I'm getting to my wits end over this Thyroid issue. It's now ruling my life and causing me so many problems. Diagnosed just over 4 years ago, given a pill, patted on my head and sent on my way with the good news that I no longer need to pay for prescriptions. I kid you not, that was the only input I received and i have fought for the rest every day since.
Massively under dose, it took over a year to get from 50 to175mcg. Symptoms finally improved but my bloods told the doctor I was fully fit and healthy. My TSH was average and the Free T4 was a little high. I still wasn't right so I took the calculated decision to over medicate to between 225 and 250mcg per day due to a fortuitous error by the doctors and pharmacy on a new dosage. For 12 glorious weeks I was on top of the world. Symptoms were gone, head was clear, stomach issues that created limited food options cleared up and I even dropped a couple of lbs.
I monitored my heart rate, never had palpitations and my resting beat was normal. I actually perspired when exercising, the fact that I could do both was amazing.
Anyway I told my doctor what I had done, as expected they hit the roof but I finally negotiated referral to an endocrinologist. Over the past 20 months they have found I was deficient in Vit D and despite supliments I'm still insufficient. That's where I am 4 years on , I take Vit D supplements and 175 thyroxine per day.
Still not right, I decided to pay out and get my own tests for my thyroid and testosterone levels and the results were:
* out of range.
TSH 0.761mIU/L Range 0.27-4.20
Free Thyroxine 20.99 pmol/L Range 12 - 22.00
Total T4 115.4 nmol/L Range 59 - 154.00
Free T3 4.17 pmol/L Range 3.10-6.80
*Reverse T3 31ng/dL Range 10.00 -24.00
* Reverse T3 Ratio *8.76 Range 15.01 - 75.00
*Thyroglobulin Antibody 157.5 Iu/mL Range 0.00 - 115.00
* Thyroid Peroxidase Antibodies 337.1 Range 0.00 - 34.00
Vit B12 405.2 pmol/L Range 140 - 724
Folate Serum 9.5ug/L Range 3.89 - 26.80
* 25OH Vitamin D 42.91 nmol/L 50.00 - 200.00
*Testosterone 8.38. Range 7.6 - 31.4 ( I'm under 40 years of age.)
Anyone have any idea what I should be expecting from the Endocrinologist as the GP has washed their hands of me whilst I am under them but I'm waiting between 6 and 10 months between appointments.
Finally, I'm happy to go private to another consultation if I don't get any further support in the hospital here, Can someone pass any recommendations of who will be open to reading my reverse T3 readings along with the other out of range issues????
Any guidance is hugely appreciated.