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CLL and transformation to Richter Syndrome after having the flu vaccine
Help all, I have been reading the posts over the past few years, I’m so relieved to have found this support group. My father was diagnosed at 69 with CLL 9 years ago. He is now 78. He has never had treatment so far as his heamatologist said his numbers were not high enough. We live in Australia. He
Help all, I have been reading the posts over the past few years, I’m so relieved to have found this support group. My father was diagnosed at 69 with CLL 9 years ago. He is now 78. He has never had treatment so far as his heamatologist said his numbers were not high enough. We live in Australia. He
GreatDad
in
CLL Support
3 years ago
Second AZ Covid injection
I recently had my second Astrazeneca vaccination. After the first one, there was no reaction at all, even after the yearly flu jab, I get arm swelling. The second injection was a whole different ball game. The evening of the second: Teeth chattering shivers, flu like aches, weakness that was so bad
I recently had my second Astrazeneca vaccination. After the first one, there was no reaction at all, even after the yearly flu jab, I get arm swelling. The second injection was a whole different ball game. The evening of the second: Teeth chattering shivers, flu like aches, weakness that was so bad
lupie46
in
LUPUS UK
3 years ago
meningitis vaccine
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
pth123
in
CLL Support
3 years ago
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Previously on here expressing that i didn’t want to take my meds x
Hi everyone just wanted to update you all as I have since read the comments on my post I have rejoined as I’d left . I’ve sought help through my Tb nurse I’m now receiving the help I need as I’ve been suffered with very low mood and neuropathy in my hands caused by the medication and the guilt of infected
Hi everyone just wanted to update you all as I have since read the comments on my post I have rejoined as I’d left . I’ve sought help through my Tb nurse I’m now receiving the help I need as I’ve been suffered with very low mood and neuropathy in my hands caused by the medication and the guilt of infected
87wise
in
TB Alert
3 years ago
Shingles vaccination
I had a phone call from my GP to have a Shingles vaccine next week. I didn't manage to ask whether it will be a live or non-live vaccine. Last year I heard an acquaintance of mine with RA said she had been refused by her GP for the shingle vaccine because of RA. Anyone has the shingle vaccination
I had a phone call from my GP to have a Shingles vaccine next week. I didn't manage to ask whether it will be a live or non-live vaccine. Last year I heard an acquaintance of mine with RA said she had been refused by her GP for the shingle vaccine because of RA. Anyone has the shingle vaccination
Cien
in
NRAS
3 years ago
So tired!
It could've been worse, so I didn't mind the mild headache and I knew I would be sleepy because I was after the 1st pfizer vaccine. Energy is starting to come back tho! Yeah! ☺️ Also emailed my neuro about when to get the shingles vaccine after getting the covid vac. Cause I still have to get that
It could've been worse, so I didn't mind the mild headache and I knew I would be sleepy because I was after the 1st pfizer vaccine. Energy is starting to come back tho! Yeah! ☺️ Also emailed my neuro about when to get the shingles vaccine after getting the covid vac. Cause I still have to get that
Jesmcd2
CommunityAmbassador
in
My MSAA Community
3 years ago
Covid vaccination?
Hi all This is a long shot but I've just been reading about the flu vaccine on here and wondering if my latest symptoms might be down to my first Covid vaccination ( AZ) in the middle of February. I started shoulder, neck stiffness, soreness last summer but ultrasound scan has shown tears in tendons
Hi all This is a long shot but I've just been reading about the flu vaccine on here and wondering if my latest symptoms might be down to my first Covid vaccination ( AZ) in the middle of February. I started shoulder, neck stiffness, soreness last summer but ultrasound scan has shown tears in tendons
Beevbops
in
PMRGCAuk
3 years ago
Thyroid or Vaccinations?
