Thyroid test result help: Hello everyone, I'm... - Thyroid UK

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Thyroid test result help

Aliking4 profile image
14 Replies

Hello everyone, I'm wondering if anyone can help me with some private Thyroid test results I've received. I've been feeling so tired, unwell, achey etc for the last 6 years, diagnosed as Fibromyalgia. The thyroid test results are:

FT3 4.4

TSH2.46

TgAB 15.6

TPOAb 10.8

T4 90

FT4 11.9 (low)

All apart from the Free Thyroxine (FT4) which has come back slightly low, are showing as normal or optimal.

Has anyone here who has had the same kind of results as these benefited from being treated for an underactive thyroid? I have mostly all of the symptoms listed and would love to feel better at some point. Thank you!

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SlowDragon profile image
SlowDragonAdministrator

Please add ranges on these results, figures in brackets after each result

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/signs-symptom...

20% of Hashimoto's patients never have raised antibodies so a thyroid ultrasound scan is necessary

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

JackSpike profile image
JackSpike in reply to SlowDragon

The Thriva test is almost half the Medicheck - Is there a reason for this?

SlowDragon profile image
SlowDragonAdministrator in reply to JackSpike

Thriva are the new kids on the block ....trying to entice new custom?

SeasideSusie profile image
SeasideSusieRemembering

Aliking4

As this is a private test, was it with Blue Horizon, Medichecks, Thriva or Monitor My Health? They all tend to have the same reference ranges.

If so, and the range of FT4 is 12-22 then you are below range.

Please add the ranges, as SlowDragon has suggested, and we can help.

Aliking4 profile image
Aliking4 in reply to SeasideSusie

Hi both, thank you for your replies, the test was done via Thriva prick test undertaken at 9am after fasting.

FT3 result: 4.4 (range 3.1 to 5 optimal, above 5 to 6.8 normal)

TSH result: 2.46 (range 1 to 2.5 optimal, 2.6 to 4.2 normal)

TgAB result: 15.6 (range 0 to 115 normal)

TPOAb result: 10.8 (range 0 to 34 normal)

T4 result: 90 (range 66 to 181 normal)

FT4 result: 11.9 (range 12 to 17 normal, 18 to 22 optimal) so showing slightly low at 11.9

I also had vitamin levels tested:

Active B12 result: 161 (range 37.5 to 188 normal)

Ferritin result: 49 (range 44 to 150 optimal)

Folate: couldn't test (blood cells burst)

Vitamin D result: 78 (range 75 to 120 optimal)

Kind regards

Ali

SlowDragon profile image
SlowDragonAdministrator in reply to Aliking4

What vitamin supplements are you currently taking

What’s your diet like?

TSH is “normal “...though slightly above average .... and not reflecting your low Ft4 and fairly low Ft3

Ever had whiplash or head trauma

Possibly looking at central hypothyroidism

Ask GP for ultrasound scan of thyroid

Aliking4 profile image
Aliking4 in reply to SlowDragon

Hi SlowDragon

No head trauma.

I am menopausal so on BHRT. I've always had hormonal issues due to PCOS.

I'm currently taking some L-Tyrosine and DL-Phenylalanine to help raise Dopamine levels. I understand this can help with thyroid however I'm taking them as I was on Citalopram (anti-depressant) and wasn't moving off the sofa due to lack of motivation. I've come off the Citalopram and I'm feeling more motivated.

I take a really good Methyl Multi-nutrient by BioCare recommended to me by my nutritionist. I also take Magnesium, Calcium and Vit D supplements along with a probiotic (L. Rhamnosus). I also use a GuarGum fiber pre-biotic supplement. I do likely have gluten intolerance.

My diet is good and sometimes not so good, I tend to comfort eat and have always had weight problems.

I've looked into all sorts over the years, like most people diagnosed with Fibromyalgia, but wanting to specifically know if under-active thyroid could be an issue?

Hope that helps.

Kind regards

Ali

SlowDragon profile image
SlowDragonAdministrator in reply to Aliking4

So PCOS is very strongly linked to Hashimoto’s

hashimotoshealing.com/hashi...

Push GP to do ultrasound scan of thyroid..

Or get one privately....I have details of scan options in London....cost about £150

Do any of your supplements contain biotin...

If so it’s ESSENTIAL to stop taking any supplements that contain biotin a week before ALL BLOOD TESTS

Are you currently strictly gluten free?

