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Libby_18 profile image
5 Replies

Thankyou

Thyroid peroxidase antibody 475 (<34)

Thyroglobulin antibody >1300 (<115)

Ferritin 12 (30 - 400)

Folate 2.5 (4.6 - 18.7)

Vitamin B12 186 (190 - 900)

Vitamin D total 26.1 (25 - 50 vitamin D deficiency. Supplementation is indicated)

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Libby_18 profile image
Libby_18
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SlowDragon profile image
SlowDragonAdministrator

This just demonstrates why you can't just add T3 without improving vitamin levels first

AND addressing high antibodies by going strictly gluten free

Endo's don't seem to understand we need to address it all.

Not just low T3,

not just vitamins

not just food intolerances and leaky gut....but all of it together

What supplements are you taking? obviously not enough

See SeasideSusie detailed vitamin supplement advice

eg

healthunlocked.com/thyroidu...

Look at changing to strictly gluten free diet

thyroidpharmacist.com/artic...

chriskresser.com/the-gluten...

amymyersmd.com/2017/02/3-im...

read as much as possible about Hashimotos

Good response from Patients Assoc

patients-association.org.uk...

Libby_18 profile image
Libby_18 in reply toSlowDragon

Thankyou only taking 800iu D3 but I don't think it's helping

SlowDragon profile image
SlowDragonAdministrator in reply toLibby_18

well you can see from the link to Seaside susie's reply to another with similar dire results.....you need way more than that

Loading dose of Vitamin D

Ferritin is so low you need iron infusion.

B12 and folate need full testing for Pernicious Anaemia before supplementing.

Post these results on PAS Unlocked too - they are the B12 experts

healthunlocked.com/pasoc

Why is GP not sorting any of this?

Is there another GP you can see urgently?

You need major supplementation, probably testing for coeliac too

Libby_18 profile image
Libby_18 in reply toSlowDragon

I don't know why GP isn't sorting this and I can see another GP tomorrow thanks

SeasideSusie profile image
SeasideSusieRemembering

Libby_18

Ferritin 12 (30 - 400)

For thyroid hormone to work (that's our own as well as replacement hormone) ferritin needs to be at least 70, preferably half way through range.

You need an iron supplement and as your level is so low you should ask for an iron infusion which will raise your level within 24-48 hours, tablets will take many months.

As your level is so far below range you need an iron infusion so ask for one. Also ask for an iron panel and full blood count to see if you have iron deficiency anaemia, a ferritin level that low can suggest this.

You can help raise your level by eating liver regularly, maximum 200g per week due to it's high Vit A content, and including lots of iron rich foods in your diet apjcn.nhri.org.tw/server/in...

**

Folate 2.5 (4.6 - 18.7) Vitamin B12 186 (190 - 900)

You are Folate deficient with below range B12 so you need to check here for signs of B12 deficiency b12deficiency.info/signs-an... go and post on the Pernicious Anaemia Society forum for further advice healthunlocked.com/pasoc quoting your folate, B12 and ferritin results, any iron/full blood count results you may already have and any signs of B12 deficiency you may be experiencing. You may need testing for Pernicious Anaemia and you will need folic acid prescribing for your folate deficiency. Don't start the folic acid until any other investigations have been carried out and B12 should be started before folic acid.

I have read (but not researched so don't have links) that BCSH, UKNEQAS and NICE guidelines recommend:

"In the presence of discordance between test results and strong clinical features of deficiency, treatment should not be delayed to avoid neurological impairment."

And an extract from the book, "Could it be B12?" by Sally M. Pacholok:

"We believe that the 'normal' serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml because deficiencies begin to appear in the cerebrospinal fluid below 550".

"For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1000 pg/ml."

**

Vitamin D total 26.1 (25 - 50 vitamin D deficiency. Supplementation is indicated)

taking 800iu D3

800iu D3 is totally inadequate and isn't going to ever raise your level. It is hardly a maintenance dose for someone with a reasonable level.

You should have loading doses - see NICE treatment summary for Vit D deficiency:

cks.nice.org.uk/vitamin-d-d...

"Treat for Vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 30 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU] given either as weekly or daily split doses, followed by lifelong maintenace treatment of about 800 IU a day. Higher doses of up to 2000IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders. Several treatment regims are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

Each Health Authority has their own guidelines but they will be very similar. Go and see your GP and ask that he treats you according to the guidelines and prescribes the loading doses. Once these have been completed you will need a reduced amount (more than 800iu so post your new result as the time for members to suggest a dose) to bring your level up to what's recommended by the Vit D Council - which is 100-150nmol/L - and then you'll need a maintenance dose which may be 2000iu daily, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with City Assays vitamindtest.org.uk/

There are important cofactors needed when taking D3

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.

Magnesium helps D3 to work and comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds

naturalnews.com/046401_magn...

Check out the other cofactors too.

As you have Hashi's and it's accompanying gut/absorption problems, once you have finished the loading doses you would be better using an oral D3 spray for better absorption, BetterYou do D3 and they also do D3/K2-MK7 combo.

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