Itching : Hi everyone I've now been in remission... - Thyroid UK

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Itching

Today16 profile image
16 Replies

Hi everyone

I've now been in remission since summer of last year. But recently I've started getting itching on my body.

Has anyone experienced this before?

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Today16 profile image
Today16
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16 Replies
Jazzw profile image
Jazzw

I see this is your first post and I’m not 100% sure you’ve posted in the right forum? :)

This one is for thyroid issues.

Today16 profile image
Today16 in reply toJazzw

Correct group

I've been off the thyroid meds for a year now

But now I'm experiencing itching

Has anyone been off the meds due to the thyroid not needing the meds and had some strange things happening

jgelliss profile image
jgelliss in reply toToday16

I had Awful Itching before I was diagnosed with thyroid issues. There is definitely a connection. I was diagnosed with papilary cancer. After the TT I was dosed with T4 and the itching stopped.If I'm reading correctly you were on thyroid meds . Can I ask you why you stopped taking them?

Today16 profile image
Today16 in reply tojgelliss

Thanks for getting back to meSorry to hear

I stopped taking them because my thyroid issues went into remission

I went for a period of not taking them and the numbers were look good so I was told let's test every x month then we test yearly

jgelliss profile image
jgelliss in reply toToday16

If anything that I learned with my Thyroid Journey. Is that even if your in Range that's Not Be All.

Today16 profile image
Today16 in reply tojgelliss

Oh

I thought once I was at this stage it was all over. But clearly not

Today16 profile image
Today16 in reply tojgelliss

Did you ever have sensations at the back of your neck

jgelliss profile image
jgelliss in reply toToday16

I had itching on my Hands Thighs and Stomach. It was Unbearable.

SlowDragon profile image
SlowDragonAdministrator

please give some more context

What were you originally diagnosed as ….hypo or hyper

What were you taking, what dose and how long for

When were thyroid and vitamin levels last tested

Today16 profile image
Today16

I was hypo for 1 and a bit years then became hyper

Taking nothing now apart from mutli vits

Levels were normal and no further action was needed

greygoose profile image
greygoose

Welcome to the forum.

Which 'meds' were you taking?

What was your diagnosis?

If you are hypo you cannot just come off 'meds', They are for life.

Today16 profile image
Today16

So I was hypo and was taking levo then became hyperThen started taking hyper drugs carbim

Then from the results it looked like It was going into remission

So went for a period with no meds to see

And the results were showing that thyroid was OK without the meds.

Tina_Maria profile image
Tina_Maria

Thyroid conditions, including both hypothyroidism and hyperthyroidism, can cause skin changes, including itchiness, dryness, and discoloration. Autoimmune disorders such as Graves' disease and Hashimoto's disease, in which the immune system targets the thyroid, often coincide with itchy skin.

If I was you, I would run a full thyroid test looking at TSH, T4 and T3 as well as thyroid peroxidase (TPO) and thyroglobulin (Tg) antibodies. This way you can get a clearer picture of where your thyroid hormones currently are and if your levels are low, you may have to start supplementing again.

Today16 profile image
Today16 in reply toTina_Maria

Thanks for the aboveWill probs get rested soon if that is the case.

SlowDragon profile image
SlowDragonAdministrator in reply toToday16

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

multivitamins never recommended on here

Most contain iodine best avoided with suspected thyroid issues

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endocrinenews.endocrine.org...

In days before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70

ALWAYS test early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Today16 profile image
Today16 in reply toSlowDragon

Thanks for the detailed responseWill look into the above

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