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Is it the Medication or am I Losing it?
Do you do daft things? This morning I picked up my toothbrush and instead of putting toothpaste on it picked up a tube of face wash cream and spread that on my toothbrush, as soon as the brush went in my mouth I knew what I'd done. Last week I took a carton of orange juice out of the fridge and poured
Do you do daft things? This morning I picked up my toothbrush and instead of putting toothpaste on it picked up a tube of face wash cream and spread that on my toothbrush, as soon as the brush went in my mouth I knew what I'd done. Last week I took a carton of orange juice out of the fridge and poured
jeanjeannie50
in
Atrial Fibrillation Support
10 months ago
methotrexate
Sunday will be my 40th week of Actemra and about 14 months of Prednisone....I was diagnosed both with PMR and GCA back around July 2022 and started on 60 mg prednisone....have been up and down but can't seem to stay below 20 mg prednisone without recurring headache and eye pain. My rheummy suggested
Sunday will be my 40th week of Actemra and about 14 months of Prednisone....I was diagnosed both with PMR and GCA back around July 2022 and started on 60 mg prednisone....have been up and down but can't seem to stay below 20 mg prednisone without recurring headache and eye pain. My rheummy suggested
Joseph14612
in
PMRGCAuk
10 months ago
bleed in eye
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
Eastwood1
in
Pain Concern
10 months ago
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Hydroxychloroquine not made a difference
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
DogsMakeLifeGood
in
LUPUS UK
10 months ago
Dry mouth and throat
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
veggiefan70
in
Fibromyalgia Action UK
8 months ago
Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
10 months ago
Hyperhomocysteinemia or lack of vitamin 12
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
BK47
in
LUPUS UK
10 months ago
Cataract removal
I had a cataract removed on Friday last and make the stupid mistake of putting the wrong post op drops in my eye. I had to ring the emergency services and between them and my daughter I managed to get to the emergency room. They sluiced my eye out after administering antiseptic and rang the consultant
I had a cataract removed on Friday last and make the stupid mistake of putting the wrong post op drops in my eye. I had to ring the emergency services and between them and my daughter I managed to get to the emergency room. They sluiced my eye out after administering antiseptic and rang the consultant
Stoneferry8
in
Macular Society
11 months ago
Dry achey eyes
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
11 months ago
Propafenone Back!!!
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
frazeej
in
AF Association
9 months ago
Dry eyes
Hi I have RA for years on lefluminide celebrex thyroxine b12 ,I have suffered terrible head and face sweating for a few years getting worse,just had cataracts done sight is fine but my dry eyes are causing me so much discomfort,I have hi lo tears and ikervis at night it's 5 weeks since cataracts done
Hi I have RA for years on lefluminide celebrex thyroxine b12 ,I have suffered terrible head and face sweating for a few years getting worse,just had cataracts done sight is fine but my dry eyes are causing me so much discomfort,I have hi lo tears and ikervis at night it's 5 weeks since cataracts done
Pansy78
in
NRAS
11 months ago
No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
9 months ago
Sore slightly red eye lids - Cosopt
Hello all, I currently have COVID and it’s not very nice! I have noticed over the last couple of days that my eye lids are a little, red, sore and a tiny bit puffy could just be the redness though. I am currently only on Cosopt twice a day and have been for a few months. This is the first time my
Hello all, I currently have COVID and it’s not very nice! I have noticed over the last couple of days that my eye lids are a little, red, sore and a tiny bit puffy could just be the redness though. I am currently only on Cosopt twice a day and have been for a few months. This is the first time my
KBIOW
in
Glaucoma UK
11 months ago
UPDATE: Eyes Irritated, Itching, Etc.
The saga contines. Still mostly in bed 9 weeks now. No date for vertebral plasties or Zolendronic acid infusion...yet, inspite of many calls. My eyes are extremely irritated but now I know why. Made appointment (referred myself) to the Ophthalmology Clinic at the VG here in Halifax. Had to convince Resident
The saga contines. Still mostly in bed 9 weeks now. No date for vertebral plasties or Zolendronic acid infusion...yet, inspite of many calls. My eyes are extremely irritated but now I know why. Made appointment (referred myself) to the Ophthalmology Clinic at the VG here in Halifax. Had to convince Resident
Missus835
in
PMRGCAuk
11 months ago
I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
Mark1499
in
My MSAA Community
11 months ago
sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
11 months ago
visual disturbances and eye problems
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Loobyloo1966
in
Functional Neurological Disorder - FND Hope
11 months ago
visual snow and fibromyalgia
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
Loobyloo1966
in
Fibromyalgia Action UK
11 months ago
Got a job interview. Plus my top 3 choice for therapists in my homecity. Overthinking the decisions
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Against_the_current
in
Anxiety and Depression Support
17 days ago
Ex is going to the Netherlands next week. I'm stuck in what help i should get. I have dissosiated and headache
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Against_the_current
in
Anxiety and Depression Support
22 days ago
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