I've just got back my Medichecks thyroid result and I am panicking a lot, as my antibodies are off the charts and I wasn't expecting anything that bad. I also got my blood work off my GP surgery last week, including a 24hr urine test they did late December last year for adrenal issues.
Regarding the thyroid test, the note from the Medichecks Dr said my meds were appropriate, as my TSH, free T4 and T3 were fine - but I stopped taking Metavive about 10 days before the test, so longer than recommended. Haven't had biotin for 2 weeks, either.
I'm still waiting to get the adrenal tests done (saliva cortisol/DHEA) as my mouth is too dry to take the test. I'm going to have another go with that this week.
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Unfortunately, your actual thyroid hormone results aren't a lot of use if you left your Metavive off for 10 days. What were you hoping to find out from your results? They certainly don't tell you if the dose of Metavive you were taking was right for you, you would need to continue with it and just leave off for 8-12 hours before testing.
As for your raised antibodies, were you already aware of these and knew they confirmed autoimmune thyroid disease aka Hashimoto's? This is where the immune system attacks the thyroid and gradually destroys it. Hashi's causes fluctuations in symptoms and test results.
Some members have found that adopting a strict gluten free diet can help, although there is no guarantee.
Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks.
You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.
Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.
Hashi's and gut absorption problems tend to go hand in hand and can very often result in low nutrient levels or deficiencies, so it's important to test Vit D, B12, folate and ferritin and address any problems, optimal levels are needed for any thyroid hormone to work properly.
I didn't know what was wrong with me - I certainly wasn't prepared for Hashi's. I do have bowel disease, though, which is also autoimmune, but from what Dr P said about 18 months ago, my adrenal issues were the most prominent and thyroid secondary to that.
I'm just starting to get my head around all this, TBH.
I stopped the Metavive because I thought I was meant to - I've had so much conflicting advice I don't really know which way is up at the moment. I thought the point was to see how my thyroid is without any form of medication. As I've been so ill, I didn't think Metavive was strong enough for how ill I was.
I'll type up the rest of my results. There are pages and pages, though, so I don't know what's important and what I should leave out.
I've had so much conflicting advice I don't really know which way is up at the moment.
Have you had conflicting advice from this forum, or are you also asking elsewhere. I'm sure all the responders on this forum will tell you that for thyroid tests you leave off Levo for 24 hours and NDT/T3/Metavive for 8-12 hours. When on thyroid replacement, the point of the tests is to see where your levels lie when taking the hormone replacement. If you are hypothyroid and on thyroid replacement then it's generally for life (except in rare circumstances such as temporary thyroiditis) so you continue with your thyroid meds.
So if you want accurate thyroid results when taking Metavive, you will need to be back on it and wait 6 weeks before retesting, then ensure you do the test early morning, no later than 9am, after an overnight fast (you can drink water) and take your last dose of Metavive 8-12 hours before the test, adjusting dose/splitting it the day before if necessary.
Yes, some on here (although a lot of it will be down to me not explaining myself well or misunderstanding). And some via the lab and online. I was told mostly on here, as you said, 8-12 hours, but I then explained I wanted a true level of how bad my thyroid was to take to the endo to get a prescription. I was then told a few weeks and that I would feel awful (they got that right!)
I was also told an endo would probably prescribe me Levo - BUT, having read up on adrenal insufficiency, it says Levo must not be prescribed in this case. I don't think it said what should, off the top of my head. Do you know what they prescribe for hypo patients with Low Adrenal Reserve?
I haven't read your other posts to get your background, but if you want a result off meds completely to try and get diagnosed hypothyroid and prescribed Levo, then the results from Medichecks wont get you that diagnosis. The best you can hope for is to get TSH above range which then would be Subclinical Hypothyroidism, and if antibodies are also present an enlightened doctor may prescribe Levo, but no guarantees.
