Serum 25- hydroxy vitamin D3 level (XaEQa) 36.9 nmol/L (with scales of recommended action: 25-50 nmol/L: VIT D deficiency consider replacement being applicable to this result)
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Low B vitamins and vitamin D both linked to Hashimoto's
So are you now supplementing vitamin D? Or B complex/B12
Vitamin D needs improving to around 100nmol. Many with Hashimoto's find vitamin D mouth spray is good as avoids poor gut function. Trial and error what each person needs to improve levels and then what needs as on going maintenance dose
Retesting after 2-3 months and then twice yearly.
Vitamindtest.org.uk
Also look at importance of magnesium and vitamin K2 Mk7 when on vitamin D supplements. Lots of posts about this on here
Before starting on any B vitamin supplements you really need to talk to GP and get tested for Pernicious Anaemia. Possibly need B12 injections
If GP won't test or offer this then a daily good quality vitamin B complex, possibly plus a sublingual B12, likely to help. Again masses of posts about this on here
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results
As you have Hashimoto's are you already on strictly gluten free diet? If not you probably want to consider it
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should ideally be done as early as possible in morning and fasting.
If on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
I see from one of your posts a month ago you already take B12
In which case your true B12 level is likely substantially lower than this
The fact you have been investigated (for long time) due to balance issues and tinnitus strongly suggests low B12
You really need to have intrinsic factor and full testing for Pernicious Anaemia, but not sure if already taking B12 or B complex affects tests
Gambit62 may know the answer to that. She may be along with suggestions
Are you still on vegan diet? It can be difficult to be vegan, soya and strictly gluten free
Have you managed to get right off the propranolol yet? Or still slowly reducing dose? Last reduction can be the hardest.
Correcting low Vitamin D can increase our need for B vitamins as body starts to repair, the link from Dr Gominack's explains that well. Peripheral neuropathy can start or get worse about month or so after starting high dose vitamin D
Your not taking any omeprazole or Lansoprazole or similar PPI, for high stomach acid are you?
Hi, and thanks for all that information. I'll try and answer all as accurately as possible:
I may have been mistaken in saying I was on B12 before my GP did the tests I posted. Since then, I have been taking B12 and Grey Goose suggested a spray, which I started 2 days ago (I think this is a 1000ug dose) and a Vit D spray 3000ug once a day. I take my (higher 175mcg) dose of levo at night now as well, as I was waking up with tinnitus and deafness and this also means I am not taking anything else with the levo. (this seems to have helped)
I have come off Propranolol with no noticeable effects - did this gradually..
I am no longer vegan, as you pointed out, this just became too difficult to manage - I am still dairy + gluten free and obviously the first thing to go was the soya after info received here.
So.. I have been called in to the GP due to the last test results, on the 22nd I believe I have a nasty feeling that he is rubbing his hands together as there is a nice get out of trouble result for him to grasp onto: Hyperglycaemia. I have read in many places that this is usually due to low T3 levels.conversion, so I'm going to have a medichecks test done before I see him and then see if he will either prescribe T3 if needed or refer me to an endo.
In fact my blood test results were almost precisely described in Dr Tofts report... which I have also printed out to use as a weapon!
I feel I have been reacting to advise given here and to my test results.. and then finding out other important info afterwards! Like not taking VitD within 4 hours of Levo... I am also not really sure how much B12 or D to take, so have been taking it to see if I feel any better.
To be honest, I have made some good improvements - my hearing has good and bad days now, which is both hopeful for the future and a blessed relief from constant deafness and noise. I truly believe that I can get this to a minimal manageable state once I get the full picture and can optimise everything.
So all in all I have made some drastic changes since coming on this forum, I expect these will take time to take effect, but I do feel very different.
No soya
No gluten
No beta blockers
Vitamin supps
Extra Levo
As a footnote, you mention neuropathy - I don't have this, but do get pins and needles/prickling in my arms, neck, head and legs at various times of the day which is new... keeping an eye on this.
Also have reduced my training regime to something more gentle and have increased my food/calorie intake with a balanced diet which now includes meat.Can;t wait to see the full T3 picture... feel like I'm on a mystery quest, juggling 20 balls and whistling a tune
As well as B12 are you taking a good vitamin B complex? Helps keep all B vitamins in balance
Remember to stop taking Vitamin B complex 3-5 days before blood test
You are using vitamin D mouth spray? I don't think it as important to be 4 hours away, as we absorb it in mouth not gut. But if you're now taking Levo at bedtime that makes it easier anyway
Have you looked at magnesium and vitamin K2 Mk7 supplements as well when on vitamin D. Propranolol apparently lowers magnesium (according to the book The Magnesium Miracle)
Great info, I wasn't really holding out much hope for GP T3 etc... or endo for that matter... so I'm going to wait another couple of weeks before private bloods as you say, to allow for changes in Levo dose etc. Will then make use of the forum again for next steps. Will stop B vits before test as you suggest (and Levo 24 hours before, fasting etc)
In the meantime (as I am sure I have improved because of this) I will work on the supplements..
I wondered about the B complex- no I'm not taking any other vitamins (again because I am now so nervous about making mistakes!) - So off I trot to get a good B complex, magnesium and Vit MK7!
Many thanks for this great advice. Much appreciated.
Igennus Super B complex is good quality (my favourite as it's two small pills per day. Can start with just one or remain on just one per day
Other recommended brands on here are Jarrow B right or Thorne. Both good quality, but large capsules
Natural origins is good vitamin K2 Mk7 - small soft gel
Calm vitality magnesium powder is cheap and easy to use. (Best early evening - four hours minimum away from Levo) Be warned start slowly on low dose, too much can cause diarrhoea
Hiya, bit of an update.. I received my medichecks T3/T4 results, with the comment from the doctor that everything seems normal.
Given the changes I have made, I'm pleased that I'm converting, if they results are being read correctly.
I have put myself on thyroid_s now since the day after the tests, to try and see if levothyroxine as a medication is causing the hearing /tinnitus /vertigo issues I have had to live with for so long.
With these results, if they are correct, I will know if Levo is to blame, as T3 is not the likely cause it seems.
Am I going in the right direction do you think?
I'm having b12 injections starting on Tuesday and doctors prescribed mega vitd weekly dosage...
I am my own science experiment!
I would really appreciate any insight you may have..
Thanks again I will indeed keep testing. I want to give this new regime 6 weeks before doing the full spectrum test again... Whilst monitoring my hearing issues without levothyroxine.. I think I had a bit of a bad start as I was being cautious starting Ndt and went a bit hypo again, but should be OK.
If I don't get improvements to my hearing etc I might as well stay on levothyroxine seeing as I'm converting and at good levels.
I'll post my journey with this strategy as I progress.
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