Free T4 gone through the roof. Advice needed please

[Read58]

Bloods in May T4 16 (12-22). T3 was slightly over so i reduced Lio.

Bloods today NHS T4 33 (12-23).

Tsh is 0.01 (0.1-5.00).

No T3 tested

Daily dosage 112 mg Levo. 6mg Lio.

Docs have left message to ring them, but they have no doctors there who know anything about thyroid.

When bloods where done in May i was taking 100mg levo and 12mg lio.

I reduced lio and increased levo (by 12.5 mg) to try and even up t4 and t3.

Can anyone offer any advice before i speak to the GP please.

I’m puzzled how an extra 12.5 mg per day could cause such a huge leap.

I have hashis, but antibodies have been in range for months, so assumed i was over hashis swings)

[SlowDragon Administrator]

Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

suggest you get full thyroid and vitamins tested via Medichecks or Blue horizon before considering and dose reduction

Essential to test Ft3, Ft4 and TSH

[Read58 in reply to SlowDragon]

Hi Slowdragon, had everything tested with blue horizon in May and all vit levels were brilliant. Yesterday’s test followed all guidelines. Not sure what to do. Maybe stop Levo for a few weeks

[SlowDragon Administrator in reply to Read58]

You need to see what Ft3 is

Monitor My Health Is cheapest for just TSH, Ft4 and Ft3

How do you feel?

Resting heart rate increased?

[Read58 in reply to SlowDragon]

Yes resting HR had gone up, but i’d been on holiday and drinking alcohol for seven days, so assumed that was why. HR has dropped this week . I’ve felt great for the last few weeks too! No doubt doc will tell me i’ve got an overactive thyroid! If they don’t retest including T3, i’ll do my own. Thanks for response and advice Slowdragon. Much appreciated, especially while i’m in mega panic mode !

[SlowDragon Administrator in reply to Read58]

Are you normally on gluten free diet, and perhaps ate gluten on holiday?

Obviously GP should test TSH, Ft4 and Ft3 as you are taking T3

[Read58]

Hi slowdragon, i’ve never gone entirely gluten free , so not that. When i get to speak to a doctor i will request a retest to include t3. They don’t know i take t3, although it was a previous gp who suggested i do it as NHS wouldn’t help me. Basically just been left to get on with it for past two years. Obviously not making a very good job of it!

[greygoose]

I'm afraid you can't assume that about antibodies. That level of FT4 does look like a Hashi's 'hyper' swing. And, frankly, there's no other explanation that I can think of.

[Read58 in reply to greygoose]

Hi greygoose, thank you for your feedback. Could i ask your advice please ? Would you carry on with levo as normal, or stop/reduce for a while. I really don’t know what to do for the best.

[greygoose in reply to Read58]

If you feel over-medicated, stop for a few days. But, do it on your own, don't get your doctor involved. Because, if he reduces the dose on your prescription, you'll probably have trouble getting it put back up again once the excess hormone is used up and you need it again.

[Read58 in reply to greygoose]

I sent a detailed letter to the gp. Explained t4 levels in May and Hashis swings. Unfortunately i have got to have a telephone consultation on Wednesday, but hopefully i can put across a clear case ( with the help of a small dose of Lio which keeps the brain fog at bay). In the meantime i’ll stop levo for a few days. Can’t begin to tell you how much your and slowdragons advice helps to put things into perspective. Thank you .

[greygoose in reply to Read58]

You're welcome.