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Blood Results

whymestill profile image
12 Replies

Underactive since 2009

Hi I have had to rejoin again from yesterday as it wouldn’t let me change my username

Blood results Friday (October)

Tsh = 7.24

Range 0.30-5.50 mu/L

Free T3 = 3.6

Range 0.0-7.0 pmol/L

Free T4 = 26.7

Range 11.5 - 22.7 pmol/L

On 175mcg levo (25mcg increase on results day)

Went and saw a different Doctor today to request a celiac screening on the advice of this site and he has given me a blood form.

I told him I was feeling pretty lousy and basically he said my hormones were all fine and acceptable.

I just looked at him in disbelief 😳😳 am I getting this wrong

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whymestill
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12 Replies
Sunsette1 profile image
Sunsette1

A celiac screening will only show anything if you are still eating gluten. Found this out the hard way. I cannot eat gluten or dairy or pork as it makes me ill but I cut it out before I was officially tested so my results came back fine 😕 so don’t alter your diet if you can help it.

I hope you feel better soon. “Normal” levels are just a guideline, we are not all the same. Keep fighting! I sure will be fighting my corner!

whymestill profile image
whymestill in reply toSunsette1

I had the test today and have been eating gluten, carry on fighting your 😘

Sunsette1 profile image
Sunsette1 in reply towhymestill

Fingers crossed something comes up on that, only because at least you will have some answers.

SlowDragon profile image
SlowDragonAdministrator

Can you add the ranges on these results please

On Levothyroxine TSH should be under 2, many need it under one. FT4 towards top of range and FT3 at least half way in range

Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine

(Many of us need TSH nearer 0.2 than 2.0 to feel well)

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

You are very under medicated or have malabsorption issues due to coeliac or gluten intolerance

Essential to test vitamin D, folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

After Coeliac test, if you test negative then Changing immediately to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

If you test positive, you have to remain on high gluten diet until endoscopy (max wait 6 weeks)

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

whymestill profile image
whymestill in reply toSlowDragon

I have put the ranges SlowDragon, or have I missed something?

SlowDragon profile image
SlowDragonAdministrator in reply towhymestill

Sorry....my mistake

Have you been on same constant dose for at least 6-8 weeks

TSH far too high

FT4 high - when did you take last dose of Levothyroxine before test?

FT3 very low

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

whymestill profile image
whymestill in reply toSlowDragon

Been on same dose for years

On day of test i did not fast, I took my thyroxine at 13.00 and had my bloods done at 16.00.

I will take note of your advice for next blood test thanks

Gcart profile image
Gcart

No , your results are not ok . You need to see another doctor . TSH too high as is T4. . T3 too low .

Hope someone will be along to add more to this .

silverfox7 profile image
silverfox7

With a high TSH you are undermedicated but with a high FT4 and a lower FT3 then you most probably not converting well either. So important to test VIT d, B12, folate and ferritin but they need to be optimal, not just in range. They help your thyroid work better, help with conversion issue and can rid you of deficiencies that low levels may have been contributing to. Remember though it can take time to correct vitamin deficiencies if levels are very low.

whymestill profile image
whymestill in reply tosilverfox7

Do I have to request the

Vit D

B12

Folate

Ferritin

Tests off my Doctor?

I’m not sure he would allow as he thinks my blood results are normal in his opinion and there are probably many reasons as to why I’m feeling so poorly and not my thyroid function

SlowDragon profile image
SlowDragonAdministrator in reply towhymestill

Very large numbers of people on here, given up the fight with GP and get tested privately

Many of us, it was the only way to finally make progress. Low vitamins and/or high antibodies are often problem, causing poor conversion

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

Medichecks currently have an offer on until end of October, see Thyroid UK home page

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

As you have only just had 25mcg dose increase, suggest perhaps just testing vitamin D now. Then you can start improving that first

vitamindtest.org.uk £29

Then after 6-8 weeks on new increased dose of Levothyroxine, retest thyroid and folate, ferritin and B12 - That's Medichecks Thyroid plus vitamin £79 or Blue Horizon Thyroid plus 10 - both slightly cheaper as vitamin D won't need retesting for 3-4 months

silverfox7 profile image
silverfox7 in reply towhymestill

My doctor astounded me recently and asked if I wanted anything testing! So being completely taken by surprise I asked for Vit D, B12, folate and ferritin and also suggested we did that annually. ( it's not that long ago she said not to take any supplements!-I did ignore that!). So you can always ask but if not I see others have said where you can get testing done.

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