I've already posted about this on thyroid groups til I'm blue in the face, but you guys here seem very friendly and knowledgeable so here goes, I hope I find someone who has suggestions/ideas!
I take 75mcg Levothyroxine daily. My T4 is on the high end (22ish). My T3 has been tested too and is on the upper end of the normal range. My TSH is always high, around 8 - 10. My vitamins and minerals are near the top end of the normal range. FBC otherwise normal.
I've had a number of tests that have very similar results (the last surgery I was at kept re-testing, presumably hoping one would come back normal, definition of stupid I know). I have been advised to raise the T4 to lower the TSH. However, I've been very unwell with this for a loooong time, so naturally, I did not. I am very thin, shaky, basically I have all the symptoms of an overactive thyroid. But if I lower the dose to 50mcg, my TSH goes even higher.
It is not a pituitary tumor as I had an MRI and apparently TSH would be seriously high for that to be the case, so i can safely rule that out.
I have always had problems with my thyroid since treatment. I became very ill at 21 with what looks like overactive looking back, then was eventually diagnosed two-three years later when my bloods finally showed an underactive thyroid/evelvated peroxidase. Presumably this pattern is the norm for the beginning of Hashimoto's.
However, soon after starting 25mcg of Levo, my TSH started raising. So within a few months I was on 100mcg. This was lowered as my T4 was about 28, and so for the last year I've been on 75mcg with the above bloods. I've had a period of about 6 months in 6 years where the bloods were 'in range'.
I've tried all sorts to get it to 'level out' such as coming off all other prescription drugs (inc contraceptive POP) and adopting a gluten free diet. However, this did not lower the antibodies nor did it sort out the bloods.
I want to lower my dose because I definitely felt better on the lower end of the range. 22 is far too high for me (I look ill, people have been talking about me to lecturers reporting that I'm "not eating properly/not sleeping/not looking after myself/possibly doing drugs", so it can't just be me imagining it/moaning and complaining like doctors think!).
So now I'm at a loss. Suggestions very welcome. Thank you in advance.