I have been receiving the Thyroid UK magazine for years now, and in the early days this support helped me get the proper diagnosis of poor conversion of T4 to T3. I have been on Armour and recently Erfa Thyroid since 2000, prescribed by my NHS Dr, and I got nearly better. I put the rest of my mild problems down to my thyroid problem.
However, I went very ill again April 2009 and as it all felt like pre 2000 I thought it was all due to the thyroid thing. But to cut a long story short, with my GP's help and support, I have recently been diagnosed with chronic Lyme disease, contracted in 1997 here in Yorkshire. (Lyme disease is caused by an infected tick feeding on you) This is another illness massively misunderstood and underdiagnosed, and also very controversial in its diagnosis and treatment. It turns out that THIS is the root of my problems and apparently untreated Lyme can cause autoimmune conditions - in my case Hashimotos. So my thyroid problems stemmed from Lyme being missed by the medics. It may be rare, but it may be like thyroid conditions - not as rare as the medics accept.
Fortunately, I have a very good GP, who persevered to find the root of my illness, and didn't just label me with something else.