Ok, so since having RAI when I take vitamin D I get tinnitus in my left ear, I have been trying to find the reason for 4 years, anyway, I am trying to take it again (only been 2 days) as not surprisingly I'm very low in it because I hate taking it because the noise in my ear gets unbearable. I have also suffered from pins and needles in the hands. Thought maybe it's low b12, low thyroid levels etc, seems its when I take vitamin D!! I mean seriously, why?? I thought vitamin d was supposed to help you??? It's so bad at night, I just want to cry 😢. What am I supposed to do? It stops me from sleeping along with the tinnitus, I just feel like giving up, all I want is to be happy and live a somewhat normal healthy life. Is that really too much to ask?I'm sorry for the rant just feeling really sorry for myself tonight.
Vitamin d causing pins and needles : Ok, so since... - Thyroid UK
Vitamin d causing pins and needles
I have read that low magnesium can cause issues with taking vit D as it is a cofactor. Have you ever tried supplementing with magnesium?
Yes I have, I end up with palpitations and feeling sick. My blood tests always show that my magnesium levels are high, so maybe that's why.
OK, so when was the last time you had your other vitamin levels checked? Ferritin, folate, B12? Would be worth having a look there to see whats happening.
You're also not optimally medicated yet so that may be a factor too.
vitamin d did the same thing to me. It is fat soluble and will cause your tsh to rise. It takes a while to show up on blood work
What caused you tinnitus or pins and needles? I've only taken it for 2 days. But my tinnitus is getting worse, get it now without even taking vitamin d.
I took it years and was fine until thyroidectomy. It caused me to go hypothyroid very quickly but didn’t show up in blood work until 3-4 weeks later. It binds to same receptors as thyroid causing tsh to rise. I was borderline low d but stopped due to interaction. It took about four weeks to return to normal
I did have pins and needles and tinnitus.
So do you still get it if you take vit d? Do you still take vit d?
I stopped immediately. But it took a while for tsh to come back down
Tinitus is a hypo symptom. So might have nothing to do with your vitamin D.
Mccrae
It is fat soluble and will cause your tsh to rise.
Can you expand on this please, and perhaps provide a link.
Does this mean that all fat soluble vitamins cause TSH to rise?
I was severely Vit D deficient with a level of 15nmol/L so I took loading doses and still need 5,000iu D3 daily as a maintenance dose. My TSH has never risen due to taking Vit D.
I can base that on myself and the leading endo in the us. It’s like estrogen. It is fat soluble and can affect tsh. I have extensive history with hypo parathyroid ism and how vitamins affect tsh
But N=1 is hardly a fact!
I'd be curious for a link too please! 
vitamin d is fat soluble. In my case it interested with the absorption of synthroid. Just like you can’t take calcium within four hours of synthroid
Oh right, you're saying that you took vit D and T4 too close together and the vit D inhibited the absorption of the T4?
That is very different to 'Vit D causes TSH to rise'.
hsph.harvard.edu/nutritions...
This appears just to be a fact sheet about vit d? Nothing to do with vit D causing TSH to rise.
vitamin d caused my tsh specifically to rise.
Sorry - I'm getting a bit muddled here because you're not being clear.
You've said both that Vit D caused your TSH to rise but also that you took vit D too close to your T4 and that inhibited the absorption of the T4.
I know they sound the same but they're two quite different things.
If you have papers that show that taking vitamin D supplements cause TSH to rise then we probably need to rething what we're advising people on here.
Is it just vit D supplements? or is TSH increased by vit D from the sun? or food?
I am not advising anyone. I am stating what happened to me when I take vitamin d at all. I never claimed that I took vitamin d to close to thyroid meds. The calcium was an example of how tsh can be affected
Respectfully, I beg to differ.
vitamin d did the same thing to me. It is fat soluble and will cause your tsh to rise. It takes a while to show up on blood work
You're implicitly advising OP not to take vit D.
Mccrae
So really your post should say that it is your experience is that it will cause TSH to rise, the way you've written it is that it will make it rise in everyone, it's important to make that distinction. Forum guidelines touch on this here:
healthunlocked.com/thyroidu...
15. Members posting on Thyroid UK must only post information which is true and correct to their knowledge. If relevant, please provide references to health or medical information.
well you probably need to improve B12 and folate too
Many, many members find they need to take vitamin D, vitamin B complex and magnesium continuously
But always test vitamin levels before starting and then annually
What are your most recent thyroid and vitamin results
all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
(Doesn’t include thyroid antibodies)
monitormyhealth.org.uk/full...
10% off code here
thyroiduk.org/getting-a-dia...
Only do private testing early Monday or Tuesday morning.
Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery
Hi, I do take b12 and folate, well, stopped for bloods. Not sure of results yet as the Drs just text to say my vit d is low, will ask for the rest of the results today.
What form do you take B12 and folate in? What are they made of?
Exactly what brand B12 and folate supplements are you taking
When you start improving low vitamin D, you need more B vitamins as body starts to repair
Low vitamin D and low B vitamins interlinked
You obviously need to know actual test results and ranges
How much Levothyroxine are you currently taking
You are legally entitled to printed copies of your blood test results and ranges.
The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
Link re access
healthunlocked.com/thyroidu...
In reality many GP surgeries do not have blood test results online yet
Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.
Important to see exactly what has been tested and equally important what hasn’t been tested yet
Tinnitus 😱 sister and I both suffered in peri-menopause, estrogen helped a lot as well as getting Vit D levels up 🤗 maybe the Better You Spray, I currently use the sublingual black seed oil one, if I can use one that avoids the stomach I do
I think it is possible to take vitamin D as a cream or oil on the skin. Might be worth investigating then trying if it looks OK to you.
It happens when i have been in the sun aswell, so it's an issue with my vit d levels rising, regardless of how I do it 😔
Maybe its the brand if vitamin D your taking that’s causing issues.
The role of vitamin D in subjective tinnitus—A case-control study
Vitamin D result and recommended supplement level?
Vitamin d 
Vitamin D test......Replete?
Ferritin, folate, vitamin D and vitamin B12 results
