Hi, in July of this year, I went to Gp to complain of extreme tiredness, agitation and weight gain, my weight in a little over 12 months had balloned from 11 Stone with a 32" waist, to 13 stone with 36" waist and I have grown some healthy manboobs in the process too!
I was convinced that my bloodtest would confirm a thyroid issue however it was apparently normal and I was eventually diagnosed with Pernicious aneamia after IFA test and am undergoing relevant treatment.
My thyroid test was a puzzle to me as it was worded differently than those I had seen before, the test was (TFGPS) THYROID ( NOT T4) ?
My result was "normal" : serum TSH level 1.1 mU/l with a reference range of 0.35-5.50mU/l.
Is there any need for me to investigate further? I'm currently due to see a haematologist as I told doc that b12 loading dose treatment had no effect, I'm actually getting pins and needles in my hands and feet and am gunning for more intensive b12 treatment.
Thanks
Written by
jdh1975
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Are you on the PAS forum - ? Continuing neurological symptoms need injections every other day until symptoms subside and then more regular injections than the NHS 3 monthly protocol.
Do you have a copy of the Folate and B12 Deficiency Guidleines ?
yes I am on every Pernicious aneamia and b12 deficiency forum/ page possible
There is a massive problem of undiagnosed and mistreated Pernicious aneamia / b12 deficiency in the UK, i am quoting BNF guidelines to my Gp and BHSC guidelines to a haematologist and getting absolutely nowhere, there is no doubt in my mind that I will have to buy my own supplies and self inject sooner or later, however, as you rightly stated they do share the same symptoms and quite often a person has more than 1 autoimmune disorder i.e both Pernicious aneamia and thyroid disorder.
I suppose that maybe I should pay for a comprehensive thyroid test via blue horizon and get to the bottom of my massive weight gain
Please look at the PINNED POSTS on the above link for help. If you have a diagnosis of PA then the Pernicious Anaemia Society can step in and give you support. Website details available on the above link.
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