Hi Sam, after the result of my blood tests that the GP had requested, she called me back in to confirm a diagnosis of Hyperthyroidism (Graves was confirmed by a later blood test for anti bodies). She prescribed 40 mgs Carbimazole and referred me to an Endo at my local hospital. She advised me to keep taking the Carb until I saw the Endo she had referred me to and to make an appointment for another blood test 4 weeks later. My appointment came through to see an Endo about 6 weeks after I started taking the Carb. I went for the blood test after 4 weeks and the result showed I had then gone HypO so was advised to stop taking the med. until I had seen the Endo.
At my appointment with the Endo, he asked how I was feeling to which I replied "horrendous". He told me he was putting me on a treatment called Block & Replace and sent me on my way with a prescription and a letter for my GP. He explained NIL about my condition/the disease and I didn't ask any questions because neither my brain nor my body was functioning! BUT as I knew absolutely zilch about thyroid problems/Graves I simply thought I would take the medication he had prescribed and in a few weeks/month or two I would be as right as rain ! Three years later and I'm still on medication BUT having done hours of relentless research and become a member of a few forums at least now I know a lot more about my condition and why I felt/feel like I did/do.
Block & Replace treatment consists of taking Carbimazole and Levothyroxine and is usually for approx. 18 months. I was on that treatment for approx. 20/22 months - my health care during this time was neglected and I was left on it on too high a dose for too long and when the medications were stopped, hypeR symptoms returned with a vengeance within about 10 days. So I was put back on Carb and then the Levo a little later again !
I wasn't feeling well at all and felt that the thyroxine just didn't agree with me and was making me feel terrible so I asked if I could try Carbimazole Titration treatment. The Endo tried to tell me I would be better off having RAI as then I would become "normal" again ! This isn't the case - anyone who has RAI or surgery then becomes HypO and has to take Levothyroxine for life. I refused RAI and the Endo finally agreed to Carbimazole Titration.
I have only been on this treatment since end of April 2016 and after a "wobbly" start and a huge drop from the 40 mgs of Carb I had been taking for 3 years I am now on 5 mgs daily (dropped from 40 to 20 to 15 to 10 and now 5) had an episode of HypO in between BUT I am now feeling better than I have for 3 years (touching wood as I type).
If all goes well at my next blood test result, the 5 mgs will be reduced to 2.5 mgs and I can stay on that for life - which is why I refused RAI.
If you click on my name you can read my posts, questions and the answers and advice I have received and read my 3 year journey.
My advice is educate yourself on this disease as much as you can. Prepare yourself for Endo/GP appointments by writing down questions you want answers to. Ask for print outs of your blood results and post them on here for help. Keep a diary/your own health record so you can see how you feel on the meds and doses from week to week etc. Don't push yourself, be kind to yourself and remember you are not alone !
Hope this has helped in some way.
Let us know how you are doing.