroid meds but TSH over yrs rising - 3.8 using nr infra red light and frankincense fell for first time in yrs to 2.8 (not good but great falling) I take Serrapeptase for joint inflammation swelling / high fibrinogen levels
and CRP fallen massively , fibrinogen much better. Serrapeptase also digest gubbins in blood. I have aggressive Rheumatoid arthritis 20 yrs - no meds now use diet, herbs, supplements. Developed Burning mouth , tingling - use B12. Try to keep vit D at 130-150. In sun as much as possible. Fair skin always used to keet in the shade. Noticed eating lots of antioxidant foods/berries/ cocoa now protects skin and more likely to go brown. Never use sun screens (chemicals) cover up when have had enough. Doing well, best ever this summer. I had experiment stopping B12 - neuropathy /burning mouth really bad, noticeable difference now taking 5000mcg sublingual again. Dr Amen (psychiatrist) states everyone needs to be on the top table when it comes to B12. (top of the range) Japanese normal range Total B12 500-1300 (they have the lowest heart disease and alzheimers/dementia). Key thing is learn about the health of your gut microbiome and your mitochondria Hope this very long post helps x
Ha! Amazing - thanks!!! I'll have to print all that out. Sounds like you're doing brilliantly and being very disciplined. Good on you!
Thanks missrees, for being interested. One of the main things functional docs stress is to find something to be grateful for everyday and help others - really improves health outcomes, so just trying to do my bit 
I forgot to mention before health talk videos online Dr John Bergman - if I want cheering up, I listen to one of his talks - so funny (usually when I am ironing )
Our brains are wired to perceive stuff (saber tooth tiger round that corner!) jstudies have shown therefore that just thinking is a reality to the brain. Smile even if you aren't happy and your brain thinks you are, bringing all the positive health consequences. Your interest has made me smile, thanks xx
It's all about your ferritin. I too, have low ferritin 33 (range 20-288) . My iron is fine 121 (range 45-160). You need at least 50 Ferritin for hair growth. My functional doctor started me on 15 mg of liquid iron. Getting an iron, ferritin and TBIC (iron binding blood test) 8 weeks after to see if it is helping. I think I'm getting some straggly hair growth (my hair loss is in the front hairline and along the sides). I also have been using Rogaine for the past few years. There's ton of information on Ferritin and hair growth on the internet. Just be sure you're not getting too much iron. Will also get my TSH, etc tested as well to see if that has effected those levels. Of course, I am paying for these tests myself....I use Ulta.Labs in the US. You sign up to Isabella Wentz who is a thyroid dr. and then you can sign up to ULta.Labs to get orders. Their rates are very reasonable and I just take the order to Quest or Labcorp. But that is in the US.
Hi I have had 2 thyroid surgeries and my hair was a complete mess falling out and like rats tails. I have been using Nioxin 3 step treatments since Feb and can see a remarkable difference. My bloods etc aren't right yet but the nioxin is definitely worth a try.
I start using nioxin #4 yesterday. I will post an update in one month
I've used Nioxin 4 3 times and my hair is awful. Went back to my previous shampoo and condition this week. I was really hoping it would work, too. Oh, well. I suppose everyone is different and it's my bad luck it didn't work for me.
I noticed my hair falls out more from that shampoo. I used it twice so far. Have you notice the same?
YES! I didn't want to say that and come across as negative, since it must work for many people. My hair went a bit frizzy. I bought the one for dyed hair thinking it would be gentle (I don't have dyed hair) but it makes my hair really dry and frizzy and it fell out more than before.
It feels better since I went back to my Green People shampoos and conditioner.
My ferritin was 40 something, so I'm eating chicken livers every day to see if that helps.
Yeah me too. I will Stop also. I eat chicken liver every day. Thank God I love it how long Do you have this problem?
My hair has been falling out on and off for about 5 years. I get what I now know to be a flare-up of adrenal and Hashi symptoms and my hair falls out a few months later (I had just put it down to the stress of the DWP trying to bump me off and poor nutrient absorption due to Crohn's in the past).
