I'm 33 and was diagnosed hypothyroid approx. 12 years ago I think. During this time, GPs and NHS consultants have made regular adjustments to my throxine dosage (currently 175mg as of June this year). I've experienced good and bad patches during this time, however have never had what I would call 'normal' energy levels or felt entirely well whilst on this medication. Whenever the thyroxine has been increased I have never felt any noticeable difference to my symptoms, which leads me to suspect it is not working for me as it should.
Over the past year/18 months, I have noticed a real deterioration in my health and I suffer from constant exhaustion, brain fog, weight gain, dizziness, aching and memory issues to name but a few symptoms. Over the past 6 weeks or so the aches have become more severe (especially in the mornings) and I've experienced morning sweating. Peeling myself out of bed has become a real effort; I've had to adjust my working hours and often struggle to arrive by 10am, so am concerned about how this will affect my job. Relatively light exercise, such as my daily 10 minute cycle ride to work which I have been doing for 2 years +, is suddenly a lot more difficult and quickly leaves me out of breath. Spending a morning working on the garden recently necessitated a day off work to recover, which I am sure is not normal for a 33 year old.
I really feel that this condition is now really affecting my quality of life, and managed to get a referral to an NHS Endocronologist. However, despite carrying out various blood tests (last results below), a synacthen test and coeliac test, he has been unable to pinpoint any issues, other than low vit. D and iron, and believes that the thyroid results show the condition is being satisfactorily managed.
TSH = 0.32 (range 0.2 - 4.2)
T4 = 13.4 (normal range 12 - 22)
Free T3 = 4.3 (normal range 4 - 8.3).
B12 = 322 (range 197-866)
Folates = 8.3 (range 4.6-18.7)
Ferritin = 48 (range 13-150)
Vitamin D = 35.6 (less than 25 = deficient, 25-50 = insufficient, 50+ = sufficient)
Since my last appointment in June, I've been taking the following vitamin supplements along with my thyroxine:
Prescription 200mg Ferrous sulfate (3 times a day with 500mg Vitamin C)
1000mg B12 lozenges
1000iu Vitamin D drops
However, on visiting the endo for a follow up last Friday, he did not order any re-tests; he simply said that he had now exhausted all avenues, signed me off from his care and has instead referred me to a Chronic Fatigue service, the nearest being 70 miles away. I've received a follow up letter from my GP this week, warning me that 'chronic fatigue services have quite strict criteria before they accept referrals'. I'm left feeling confused, and unsure whether this is an accurate diagnosis or whether I'm just being fobbed off.
I've been unable to find an NHS GP who will consider prescribing NDT, and am now considering going privately in order to try this. Considering seeing Dr. Liam Chapman in Hendon. If anyone has seen him, I would be so grateful if you could PM me with your opinion. Posted the question a few days ago but didn't get much response. Obviously it's an expensive route to go down, so I want to get as much info as I can before I make an appointment.
Hoping you knowledgeable people can help me more than the NHS! ;-D