BUT, having read up on adrenal insufficiency, it says Levo must not be prescribed in this case
The patient information leaflet that comes with Levo mentions something about not taking it if you "have any condition that affects your adrenal glands (your doctor will be able to advise you if you are not sure)" - well I don't know of any GP that would test for this when diagnosing hypothyroidism and initiating treatment, mine certainly didn't.
Do you know what they prescribe for hypo patients with Low Adrenal Reserve?
I'm trying to get that tested via a saliva test - but I'm struggling due to dry mouth. Never rains, eh? Dr P diagnosed Low Adrenal Reserve after 3 GPs said I had adrenal fatigue but did nothing but advise me to avoid stress, which is impossible in my current situation. He also said there is no such things as adrenal fatigue, and that LAR is the correct term.
Now I've been reading on here about secondary adrenal insufficiency.
Wow! No wonder I get confused.
I think if I only had my thyroid or adrenals to deal with I'd be less confused. Thank god I've got you guys to help me through this maze of info.
Your VitD is to high which is not good. Are you supplementing B12 as that's also high, if not then naturally high B12 is something that needs investigation.
Yes, I take high doses of vit D3 and have been a bit sloppy with the B12 - it's so easy to have a spray a few times a day. I think I went a bit overboard after reading on here a few months back about exhaustion being linked to these two vitamins. I also went vegan for a while earlier this year and after feeling great for 6-8 weeks began feeling tired again, and as B12 is hard to get for vegan, thought I'd supplement this in addition to my multi B vits supplement.
Stop the Vit D altogether, you are in toxicity territory with it being >400 (250 suggests toxicity). Leave it off and retest in October.
With the Vit D, were you taking it's important cofactors magnesium and Vit K2-MK7? D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.
Also stop the B12 for a few months.
Folate is probably higher than it needs to be. I'd stop your B Complex as well. I'd retest all these vitamins in October.
Serum ferritin 48 ug/L 15.00 - 200 ug/L
What are you doing about this low ferritin? Are you still vegan or vegetarian? Eating liver is the easiest way to raise ferritin, or liver pate, black pudding, and there are other iron rich foods apjcn.nhri.org.tw/server/in...
Your low ferritin is probably the cause of your fatigue.
I take a combo of D3 and Kt Mk7 to avoid calcium in my blood. I also take topical magnesium.
So, my ferritin is low? I hate liver but will find a way to incorporate it. This is the first time I've realised my ferritin is low - obviously my GP thinks it's 'within range' and I've always accepted that until recently.
My stint as a vegan (and in the lead up to that I was reducing my reliance on animal produce, so it was longer than the 4-6 weeks I lasted as vegan) has obviously not helped me.
Would you recommend a supplement like Floradix to kick things off?
It's said that for thyroid hormone to work properly (that's our own as well as replacement hormone) ferritin needs to be at least 70, preferably half way through range.
I don't know what's in Floradix (as far as elemental iron is concerned) but I don't ever suggest iron supplements as iron is complicated. If you have high enough serum iron and start taking an iron supplement for less than optimal ferritin, it could push your serum iron higher and that's not something you'd want. I raised ferritin by eating liver without it affecting the rest of my iron panel, but that's my experience, not saying it's the same for everyone.
Liver can be disguised, cut small and included in curry, cottage pie, bolognese, chilli, all sorts of meat dishes.
Yes, 3 months or so. If you leave it until October I'd do them all together. October/November and March/April are good times to test Vit D - fits in with the times we can/can't make Vit D naturally from the sun.
The high VitD will be causing you symptoms and you possibly now have hypercalcemia, as SeasideSusie advised stop the VitD until your levels are back to normal range. Vid is not something to be messed with and it's not vital to have levels at the top of the range, the level you need is what is right for you.