I've just been through 18 months of hell thanks to the DWP and my adrenals are shot and I have just found out I have Hashi's. Thanks to the wonderful people on here I also know my ferritin is low - hence the introduction of chicken liver to my brekky. My hair is terrible. It was falling out during the course of the last year, but I seem to have lost about 1/2 of it when I feel it now. It has also receded around my hairline, too. It's very distressing.
I bought the shampoo before I knew about the ferritin. I didn't like the feel of my hair after the first wash, but persevered because it had such good reviews.
I'm hoping to get my ferritin up and start NDT soon (it's on its way from the US at the mo). I hope my hair grows back - it always did before, but never the same around the hairline.
I should have also added that my hair really went awful in the last few weeks.
Oh, and I was off my Adrenavive, cortisol, and Metavive (and quite a few of my supplements) for a few weeks for testing.
Awk I'm sorry that it didn't work for you, I recently started supplements made by a local health food shop called Mega Mane. I couldn't imagine having chicken livers every day the thought makes me shudder!! My problem now is my weight🙄
I actually don't mind them. Sautéed in lots of butter with a little salt and pepper they are actually quite yummy. It was my only option, TBH, as it was the only liver I could buy easily that is organic.
Have you tried HFLC or keto for the weight? Ditching carbs means the weight usually falls off.
No since my OP last year my levels haven't been right was on 150mcg thyroxine and as my tsh is up again to over 10 have to start 175 thyroxine, I've been told when it regulates my weight should too, we'll see!
Well, if you're still having weight probs after the increase in Levo then you at least know you have other options - and they don't include chicken livers!
Lol I hope not!!!
My hair loss was indicative of my thyroid and adrenals being off as well as some of the things you mentioned.
Selenium and zinc with vitamin c at high levels may help your thyroid function. Prostaglandin function may improve by use of f prohormone found in evening primrose oil and star flower oil which may help hair growth. Rubbing castor oil into the patches is recommended to help hair growth. Cod liver oil gels may be effective to raise vitamin d sunshine exposure in cloudy weather on arms may contain enough sun rays to convert the vitamin D3 in the skin as well as daylight in your sitting room. Sun is intensified by glass so it is important to watch sun effects with burning.
Having had a recent skin op on my hand which started as an age spot am wary of sunshine. Far infra red found in halogen heaters can help circulation as well as it might bulbs. Hope you feel better soon.
Thank you all for your help I really appreciate
My trichologist recommended Ferris fumate. You can buy it at a pharmacist. It needs to be taken on an empty stomach along with Vit c for absorption. Also take magnesium to counteract the constipation that comes along with it. I would try and get your ferritin above 100
I have Grave's disease and have gone through 3 bouts of hair loss. Two were from PTU and the latest was from methimazole. I never had hair loss when I was unmedicated, only when I was on the medications. My dietitian friend said this time around it was probably because my hair was stressed because of my graves and then going on the meds just pushed it passed it's limit. She said there are so many things it could be and also a combination of things, we'll never really know. She told me to try and find some high quality vitamins made especially for hair so I went on Amazon and found some hair pills that got really good reviews, especially from people who had medically induced hair loss. I've probably lost half my hair since the first fallout but over the years it has somewhat grown back. When this latest fallout begin I was freaking out because honestly if I had as much fallout as the other ones I would go bald. Now I'm very aware of how much falls out in the shower and when I blow dry my hair and everything. I've been taking the pills for about 6 weeks and am happy to say that it's reduced the fallout by about 75% and my hair is feeling much thicker and softer. I have no association with the company, I just swore if I ever found anything to help I would share it with others. If you'd like the name of what I use, PM me!
Can you give me the link to those pills
I PM'd you
My hair fell out after second baby. Had severe postnatal haemmorage. Had iron injections for about six weeks. My hair grew back. Recent research shows vitamin k and d are essential with vitamin c to help both iron and bones. Vitamin k is found in kiwi fruits and parsley and in chicken goose and beef liver. Vitamin k helps blood clotting and you need ninety five micrograms a day. The average diet may be much lower than this so though you may think you are getting enough you may be deficient. It is now used to help cancer but this is recent research and not readily available. I would stick to seaside Suzie's info as from personal experience the iron injections really helped energy and hair growth. Take care.
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