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Improving survival rates
Hi all, I had Ivor Lewis in June due to adenocarcinoma at lower junction. I went to go in September 2017 after problems swallowing certain food. This progressively became worse to the point I could only manage clear soup that was passed through blender and sieved . After several visits to go and hospital
Hi all, I had Ivor Lewis in June due to adenocarcinoma at lower junction. I went to go in September 2017 after problems swallowing certain food. This progressively became worse to the point I could only manage clear soup that was passed through blender and sieved . After several visits to go and hospital
Bunny69
in
Oesophageal & Gastric Cancer
6 years ago
Spirometer Results
I am not sure how to read the results, but I am thinking it goes like this. Any concerns I should have with these numbers? Still have symptoms but they look good besides the airway resitent nuber at 66. Thanks for any feedback I have zero idea how to read these. FVC 5.75/5.70 99% FEV1 4.70/4.53 96%
I am not sure how to read the results, but I am thinking it goes like this. Any concerns I should have with these numbers? Still have symptoms but they look good besides the airway resitent nuber at 66. Thanks for any feedback I have zero idea how to read these. FVC 5.75/5.70 99% FEV1 4.70/4.53 96%
Hidden
in
Lung Conditions Community Forum
6 years ago
Not sure how to feel!
15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!! Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of
15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!! Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of
Lynnelovessunshine
in
Lung Conditions Community Forum
6 years ago
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Aimovig
I wanted to let people know about the success I've had after my first Aimovig injection. I self injected on September 19 (my first of two free samples). I've only taken three Amerge (for migraine) since. The first two Amerge were during the first four days after the shot, but they say it takes 6 days
I wanted to let people know about the success I've had after my first Aimovig injection. I self injected on September 19 (my first of two free samples). I've only taken three Amerge (for migraine) since. The first two Amerge were during the first four days after the shot, but they say it takes 6 days
headachequeen
in
National Migraine Centre
6 years ago
Anyone seen ENT to do with the thyroid? (swallowing prob, choking, tight throat, breathless, ear &jaw pain)😊👂👃👅
Hi all, I forgot to mention in my previous post yesterday about my endo referring me to ENT as I have the problems back of foods getting stuck in my throat again alongside other probs, I initally had the problems before my diagnosis of thyroid disease, hashi and according to endo graves, when I started
Hi all, I forgot to mention in my previous post yesterday about my endo referring me to ENT as I have the problems back of foods getting stuck in my throat again alongside other probs, I initally had the problems before my diagnosis of thyroid disease, hashi and according to endo graves, when I started
Rmichelle
in
Thyroid UK
6 years ago
Can x-rays from barium swallow test affect thyroid?
I have been suffering from acid reflux after suddenly getting a goiter (goitre) after taking iodine. (Big mistake taking iodine!) My subsequent blood panel showed low level hashimoto's and subclinical hypothyroid (with ultrasound indicating several nodules which have now shrunk along with the goiter
I have been suffering from acid reflux after suddenly getting a goiter (goitre) after taking iodine. (Big mistake taking iodine!) My subsequent blood panel showed low level hashimoto's and subclinical hypothyroid (with ultrasound indicating several nodules which have now shrunk along with the goiter
bekayee
in
Thyroid UK
6 years ago
Anyone tried Namenda?
This is Alzheimer’s med also called memantine in US. I am limited on med options. Being used here for migraines.
This is Alzheimer’s med also called memantine in US. I am limited on med options. Being used here for migraines.
Hidden
in
National Migraine Centre
6 years ago
Urinary Incontinence
Questions for my forum friends: Seems like this has come on fast. It started with a little dribbling on the way to the toilet, like he waited too long to go, then couldn't hold it. Then there were a few messy days, where he just missed the toilet. We got a riser seat so he could sit down, and that helps
Questions for my forum friends: Seems like this has come on fast. It started with a little dribbling on the way to the toilet, like he waited too long to go, then couldn't hold it. Then there were a few messy days, where he just missed the toilet. We got a riser seat so he could sit down, and that helps
Khartt
in
PSP Association
6 years ago
Something found in throat after barium swallow
I have just had a barium swallow. Results back in 2 days!!!!! Diagnosed with a hiatus hernia and they have found something in my throat!!!!! Could be cancer and being fast tract to have a camera investigation. Anyone had similar?
I have just had a barium swallow. Results back in 2 days!!!!! Diagnosed with a hiatus hernia and they have found something in my throat!!!!! Could be cancer and being fast tract to have a camera investigation. Anyone had similar?