Off the charts is a bit of an exaggeration. My TgAB were ten times that when I was diagnosed. But, it doesn't matter how high they are, if they are over-range you have Hashi's, and it's really not worth retesting them after that. The level of antibodies does not reflect a degree if severity of Hashi's. Hashi's is Hashi's, and it follows its course. Antibodies fluctuate. And, even if you managed to get rid of them completely - something that's not going to happen - you would still have Hashi's, because the antibodies aren't the disease. I should forget about them, if I were you.
I panicked because Medichecks had a line in red and I was right at the end with one and almost at the end with the other.
Does this mean I don't need thyroid treatment but need to work on calming my immune system?
All the glands in my neck have been swollen and tender for some months, now. Is this a reaction to the Hashi's?
At least I know now what I need to read up on.
Thank you all for your patience. I imagine all this is confusing enough for people who aren't ill.
Another weird thing has been happening lately (actually there's loads, but I haven't found reference on here to it yet) - I've started having allergic reactions to things I didn't before the last month. My dog, sticking plasters (looks like I've been burned!, and my hayfever returned after I got rid of it by ditching gluten, sugar, and dairy 5 years ago.
I went back on gluten about 2 years ago. In Feb-March of this year I tried to go vegan. This upped my gluten intake. I felt great for 6-8 weeks - better than in a long time. I was able to walk the dog for 2 hours a day and do housework... and then i crashed.
Went Keto a couple of months ago, but tiredness meant I've ended up LCHF instead, as I can just about cope with that.
Does this mean I don't need thyroid treatment but need to work on calming my immune system?
Well, according your your TSH/FT4/FT3 you probably would benefit from thyroid hormone replacement, but you're not likely to get it under the NHS. They like the TSH to be at least over-range - preferably at 10!
I've no idea how you would go about calming your immune system, but it probably wouldn't help, anyway. There is no treatment for Hashi's, all you can do is replace the thyroid hormones as the thyroid is slowly destroyed and the FT4/3 get lower in range. But, going gluten-free again might make you feel better if you're sensitive to gluten.
It's possible that when you first went gluten-free and your hayfever improved, you already had Hashi's. Lots of Hashi's people are gluten-intolerant. And, as you become more and more hypo, more allergies are likely to appear, and existing allergies to get worse. I don't know about the swollen glands in the neck, that could just be some sort of infection.
Be careful you don't go too low carb, because you need a certain amount of carbs to be able to convert T4 to T3 - especially when you start taking thyroid hormone replacement.
I remember in 2015 my GP said I was slightly hypo and had adrenal fatigue from stress. She recommended kelp tablets. Then I just got better. I had another issue with it in 2017 - this time the GP wanted to prescribe Levo. I saw Dr P and he put me on Adrenavive for 2 weeks then I started the one I can't mention. Just the lowest dose for both - and I felt my old self again within 10 days of taking Adrenavive (my brain fog just disappeared - it was truly amazing) and when I started on the thyroid supplement my hair stopped falling out, my eyelashes grew back, I had energy again (actually, I was a bit manic when I started the thyroid supplement, as I was doing so well with the adrenal meds I started on a whole capsule instead of increasing it gradually, like Dr P instructed).
Then, after a couple of months of massive improvement, began 18 months of chronic and severe stress, and all my gains vanished and I'm worse than ever.
So, it seem like you're right - it wasn't that bad but lurking around in the background for a number of years. Except now, after all that stress, it's flared up with a vengeance.
It makes a lot of sense considering what's happened the last few years.
That was very bad of your doctor to recommend kelp tablets, and just goes to show how little she knows about thyroid. Could be that made things worse.
I saw Dr P and he put me on Adrenavive for 2 weeks then I started the one I can't mention.
Why can't you mention it?
In the beginning, Hashi's can come and go. But as more and more of the thyroid is destroyed, and you get more and more hypo, you will depend more and more on thyroid hormone replacement.
It's the thyroid supplement, and mentioning it may confuse the issue. Anyway, from what everyone's saying, I probably need something stronger. And if I'm stuck with this for life, I really need to find some way of getting it on prescription. I know that's going to be almost impossible, though
It's all very depressing, I have to say. But on the plus side, if it weren't for this site I could go on like this for years relying on ignorant Drs.
