Mallyc Went to the GP more than once about this problem and he told me to stop being noncompliant and making things up
And what was your reply?
I am meant to be back on ferrous fumarate but only once a day but still can't tolerate taking even one tablet. Actively monitored every 3 months.
Who is monitoring you? GP or haematologist?
Here is the NICE Clinical Knowledge Summary for iron deficiency anaemia treatment (which will be very similar to your local area guidelines):
How should I treat iron deficiency anaemia?
•Address underlying causes as necessary (for example treat menorrhagia or stop nonsteroidal anti-inflammatory drugs, if possible).
•Treat with oral ferrous sulphate 200 mg tablets two or three times a day.
◦If ferrous sulphate is not tolerated, consider oral ferrous fumarate tablets or ferrous gluconate tablets.
◦Do not wait for investigations to be carried out before prescribing iron supplements.
•If dietary deficiency of iron is thought to be a contributory cause of iron deficiency anaemia, advise the person to maintain an adequate balanced intake of iron-rich foods (for example dark green vegetables, iron-fortified bread, meat, apricots, prunes, and raisins) and consider referral to a dietitian.
• Monitor the person to ensure that there is an adequate response to iron treatment.
So if you've not been referred to a haematologist, ask to see one so that you can discuss your problem with taking ferrous fumarate. The haematologist should be able to find you an alternative. You cannot live your live with iron deficiency anaemia.
Each iron tablet should be taken with 1000mg Vitamin C to aid absorption and help prevent constipaton. Always take iron 4 hours away from thyroid meds and two hours away from other medication and supplements as it will affect absorption.
October 2017 FERRITIN 47 (30 - 400)
For thyroid hormone to work (that's our own as well as replacement hormone) ferritin needs to be at least 70, preferably half way through range. As you can't tolerate iron tablets, you can help raise your level by eating liver regularly, maximum 200g per week due to it's high Vit A content, and including lots of iron rich foods in your diet apjcn.nhri.org.tw/server/in...
October 2017 FOLATE 2.3 (2.5 - 19.5)
Diagnosed folate deficient in 2015, taking folic acid once a week.
Why is your folic acid only once a week? It's normally daily.
June 2017 VITAMIN B12 285 (190 - 900)
Given B12 injections for low B12 symptoms, result before injection I gave up taking these because my levels were not rising and my symptoms were not going away.
How long did you give it? Did you have 6 x loading doses over 2 weeks? Was this followed by 3 monthly injections? If you only started the injections in June you can only have had the loading injections and possibly 1 x 3 monthly injection. You have not given it enough time.
You seriously need to go and post all this information on the Pernicious Anaemia Society forum for further advice, they are the experts and will be able to guide you healthunlocked.com/pasoc Give them this information about folate and B12, list your symptoms, also give the information about ferritin and iron deficiency.
June 2017 TOTAL 25 OH VITAMIN D 66.3 Diagnosed vitamin D deficient in 2012 and prescribed 800iu. Was told by a private nutritionist this wasn't enough and recommended I take 3000iu Better You sublingual spray. Follow up testing every 6 months. Have doubled the dosage to 6000iu since March 2015 because 3000iu still wasn't raising it
Well, something is working here, albeit at a snail's pace. And that is because the sublingual spray is being absorbed because it's bypassing the stomach. You should continue, you could even raise your dose. The recommended level is 100-150nmol/L according to the Vit D Council.
There are important cofactors needed when taking D3
D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.
Magnesium helps D3 to work and comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds
Check out the other cofactors too.
As you obviously have absorption problems I would look for a K2-MK7 oral spray - in fact Better You have now brought out a combined D3/K2-7 oral spray so you could change to that.
Get magnesium in a non-tablet form, maybe magnesium oil or cream, take epsom salt baths, there are magnesium drops. Magnesium is needed to help D3 to work.
I am very surprised that your private nutritionist hasn't been more helpful about your absorption problem.