Hi
Before it is pointed out that I am a idiot for stopping my thyroid medication, I will agree 100% with you.
The reason I stopped was I have been having intense neck pain/headaches and blocked ears for weeks now and I thought that perhaps this was the result of my T3.
They got so bad that I took myself to A&E twice, I couldn't take the pain anymore. It was effecting my day to day living.
A&E was the last place I wanted to go, but, as our walk in centre has now closed and I couldn't get a GP appointment I had no choice.
First time I was told I had an ear infection and given antibiotics and this was the reason for the neck pain, they didn't help.
Second visit, the A& E doctor told me I had a bulging ear drum sent ENT down, they looked in my ears and said no problem.
An MRI head scan was given, all clear, bloods taken 'normal' but then told I may need a lumbar puncture. Then after discussions and hours later, I was sent home with strong muscle painkillers and booked as an out patient appointment for a neck scan (booked end of November)
Nothing has improved, so whilst all of this was going on, it appeared that when I took my T3 (self medicating) an hour later my pain got worse, so I thought I would stop my T3 altogther.
I was originally on T4 via my GP, but I never felt well on it, despite my blood results looking good (I posted them on here for comments) so I stopped it back in August as my GP was getting concerned about my TSH results (was on 125mcg of Levo), and he wasn;t going to increase my Levo, my T3 results always seemed low as well.
I then started on T3, slowly, reading Paul Robinson book etc and detailing vitals.
I was doing well, when I say well, I felt better on T3 than T4, however, not perfect every time I tried to increase my T3 (was on 37.5mcg spilt in 3 dosage) my headaches and neck pain seemed to get worse.
So I stopped my T3 for just over a week to see if it helped my neck pain etc get better. It didn't.
I did a finger prick test on Monday and I am shocked at the speed in which my TSH has gone back up, as in september 2018 it was:
The results below are 52 days on T3 and eight weeks since stopping T4.
September 2018 results.
TSH 0.489 (0.27-4.20)
T4 1.540 (12.00 - 22.00)
T3 4.27 (3.10-6.80)
B12 112.00 (25.10-165.00)
Folate 11.22 (2.91-50.00)
Vitamin D 116 (50.00-200.00)
Ferritin 125 (13.00-150.00)
Antibodies 201.00 (0.00-115.00) I have hastimoto's gluten free since sept 2017)
peroxidase antibodies 50.6 (0.00-34.00)
October 2018 results on T3 only, but stopped a week before blood taken
TSH 6.68 (0.27-4.20)
T4 11.400 (12.00-22.00)
T3 5.79 (3.10-6.80)
Considering I was taking T3 only 37.5mcg the T3 results don't look very good.
What I have now done is gone back on 50mcg of Levo and adding T3 slowly again.
I have high cortisol morning and mid morning and low DHEA and other hormones are low. I am taking Ashwagandha and ginseng and Turmeric for the inflammation which I think is the issue with my neck pain?
I am also seeing an ENT specialist privately and having acupuncture. I have also booked to see another Endo privately, but I can't see him until December. He was on the list here and some people has mentioned that he is very good.
Has anyone got any ideas. I am freezing cold, weight gain, hair loss, blocked ears, ringing in ears, no energy, muscle pain, you name it I have it.
Best Wishes
Peanut31