Good morning everyone. I have now worked my way upto 75mg of levothyroxine after a slow process. My current issue is I feel like the Tin Man who needs oiling. I am really stiff and in pain all over. My left ankle is quite swollen and my left foot bones hurt so much so I have been limping on occasion
Good morning everyone. I have now worked my way upto 75mg of levothyroxine after a slow process. My current issue is I feel like the Tin Man who needs oiling. I am really stiff and in pain all over. My left ankle is quite swollen and my left foot bones hurt so much so I have been limping on occasion
maplewood
in
Thyroid UK
3 years ago
Methetrexate with covid vaccine
I had a flu jab a few months ago and for the first time ever I was told to stop taking methetrexate for 3 weeks after.Had the covid jab about a month ago but wasn't told to stop taking methetrexate, anyone been told to stop taking methetrexate with the covid jab?Thanks in advance people👍👍👍👍👍
I had a flu jab a few months ago and for the first time ever I was told to stop taking methetrexate for 3 weeks after.Had the covid jab about a month ago but wasn't told to stop taking methetrexate, anyone been told to stop taking methetrexate with the covid jab?Thanks in advance people👍👍👍👍👍
Ruskytron
in
NRAS
3 years ago
Any side effects from flu jab?
I'm new here. Diagnosed with afib 5 months ago. Still freaking out about it. I recently had a flu jab and have had lots of headaches, palpitations and dizziness. Has anyone else had this happen? I'm on a Eliquis and blood pressure meds. I'm sensitive to beta blockers, so cardiologist doesn't want me
I'm new here. Diagnosed with afib 5 months ago. Still freaking out about it. I recently had a flu jab and have had lots of headaches, palpitations and dizziness. Has anyone else had this happen? I'm on a Eliquis and blood pressure meds. I'm sensitive to beta blockers, so cardiologist doesn't want me
Wombat3
in
AF Association
3 years ago
Snoo
I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I had shingles badly about three years ago and this year will qualify for the shingles vaccine. Has anybody had the vaccine while on Pred and were
I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I had shingles badly about three years ago and this year will qualify for the shingles vaccine. Has anybody had the vaccine while on Pred and were
Snoopy7
in
PMRGCAuk
3 years ago
PMR - Influenza Vaccine
Hi I’ve just read this article and wondered if anyone had developed PMR shortly after receiving the flu vaccine? Interesting article now that we are having COVID Vaccine. Even though the etiology of PMR remains unknown, a number of infectious agents have been suggested to cause PMR. These include
Hi I’ve just read this article and wondered if anyone had developed PMR shortly after receiving the flu vaccine? Interesting article now that we are having COVID Vaccine. Even though the etiology of PMR remains unknown, a number of infectious agents have been suggested to cause PMR. These include
Liby57
in
PMRGCAuk
3 years ago
Getting a COVID-19 Vaccine: What to Know If You’re Immunocompromised
Getting a COVID-19 Vaccine: What to Know If You’re Immunocompromised SOURCE: https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/covid-19-vaccine-immunocompromised/#1607643343848-3f2ded4f-b410 This has been updated as of March 1, 2021. COVID-19 Coronavirus Vaccine The rapid
Getting a COVID-19 Vaccine: What to Know If You’re Immunocompromised SOURCE: https://creakyjoints.org/living-with-arthritis/coronavirus/covid-19-vaccines/covid-19-vaccine-immunocompromised/#1607643343848-3f2ded4f-b410 This has been updated as of March 1, 2021. COVID-19 Coronavirus Vaccine The rapid
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Guillain-Barre Syndrome
Has anyone been diagnosed with Guillain-Barre Syndrome? Were you on immunotherapy at the time? Was there any link between that and the syndrome? Before diagnosis, did you have a flu vaccine prior to the condition? I have been on Keytruda and now have been taken off as I suffered a semi paralysis episode
Has anyone been diagnosed with Guillain-Barre Syndrome? Were you on immunotherapy at the time? Was there any link between that and the syndrome? Before diagnosis, did you have a flu vaccine prior to the condition? I have been on Keytruda and now have been taken off as I suffered a semi paralysis episode