If you can't have levo, you can't have anything else, either. Because the effect would be the same. Levo is just a thyroid hormone. It may be synthetic but that doesn't mean it's not exactly the same as the hormones your own body produces. It's T4. NDT contains T4 - and T3, of course - but it's not totally unheard of for NDT to contain a little synthetic T4, to make up the potency. It's not as natural as all that, all things told. Who said you couldn't have levo?
Dr P said it was lucky I hadn't gone on thyroid meds before treating my adrenals, as it would have made very ill indeed, and then I was reading some posts on here about adrenal insufficiency and it was on there.
I can have thyroid support - after I'm back on my adrenal meds - but the more natural the product as possible is how I prefer to treat myself. I've been on some highly toxic crap for very many years, and it's made me very wary of synthetic BP stuff.
The fact that I have to take prednisone for my adrenals worries me, but there is no natural alternative for that - that I know of, anyway.
I eat an organic diet, avoid supplements with fillers and other rubbish in them, so I don't want to go onto something like Levo if there is a natural (or more natural) alternative. I would never say never - but if I have another choice I'd prefer to try it first.
Ah, just found the info about Levo and adrenals. It's written into Levo's contraindications.
I see what you mean, but treating the adrenals first is even more important if you're going to take NDT. But, having adrenal fatigue doesn't mean you can never take levo. Just that you need to bring your cortisol up a bit first.
NDT isn't all that natural, as I said. It has just as many fillers as a levo pill, you can't make pills without fillers. But, levo is not 'synthetic crap', a hell of a lot of people do very well on it. You mustn't think that just because NDT is made with hormone from pigs that it's automatically superior to everything else. It doesn't suit everyone anymore than levo does. It made me very, very ill.
Thank for the advice. I'll bear that in mind and if I get problems with NDT I'll try Levo. However, to get Levo I will need to see an endo, as I understand it? - and after 6 months of waiting for an appointment, the one I SHOULD have had this week was cancelled with not a peep out of them since for a new appointment.
Not that my expectations are high after reading about NHS endos on here.
Your GP can prescribe levo, but it's very, very doubtful he'd prescribe NDT.
However, with your levels at the moment, it's very unlikely that anyone will prescribe you anything. And, the endo probably cancelled because he didn't consider you had a thyroid problem. That's what they do. Most endos are diabetes specialist with some very peculiar notions about thyroid. Or were you seeing him privately? I can't remember…
No, it was through the NHS. The GP made the appointment before my latest tests - and yes, you're spot on - the endo's speciality is diabetes, because a nurse friend of mine knows her from diabetes lectures and so on, and sometimes works in her department when they're short staffed (my friend is normally gastro).
Actually, a GP a couple of years ago wanted to prescribe Thyroxitine (is that right - all the different names confuse me at this point, although I expect I'll get my head around them eventually). At that point I refused and signed up here to find Dr P's details (I'd heard of him before when I was looking for bio-identical hormones about a year earlier, thinking sex hormones were my problem). TBH, at that point all the info on here was too overwhelming to digest. I knew nothing about adrenal or thyroid issues and all the jargon was too much to decipher with severe brain fog.
Dr P put me on thyroid and adrenal supplements, and it was miraculous how good I felt in under a month. Unfortunately, 18 months of severe stress was about to land on me and all the good work was undone, so here I am now. No more Dr P, either
Actually, when I asked for the endo appointment, it was more about getting a prescription for a more adrenal-appropriate steroid. Then I found that BP has recently hiked the price of that, so I doubt that will pan out, either.
What a disgrace. Having to wade through all this at a time when you can least manage it.
Without the brain fog (which isn't TOO bad at the mo) I'm a very intelligent person - yet I find this overwhelming. I fear for all those poor souls who would not be able to do their own research or cope with the kind of information you need to learn to tackle all this.