If not you need coeliac blood test..while eating high gluten diet

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

healthcheckshop.co.uk/store...?

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Getting FULL Thyroid And vitamin testing again 8-12 weeks after going strictly gluten free

Aliking4 profile image
Aliking4 in reply to SlowDragon

Ok thank you SlowDragon.

I should have said that I've had an Endoscopy and don't have Coeliac Disease. Although most likely a sensitivity to gluten. The nutritionist has suggested I go gluten and dairy free. I don't often eat alot of gluten but should completely abstain as I do feel better when I avoid it and stick to more of a high protein diet.

Yes my supplement has biotin in it. In what way does this effect the Thyroid results?

I will speak to the GP about a thyroid scan or maybe take a trip to London.

Thank you for all the advice!

Ali

SlowDragon profile image
SlowDragonAdministrator in reply to Aliking4

Strictly gluten free diet does have to be ABSOLUTELY Strictly Gluten Free...avoid all cross contamination...no shared butter, jam, cutting board. Separate toaster for GF toast, or get a toaster bag from Coeliac UK or online

Every time you eat a speck of gluten it takes months to recover

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

SeasideSusie profile image
SeasideSusieRemembering in reply to Aliking4

Aliking4

Unfortunately, Thriva make their reference ranges most confusing when you look at the coloured bar graph. The ranges are from one end of the green area to the other, including both light and dark green. The proper ranges are shown on the listed results which you are able to print out, like this

healthunlocked.com/thyroidu...

It's ridiculous to put an "optimal" range because that's very individual, what is optimal for me may not be optimal for you.

Take this for example

FT3 result: 4.4 (range 3.1 to 5 optimal, above 5 to 6.8 normal)

The range is 3.1-6.8 yet they put optimal at 3.1-5, no way on this earth is anyone going to be optimal with a level of 3.1, they are going to be very unwell.

So your results are:

TSH: 2.46 (0.27-4.2)

FT4: 11.9 (12-22)

FT3: 4.4 (3.1-6.8)

If you took your supplement containing Biotin in the 7 days before the test, there's a possibility that your results are incorrect, Biotin is used in their testing procedure and when you take Biotin it can give false results; however, we don't know in what way they would be false.

If the Biotin did not affect your results, then you could possibly be looking at Central Hypothyroidism which is where the problem lies with the pituitary (Secondary Hypothyroidism) or the hypothalamus (Tertiary Hypothyroidism). Central Hypothyroidism is diagnosed when TSH is low, normal or minimally elevated with FT4 below range.

Active B12 result: 161 (37.5-188)

This is a good result.

Ferritin result: 49 (13-150)

This is too low. Ferritin is recommended to be half way through it's range, so 82 with that range. You can help raise your level by eating liver regularly, maximum 200g per week due to it's high Vit A content, also liver pate, black pudding, and including lots of iron rich foods in your diet

apjcn.nhri.org.tw/server/in...

Folate: couldn't test (blood cells burst)

Are they sending you a new test?

Vitamin D result: 78nmol/L

This is on the low side.

The Vit D Council recommends a level of 125nmol/L and the Vit D Society recommends a level of 100-150nmol/L.

To reach the recommended level from your current level, based on the Vit D Council's suggestions you could supplement with 3,000 D3 daily along with D3's important cofactors magnesium and Vit K2-MK7.

Once you've reached the recommended level then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:

vitamindtest.org.uk/

D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

What is the reason for taking calcium? Have you been tested and found to be deficienct?

Aliking4 profile image
Aliking4 in reply to SeasideSusie

Hi Seaside Susie

I started to take Calcium as I read it was good for PMDD which I have always suffered from. Although I am menopausal and not having periods for nearly a year now I am still experiencing cyclical symptoms which involve migraines, back pain and nausea whilst my body is trying to ovulate and during the luteal phase. I am now taking double Progesterone during this time which I do think helps. My nutritionist wasn't recommending taking Calcium, should I stop taking it? I have had low Vitamin D levels before hence taking a supplement, so I will up my consumption to bring it up higher.

SeasideSusie profile image
SeasideSusieRemembering in reply to Aliking4

Aliking4

I don't know what PMDD is.

Calcium should always be tested and only supplemented if found to be deficient.

Taking D3 improves uptake of calcium from food anyway, so to be taking Calcium suppements as well may take your calcium level too high. And it's essential to take K2-MK7 (although doctors don't know this) to make sure the calcium goes to bones and teeth and not arteries/soft tissues.

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