Hello all. I'm a newbie and am just hoping to pick your brains...
I was diagnosed with pernicious anaemia aged 21 (now 38) and was on B12 injections for years until a GP advised that my levels were "always high when tested" and this could "be dangerous". My injections were stopped 3 years ago and, to be honest, I went along with it as I didn't know any better.
I've been light headed / fainty / nauseous / etc as long as I can remember and have had joint pain on and off for ages, so I can't honestly say that I noticed any significant new symptoms other than developing really annoying tinnitus. I did acknowledge that I felt very low and was therefore referred for CBT, which undoubtedly helped with some unhelpful thoughts about being useless, etc... but I do remember telling the therapist that I have tried very hard for years with positive thinking and my biggest struggle is that my body feels like a dead weight I have to drag round and I was just started on antidepressants.
I reviewed my diet and exercise etc at the start of the year, determined to feel fabulous (!!) but I ended up about 2 months ago feeling like I could barely get out of bed I was so tired (as well as brain fog, etc). I asked my GP for a blood test and this showed TSH 39.7 T4 8.8 as well as my B12 levels having dropped (unsurprisingly!) and low vitamin D.
So! The latest chapter is that I have had the loading dose again for B12 after finding this site and insisting, and have started thyroxine and Vitamin D. I am starting to feel a bit less tired but today's check bloods are not yet within normal ranges so there may be more improvement to come. Still the bloody tinnitus though!
One really puzzling thing is that, although I have a low temperature and have put on over a stone, my pulse has gone from 50-60bpm at rest 3 years ago to nearer 90bpm. I am doing less exercise than I was (well, none at all), but even so this seems weird. It was raised at the doctors today so she has requested an ECG and referred me to an endocrinologist.
Please could I ask for your advice, lovely people, about a) the pulse thing and b) about how to get the best out of the endocrinology referral. Am so determined to find out how I can feel as well as is possible for me, but looking back it was so easy to get fobbed off and dismissed and I want to learn from this.
Thank you for any and all suggestions.