Since my last post 2 weeks ago, I stopped taking a quarter of a 25 mg liothyronine tablet with my levo (100 mg) which I had been trying for 4 days.
I had swollen and achy joints in my hands wrists and feet, and was (and still am, especially at night) feeling hot even though it's quite cold here in Manchester and had a slightly elevated temperature in the afternoon (37.5) for the past 3 weeks. This is strange for me, I have always been cold in the Winter, and always had icy cold hands. Now even though less achy they are slightly swollen and warm. My neck and back hurt a lot but I wonder if it might have to do with not exercising, spending too much time slumped while breastfeeding my baby and being woken up at night by baby. Clutter advised I should see a GP about the hand and feet pain and I was lucky I saw a new GP who seemed sympathetic to the idea of upping my levo if necessary even though I was still within range. I showed the GP my bloods done in Italy on January 7th and he examined my joints. He said he would consider more levo but he wanted me to have new bloods done, including tests for Rheumatoid Arthritis.
Because of feeling warm, I was a bit worried that the bloods would show I was becoming hyper but apparently that's not what is going on.
Here are my new thyroid results:
TSH 3.3 (0.20 - 5)
T4 16.7 (9 - 24)
These are the previous ones from January 7th:
TSH 2.6939 (0.2800 – 4. 6000)
FT3 2.54 (1.40 – 4.20)
T4 11 (8.0 – 22)
In terms of RA, nothing has come out from the blood tests but I have been referred to see a rheumatologist. I am very surprised, I have never been referred to se an endo even though I asked, so how come this referral has been so easy? Yesterday I went back to see the GP. He said my bloods were all really good. He also changed his mind about upping levo when results are within range: apparently his colleague told him there's no evidence that it might help
In terms of what I can see, my B12 has improved a lot, it's gone from 421 in May 2016 to 843, which is even more than top of the range (197-771) and my folate has also improved a lot. Shall I stop taking the B12 and B Complex supplements I have been taking since beginning of December then? And my ferritin has gone up to 65.2 (13-150) from being 25. I run out of Ferrous sulphate tablets and I guess I don't need them anymore? The only things that are marked as requiring attention are my Erythrocyte sedimentation rate which is 9 mm/1stHr (<7.00mm/1stHr) and my Haematocrit which in all the bloods in the past year has always been slightly low 0.36 (0.37-47) but it says no further dr action so I guess these don't mean anything?
I am wondering what's happening to my thyroid, why do I have exactly the same TSH and T4 as in November, when I was taking only 75 mg of levothyroxine, when I have been taking 100 mg for 2 months? I was really interested in what SeasideSusie said about my T3 to T4 convertion rate seeming good and that I might be better off trying more levo rather than taking T3, but after feeling so warm and having a bit more energy, even though I'm achy, and feeling my heart pounding a bit from time to time I am not sure I need to up my medication....
The GP said I should still book my rheumatologist appointment as the blood tests for RA being negative don't mean I don't have it, so I'm going in a month.
Emotionally, it's quite tough at the moment, as the anniversary of my mum's passing approaches I think a lot about what happened. It was traumatic, I was the one who found her when it was already too late, she was only 61 and had had mental health issues for 10 years, she took a lot of medication for that, but was also hypo and on levothyroxine. I am 37, I have a 14 month old little girl who's doing great but still breastfeeding. I don't have a job because I was freelancing in London and studying for my PhD when I got pregnant. We bought a house that needs a lot of work and I am doing most of it by myself (my partner is lovely and very supportive but doesn't diy), and as I am finding it very difficult to find the drive to focus on what I was interested in before and on finishing my studies, I worry a lot about how I am going to get back into work and how I will be able to contribute financially to our little family.
Just wanted to make people aware of the context, in case they think some of my issues might be emotional rather than thyroid related. I also see a therapist once a week.
Really looking forward to your advice, this forum has been so helpful to me!