I'm afraid those poor souls probably just go under, unless by some miracle they find a doctor that is actually interested in their plight. I met several people like that when I was teaching. Unfortunately, at that time, I didn't know enough myself to help them much.
Yes, it is confusing, it takes a while to get used to all the terminology for any condition. If I was suddenly diagnosed with diabetes tomorrow, I would be just as lost and confused for a while. But, you do get used to it. I knew absolutely nothing about thyroid at the time of my diagnosis, and had never thought my weight problems might be due to thyroid - I didn't even know where it was! - so hadn't been seeking a diagnosis. It happened by accident, really. And, I started off by reading Mary Shomon's book: Living Well with Hypothyroidism. It breaks you in gently and you slowly become acquainted with the vocabulary.
It's thyroxine that you were offered, T4 - aka levo. Which is the usual way of starting. True, it doesn't suit everybody, especially not if you have adrenal fatigue. But, you need to bring your TSH down to at least 1 before you can see where the problem lies. I found a doctor that took me off the levo + T3 I was taking at the time, and put me on HydroCortisone to treat my very low cortisol, first. But, even so, I could not tolerate NDT. I tried several and put on so much weight it was unbelievable. I stopped weighing myself when I reached 120 kilos. This doctor insisted I stay on it, despite the problems, for six years, until we parted company. I got up to six grains and still felt very hypo. I then went on to T3 only and finally got my weight down to 70 kilos, and felt so very much better.
But, that's just me, and we're all different. Which is why we can never say NDT - or anything else - is the only way to go - like that doctor did. We all have different needs.
At the moment, I'm not sure you need thyroid hormone replacement. Although your TSH is saying hypo, your FT4/3 are saying euthyroid. However, it wouldn't hurt to try a little NDT - if that is what you want - but I doubt if you'll ever find a doctor to prescribe it. They don't like it. They've been turned against it by Big Pharma reps. You'd probably have to source it yourself, anyway. So, if you're doing that, why not self-treat and be done with it?
Right. Just looked up euthyroid - that's a new one on me - so this explains me being able to convert T4 to T3 well enough, as someone else commented. Maybe I should just stick with the thyroid supplements if my thyroid doesn't need much help? Dr P did say initially my thyroid was compromised as a result of adrenal insufficiency rather than the other way round (if that's a thing).
Since others are saying I have Hashi's, and I responded well to dropping gluten (I was already off sugar and dairy) while still adrenal and thyroid support, I should tighten up on that, too, do you think?
I think I underestimated how long it took for my adrenals and thyroid to be affected by things. I had a very rough patch over xmas - when I had to come off my adrenal supplements for 2 weeks, but 4 weeks for the thyroid supplement, and I was very ill and feeling very sorry for myself. I ate mince pies like they were going out of fashion. Then when I went vegan in January - February, I was eating a lot of carbs.
Now I'm off my meds again for tests (still can't take my thyroid supplements until I get the adrenal tests sorted and get back on adrenal supplements first), and have been too tired to properly do keto and am mostly HFLC - except I've bee so tired a few take-aways have crept in the last 2 weeks.
From what I'm starting to learn, I could actually be suffering now from all the carbs I had from xmas through to about early Match?
I put on a lot of weight over that time (no surprise there!), mostly on my belly, then the weight fell off as soon as I went carb-free. I think a little is creeping back on over the last week.
I think, because I had such an amazing and fast reaction to the adrenal and thyroid supplements Dr P recommended, I have been expected similar rapid response times to changes in diet and increasing the supplements.
Since I'm starting from scratch again - more or less - when I go back on the supplements, do you think I should start low and very gradually increase them until I feel better?
At least when I get my adrenal test results I may find out that my adrenals are still the main problem. From others on here with adrenal issues, it seems that the problem doesn't start as soon as the stress sets in but seems to manifest months later - even 5-6 months after the event.
