A celiac screening will only show anything if you are still eating gluten. Found this out the hard way. I cannot eat gluten or dairy or pork as it makes me ill but I cut it out before I was officially tested so my results came back fine 😕 so don’t alter your diet if you can help it.
I hope you feel better soon. “Normal” levels are just a guideline, we are not all the same. Keep fighting! I sure will be fighting my corner!
You are very under medicated or have malabsorption issues due to coeliac or gluten intolerance
Essential to test vitamin D, folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
After Coeliac test, if you test negative then Changing immediately to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
If you test positive, you have to remain on high gluten diet until endoscopy (max wait 6 weeks)
Have you been on same constant dose for at least 6-8 weeks
TSH far too high
FT4 high - when did you take last dose of Levothyroxine before test?
FT3 very low
All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
With a high TSH you are undermedicated but with a high FT4 and a lower FT3 then you most probably not converting well either. So important to test VIT d, B12, folate and ferritin but they need to be optimal, not just in range. They help your thyroid work better, help with conversion issue and can rid you of deficiencies that low levels may have been contributing to. Remember though it can take time to correct vitamin deficiencies if levels are very low.
I’m not sure he would allow as he thinks my blood results are normal in his opinion and there are probably many reasons as to why I’m feeling so poorly and not my thyroid function
Very large numbers of people on here, given up the fight with GP and get tested privately
Many of us, it was the only way to finally make progress. Low vitamins and/or high antibodies are often problem, causing poor conversion
For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
Medichecks currently have an offer on until end of October, see Thyroid UK home page
All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .
Then after 6-8 weeks on new increased dose of Levothyroxine, retest thyroid and folate, ferritin and B12 - That's Medichecks Thyroid plus vitamin £79 or Blue Horizon Thyroid plus 10 - both slightly cheaper as vitamin D won't need retesting for 3-4 months
My doctor astounded me recently and asked if I wanted anything testing! So being completely taken by surprise I asked for Vit D, B12, folate and ferritin and also suggested we did that annually. ( it's not that long ago she said not to take any supplements!-I did ignore that!). So you can always ask but if not I see others have said where you can get testing done.
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