Hi, I was diagnosed with ME 15years ago. I've had the usual symptoms- digestive issues, diagnosed with IBS, candida overgrowth, sleep and brain fog probs, poor temp control, blood sugar issues, anxiety, and weight loss ( weight 7stones).
I've had tonsils removed after getting tonsillitis each month for years, this was then replaced with monthly sinus infections. After way too many antibiotics was diagnosed with nasal polyps. However, it was only removal of dairy that eased this sit. Still get the shivers and feeling of going down with something each month, must be hormonal somehow I guess!
I've had better spells over the years, but just as I achieve better health another relapse seems to set in! 4 years ago I developed an inner ear condition, was experiencing vertigo, etc and this seemed to invite another relapse. It was as if my off switch which enables you to cope, disappeared! I can remember my blood pressure going up to over 200 at the docs, just because Ifelt a bit nervous! Very unlike me. Was told it was linked to ears. System seemed to over- respond with nasty panic symptoms in the smallest of situations or noises!
I've tried to explain to docs the feeling of going too fast inside and they have thought it could be thyroid related but tests have been ok?
Last Autumn after months of cystitis and feeling generally rotten I requested some blood tests and these were as follow...
Thyroid TSH 1.88mu/l ( this had raised from 0.95)
Serum free T 4 15pmol/L (8-21)
Serum ferritin 12ug/L (23-300)
serum folate 6.1ug/L (2.7-15.0)
B12 456 (130-1100) this has risen from 226
Plasma glucose 6.3 nmol/L (3.5-7.8) was a fasting test, I'm on basically a sugar free diet...
Serum cholesterol 4.3 nmol/L
The b12 forum has been a great help and recommended me to look here. They advised a vitamin d test...
Nhs pinprick 28.8 nmol/L just under the deficient range of 30-50.
I would greatly appreciate any help or advice in whether I should be requesting any other tests please. I have to now ask doc about Vitamin d supplementation and am a little confused as to whether I need a calcium test. I'm supplementing Ferrous Fumarate at the mo and am bumping up iron rich foods. Also, does anyone know if I can request an actual iron test whilst taking these? I presumed it was tested alongside ferritin, but seems not!
Apologies for such a long post, many many thanks Jo