Phew! This is tough on the old noodle. Thanks for your patience and sorry about the long posts.
Maybe I should just stick with the thyroid supplements if my thyroid doesn't need much help?
It's not that your thyroid doesn't need 'much help', your thyroid is struggling like mad to make that much hormone, which is why your TSH is high. But, nothing can help your thyroid. Taking thyroid hormone replacement, as the name suggests, just replaces the hormone your thyroid can no-longer make easily. NDT or whatever doesn't 'help' your thyroid in any way - unless you call shutting it down and giving it a rest 'helping'. NDT is not a treatment for a sick thyroid.
Dr P did say initially my thyroid was compromised as a result of adrenal insufficiency rather than the other way round (if that's a thing).
Adrenal insufficiency certainly is a thing, but a lot of people take that to mean Addison's disease, so be careful with using that term - I was once severely bawled-out over using it when I didn't mean Addison's. Might be safer to use Adrenal Fatigue - unless you have Addison's. Do you have Addison's? But, I don't know how right Dr P was on that.
It's always worth doing gluten-free properly for a few months, to see if it helps. If it doesn't, well, go back to eating gluten. But, if it helps it's really worth it, I'm told. Although it didn't help me.
However, I'm not sure that a vegan diet would help. Not because of the carbs but because vegans can become very low in B12 and iron, which won't help at all. Vit D, vit B12, folate and ferritin absolutely need to be optimal for a healthy thyroid status. And, by 'thyroid status', I'm not just talking about the gland, I'm talking about thyroid hormone levels and the way the body uses them.
It sounds as if this is not the time to be worrying too much about the type of diet you're eating. The important thing is more to make sure you get enough nutrients and enough calories to see you through.
From what I'm starting to learn, I could actually be suffering now from all the carbs I had from xmas through to about early Match?
In what way?
Since I'm starting from scratch again - more or less - when I go back on the supplements, do you think I should start low and very gradually increase them until I feel better?
How long have you been off them? You're talking about the thyroid and adrenal supplements, I imagine?
I think, now, it's very important to establish whether or not you have Hashi's. Would it be possible for you to get an ultra-sound of your thyroid? Blood tests don't always give a definitive answer.
It's not that your thyroid doesn't need 'much help', your thyroid is struggling like mad to make that much hormone, which is why your TSH is high. But, nothing can help your thyroid. Taking thyroid hormone replacement, as the name suggests, just replaces the hormone your thyroid can no-longer make easily. NDT or whatever doesn't 'help' your thyroid in any way - unless you call shutting it down and giving it a rest 'helping'. NDT is not a treatment for a sick thyroid.
OK. So my thyroid is knackered but taking NDT or similar will 'rest' it? But there's nothing I can do to repair it and will have to find ways to live with it. Is that about the size of it?
Adrenal insufficiency.
I used the term adrenal fatigue when I went to see Dr P, as that's what 3 different GPs had called it. Dr P said there was no such thing in official medical terms. He said I had low adrenal reserve, also called secondary adrenal sufficiency (if I remember correctly). I was worried I had Addison's - but he said not. I think after that I just got out of the habit of saying adrenal fatigue. I tend to call it LAR.
Carbs
The tiredness - and feeling better quickly after ditching them. I don't know, really - I think I'm just grasping at straws out of confusion and a bit of desperation.
How long have you been off them? You're talking about the thyroid and adrenal supplements, I imagine?
It's about 2 weeks now, or slightly more. Someone else mentioned I should have been off them for at least 6-8 weeks to get a true result, so my test results may be coloured slightly by having some Metavive in my system.
If I can get my adrenal test sorted and get back on Adrenavive and prednisone I may feel well enough to stay off the thyroid meds and do a further test if you think that would help?
I think, now, it's very important to establish whether or not you have Hashi's. Would it be possible for you to get an ultra-sound of your thyroid? Blood tests don't always give a definitive answer.
