Consistently high tsh results gp update

[trucall]

Well I spoke to my new GP and requested a full thyriod panel and I was pleasantly surprised when the bloods included most of what I hoped for. Antibodies and folate weren't tested however, my results were as follows:

TSH= 0.26mU/L (0.35-5.5) [below range]

FT4= 16.6pmol/L (10-19.8) [still<75% range]

FT3= 4.0pmol/L (3.5-6.5) [<25% range]

Vit D= 30nmol/L (30-50) [30nmol/L in April] whilst taking prescribed vit D tabs

Ferritin= 38.4ug/L (10-291)

Iron= 12.2umol/L (10-30.4) whilst taking prescribed iron tabs

Transferrin level= 2.5g/L (2.5-3.8)

%Iron saturation= 21% (16-50)

Vit B12= 406ng/L (211-911) whilst taking over the counter b12 supplements

Eosinophil count still above range almost double top of range - this happened before I was diagnosed and treated for RA I'm guessing autoimmune marker but anybodies not testex. Anyone know if there is relevance to Hypothyroidism? I do have hayfever and take antihistamines all year round and I don't think have an infection, although hard to tell when I feel so wiped out all the time.

My concern is that on the printout it says review levo -TSH below range so when I see my GP next week he might want to reduce my levo. I still don't feel any relief of symptoms and want to push for synthT3 combo or NDT but don't know which would be best- any recomendations?

My migraines, mood swings and depression are getting worse and I haven't even started reducing my amiltriptaline and sertraline - the more I read these symptoms could be due to my hypoth'sm so I could potentially stop these altogether which would be the ideal scenario before pregnancy because they both carry risks.

Can anybody give me advice to best prepare me for this appointment - i'm dreading it - I'm afraid I will become emotional and be dismissed as a crazy hypochondriac lady?

(CRP also spiked above range so eosinophil count could be RA)

[Hidden]

NHS Gps only care about tsh, so there is nothing you can do except what many here have been forced to do - self medicate.

Please don't waste your energy on trying to educate your GP.

I have a suppressed tsh and that is the only way i feel half normal.

You will not get ndt from your gp, you are better off getting it yourself

Your GP will tell you all your symptoms are due to overmedication, i can virtually guarantee that.

Your B12 is still low end of range exp considering you are supplementing.You may want to ask to be tested for Pernicious Anaemia

[Angel_of_the_North]

Vit d much too low too.

[greygoose]

Your FT3 is too low - you aren't converting, and that's why you still have symptoms.

The reasons you aren't converting are possibly because of your still too low B12, Ferritin and vit D.

I agree, Don't waste your time trying to educate your GP, get your own NDT, or whatever - some added T3 might do the trick. But you won't know which is best for you until you try.

[trucall]

thanks. everyone, my concern going it alone would be any implications with trying to conceive. if anyone has gone through similar could they please get in touch. I would be interested to hear from anyone who has gone through a successful pregnancy whilst self medicating with NDT? - spread the word...

[trucall]

Hi all,

Did see gp today. Booked a long appointment to discuss options for T3 replacement (explained prior to appointment in a letter) instead went back through medical history. valuable and encouraging to see this new gp is taking the time to understand me, my symptoms etc but after 30 min I just have a promise for a referral to endo at addenbrookes which could mean a potential delay of a further 15 weeks before NHS can even try to help - I am very disillusioned.

He did take some time to try and understand why my iron was low so I think he was thinking along the same lines although he never said, so suppose that was good - but still didn't change any of my doses.

I will make a nuisence of myself until I am seen but is it possible to get a feel of what others are doing/have done in my case? see post "POLL - Start T3 supplementation, start NDT self medication or wait till referal?"

Thanks for your comment about pregnancy reallyfedup123 – I have considered it carefully, it was not easy to decide to come off RA meds knowing that I could relapse without them until I eventually get pregnant. Did you choose not to have children if you don’t mind me asking? Any advice ?