New test levels - please help!: Hello, After a... - Thyroid UK

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New test levels - please help!

Boopsicorn
Boopsicorn

Hello,

After a thyroïdectomie in March of 2018 and changing meds to be on Synthroid (brand name) 125mcg for 6 months now.

I fired my first endo and my second one is not confirmed to be much better as she doesn’t care too much about my Graves flare ups, but I’m hanging in there despite feeling tired, super depressed, having hip pain and generally dry skin.

Here are my new levels:

TSH 0.60 ulU/mL - range: 0.55-4.78 (my level has been on a downward trend since I started at 1.35)

Free T4 1.7ng/dL - range: 0.9 - 1.8 (my level has been on an upward trend as I started at 1.1)

T3 124ng/dL - range: 60-181 (level is trending downward as I started at 158)

Vitamin B12 is 249pg/mL - range: 211-911

Can you guys tell me how does that look to you? I mean I’ve had a lot of stress in my life this past year but I really feel crappy so I’m thinking maybe it’s linked?

Thank you so much!!!

4 Replies
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SlowDragon
SlowDragonAdministrator

You need to test vitamin D, folate and ferritin too

B12 is on low side. Folate may be low as well.

All four vitamins need to be optimal for thyroid hormones

As you had Graves, are you on strictly gluten free diet?

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

Graves is an autoimmune disease, and thrives on stress and anxiety.

Graves attacks the thyroid, the thyroid is the victim in all this, and not the cause.

Surgical removal of the thyroid, is a better option than Rai.

But now without this major gland, you need to work out what your thyroid did, and to compensate for it now not being there any more.

Personally speaking I believe if your thyroid is removed through medical intervention all patients should be given the option of the relevant thyroid hormone replacements as standard treatment. It seems a given to me, true some might be ok on monotherapy, but some may not, and this should be recognised as normal.

There are a couple of books that you might like to look at :-

Graves Disease A Practical Guide by Elaine Moore - ( USA website ) has Graves Disease -

From Hyper to Hypo to Healing by Barbara S Lougheed - ( USA ) also has Graves -

Your Thyroid and how to keep it healthy by Dr Barry Durrant Peatfield - a UK doctor who

has hypothyroidism - yes, you may not now have a thyroid, but it was there for a very good reason, so you need to shore yourself up accordingly.

Hope this helps -

Hi, thanks for your response.

yes I know about Graves, unfortunately I’ve dealing with it fir over 2 years now and it doesn’t seem to want to subside.

I just had a call with my endo following my last results I published above and she told me I was at an optimal level on all my TSH, T3 T4 tests and that if I had any issues to go see my General Practitioner....

So the hyper sensitivity to cold, intolerance to heat, hitchy dry skin, extreme fatigue, knee and hip pain, depression, digestive issue and acid reflux and overall discomfort is to be ignored because you know I’m 43 so it’s part of getting older?

It seems to be what she was saying. I hung up from that call completely depressed and I don’t know what to do anymore...

I mean I know I’ll bounce back and fight again to get myself better but right now I feel so low 🙁

Hey there, sorry to read your post, but I've experienced similar, so try not to take it too personally.

I had RAI in 2005 and now am with Graves Disease, thyroid eye disease and hypothyroidism - becoming very ill some 5 years ago and receiving no help from the Nhs.

It has been a slow build for me over the past 2 years, but with vitamins, minerals, and adrenal supplementation I know I'm going in the right direction.

I am now self medicating with NDT and know this is the right medication for me.

It's not easy, going it alone, but I feel I have been left with no option.

Living without a thyroid is no walk in the park, especially when you're not able to be prescribed any treatment options except Levothyroxine, which doesn't always work for all of the people all of the time.

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