Ay1e5bury
in
Lung Cancer Support
3 years ago
Day 4
So I'm on day 4 of major pain... Still suffering from my car accident a year and 5 months later. Been an 8 since Sunday. So hard to get through the day, working from home kinda helps. I can be a tad less productive without people knowing. Saw a doctor at the Spine Institute in my state and he's really
So I'm on day 4 of major pain... Still suffering from my car accident a year and 5 months later. Been an 8 since Sunday. So hard to get through the day, working from home kinda helps. I can be a tad less productive without people knowing. Saw a doctor at the Spine Institute in my state and he's really
AK0424
in
Anxiety and Depression Support
3 years ago
Negative IgG antibodies from 1st shot of Pfizer’s Covid Vaccine
My twin sister has CLL and we finally got the results today from Boston Heart Lab’s semi quantitative IgG assay against the spike protein (code 648) and sadly the result was .04 and the test’s description says anything over .08 is positive for seroconversion. However, after reading about the test’s
My twin sister has CLL and we finally got the results today from Boston Heart Lab’s semi quantitative IgG assay against the spike protein (code 648) and sadly the result was .04 and the test’s description says anything over .08 is positive for seroconversion. However, after reading about the test’s
Twin21
in
CLL Support
3 years ago
HRT versus Pred as a treatment for PMR? Any flare up experienced from the adjuvants in vaccines ?
Before I was diagnosed with PMR I wondered if my symptoms could be due to menopause. As soon as I started taking HRT the fluey feelings went although most of the stiffness remained. Later I was given prednisolone which of course worked like magic. However after 18 months of tapering, I came off it altogether
Before I was diagnosed with PMR I wondered if my symptoms could be due to menopause. As soon as I started taking HRT the fluey feelings went although most of the stiffness remained. Later I was given prednisolone which of course worked like magic. However after 18 months of tapering, I came off it altogether
Seekingasolution
in
PMRGCAuk
3 years ago
Long QT Syndrome - Covid vaccine question
Hi, I was wondering if anyone else has long QT and has been added to the priority list? I got a free flu jab but when I asked my GP they told me that I won't get a Covid jab until it comes to my age group. I'm 38. I'm slightly annoyed as I have friends who have already had theirs just because they are
Hi, I was wondering if anyone else has long QT and has been added to the priority list? I got a free flu jab but when I asked my GP they told me that I won't get a Covid jab until it comes to my age group. I'm 38. I'm slightly annoyed as I have friends who have already had theirs just because they are
hollyjam
in
British Heart Foundation
3 years ago
COVID jab
Why are they trying not to give Asthma sufferers COVID vaccination???? I have severe Asthma and rang My GP to get my jab and was told NO, and that I wasn’t entitled to it.... A week later I rang back up and said I MUST be entitled to it as I get sent for flu jab Yearly, to which they did a 360 degree
Why are they trying not to give Asthma sufferers COVID vaccination???? I have severe Asthma and rang My GP to get my jab and was told NO, and that I wasn’t entitled to it.... A week later I rang back up and said I MUST be entitled to it as I get sent for flu jab Yearly, to which they did a 360 degree
YamYamLad
in
Asthma Community Forum
3 years ago
If the benefits of AZ vaccine highly outweigh the risks, why is the position of GP's not to administer it with sedatives ASAP to my son?
My son has Autism and Rubinstein Taybi Syndrome, he is registered with his GP as Clinically vulnerable. As his main carer I was offered the Coronavirus Vaccine under the conditions of being a carer for a person that is clinically vulnerable. However, as he is so scared of needles and has a known history
My son has Autism and Rubinstein Taybi Syndrome, he is registered with his GP as Clinically vulnerable. As his main carer I was offered the Coronavirus Vaccine under the conditions of being a carer for a person that is clinically vulnerable. However, as he is so scared of needles and has a known history
Dunn62
in
Mencap
3 years ago
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