I'll try and get my GP to order an ultrasound. With these test results she may be more inclined to 'indulge' me.
Others on here seem pretty sure I have auto immune Hashi's hypothyroid and need to take something (when I'm back on adrenal supplements for a couple of weeks).
I just want to know what to do next, really, as I know my GP won't have a clue.
If I can get an ultrasound, is it better to continue to stay off the Metavive until I've had it done, do you think?
OK. So my thyroid is knackered but taking NDT or similar will 'rest' it? But there's nothing I can do to repair it and will have to find ways to live with it. Is that about the size of it?
That would appear to be the size of it, yes. And, when I say 'rest', I'm not talking about restorative rest, the way you would with adrenals. Adrenals can bounce back, thyroids can't.
It's about 2 weeks now, or slightly more. Someone else mentioned I should have been off them for at least 6-8 weeks to get a true result, so my test results may be coloured slightly by having some Metavive in my system.
Well, you'll still have some T4 in your system, anyway. The T3 will be gone, but the half-life of T4 is a week. There won't be much, because there isn't much in what you were taking, but your FT4 might be ever so slightly elevated.
Given it's only two weeks you've been off them, and they don't contain much hormone, anyway, I would say you could go straight back onto the same dose. If that feels wrong, then reduce a little, but it probably won't.
If I can get my adrenal test sorted and get back on Adrenavive and prednisone I may feel well enough to stay off the thyroid meds and do a further test if you think that would help?
I think it would. And, this time do a full test:
TSH
FT4
FT3
TPO antibodies
Tg antibodies
vit D
vit B12
folate
ferritin
If I can get an ultrasound, is it better to continue to stay off the Metavive until I've had it done, do you think?
Yes, that might be a good idea. Get the ultrasound, get the full testing when your adrenals are feeling stronger, then reconsider if you really need the Metavive. Or, if you are found to have nutritional deficiencies - or if they're just suboptimal - supplement your nutrients for a while, and test again.
The only nutritional deficiency seems to be ferritin. I went a bit overboard with the D3 (stopped it for now) and B12 (reduced that to one spray a day).
I bought pate as soon as someone pointed out it was too low (of course the GP thought it was fine!).
My sudden hair loss and feeling knackered may be down to the low ferritin - I hope. So hopefully raising my ferritin will help with that.
I will leave you in peace now - huge thanks for all your work. I used to do this sort of thing for disabled people - advise them and do their paperwork, etc. when they were being battered by the DWP, so I know a LOT of patience is involved - not to mention hard work.
No problem. I've seen worse! lol Some people are so hypo you just can't get through to them no matter what you say, and that can be a challenge. It's actually interesting to learn about other people's symptoms and how they react to various treatments. And, to be frank, patience is about the only virtue I have! lol Might as well put it to good use.
Thanks for the info. It's even worse than that, though. About 3-4 years ago I did a bromide detox... with iodine! I'd done the sole of the foot nighttime test and all the iodine was gone by morning, so I began supplementing with Lugols!
Of course, I wouldn't have to have self-medicated had I been diagnosed properly in the first place. But I was just so exhausted and looking for answers and I was sure mu thyroid was involved somehow.
I can't come off the supplements for that long right now. I think I'll try a little NDT and see how things go. And I need to get my adrenals sorted out first, and then try and figure out where my thyroid is at. I may respond well to the NDT (fingers crossed) and get myself to a better place without more imminent testing.
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My TgAB were ten times that when I was diagnosed. But, it doesn't matter how high they are, if they are over-range you have Hashi's, and it's really not worth retesting them after that. The level of antibodies does not reflect a degree if severity of Hashi's. Hashi's is Hashi's, and it follows its course. Antibodies fluctuate. And, even if you managed to get rid of them completely - something that's not going to happen - you would still have Hashi's, because the antibodies aren't the disease. I should forget about them, if I were you. 
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