Ela66
in
Lung Conditions Community Forum
6 years ago
Adrift in a sea of confusion
Hello, everybody, and thank you for all the information I've gotten from this forum. Just last week I saw my pulmonologist and told her that I was feeling poorly. I mean, really poorly. She had diagnosed me with emphysema/asthma. She did a breathing test and said I was the same I was in February -- FEV1
Hello, everybody, and thank you for all the information I've gotten from this forum. Just last week I saw my pulmonologist and told her that I was feeling poorly. I mean, really poorly. She had diagnosed me with emphysema/asthma. She did a breathing test and said I was the same I was in February -- FEV1
challny
in
Lung Conditions Community Forum
6 years ago
Suspected Pv gp referral to haematology
hello all I'm a newbie just wanted to no how long you guys had to wait before you had your first appt with a haemoolgist ... what's a typical waiting time ? & what to expect at my 1st appt ? how long will I be there for ? what blood tests will they do? will I have a bone biopsy ? what questions wil
hello all I'm a newbie just wanted to no how long you guys had to wait before you had your first appt with a haemoolgist ... what's a typical waiting time ? & what to expect at my 1st appt ? how long will I be there for ? what blood tests will they do? will I have a bone biopsy ? what questions wil
nightssky
in
MPN Voice
6 years ago
Chronic Pain Course Week 2
Another enjoyable useful course this week. It has come from Stanford University so is used in America and Canada and well as the UK. I think I’m finding it useful too cause I was only diagnosed 4 months ago so this is the first help I’ve had (apart from on here and own research). This week we learnt
Another enjoyable useful course this week. It has come from Stanford University so is used in America and Canada and well as the UK. I think I’m finding it useful too cause I was only diagnosed 4 months ago so this is the first help I’ve had (apart from on here and own research). This week we learnt
Pilipala18
in
Fibromyalgia Action UK
6 years ago
Help with MMA and Cysteine test results
I've posted a couple of times and I'm trying to make sense of what's going on. Total B12 was in the 'normal range' when I was tested earlier in the year but I was fortunate in that the neurologist ordered an MMA test back at the beginning of May, again in June and then July. The July test result has
I've posted a couple of times and I'm trying to make sense of what's going on. Total B12 was in the 'normal range' when I was tested earlier in the year but I was fortunate in that the neurologist ordered an MMA test back at the beginning of May, again in June and then July. The July test result has
Pinn14
in
Pernicious Anaemia Society
6 years ago
LONG TERM EAR ACHE
Hi everybody. Is it possible to have almost long term ear ache (6 weeks) while coming down on Pred. Esr low (5) been on Pred for nearly 5 years. Got down to 1 mg. went and had dental work done 2 months, Dentist suggests splint for upper teeth while sleeping (approx. £400 ) as he thinks it is coming
Hi everybody. Is it possible to have almost long term ear ache (6 weeks) while coming down on Pred. Esr low (5) been on Pred for nearly 5 years. Got down to 1 mg. went and had dental work done 2 months, Dentist suggests splint for upper teeth while sleeping (approx. £400 ) as he thinks it is coming
Reethebeat
in
PMRGCAuk
6 years ago
Confused
Hello, this may be unanswerable but just looking for any advice. I had a lobectomy last year and have since had a large cyst and enlargement on the other side. Been put on levothyroxine and referred to hospital had a barium swallow and ultrasound and doctor was weighing up between watch and wait and
Hello, this may be unanswerable but just looking for any advice. I had a lobectomy last year and have since had a large cyst and enlargement on the other side. Been put on levothyroxine and referred to hospital had a barium swallow and ultrasound and doctor was weighing up between watch and wait and
Confused1989
in
Thyroid UK
6 years ago
How do you ladies cope with the emotional symptoms/side effects
About every 3 months I get very severe emotional symptoms relating to my cycle.. used to get this 2 weeks out of every month. Along with all the pain/discomfort I feel regularly (and having 3 kids) I get to the point I feel like I’m having a break down. I take things very personally and end up having
About every 3 months I get very severe emotional symptoms relating to my cycle.. used to get this 2 weeks out of every month. Along with all the pain/discomfort I feel regularly (and having 3 kids) I get to the point I feel like I’m having a break down. I take things very personally and end up having
vmagpie
in
Endometriosis UK
6 years ago
Help ....benefits
Can someone please advise me if can claim.benefits ...I have took redundancy from.work due to health ...now diagnosed as severe brittle eosinophii asthma ...after being on ecmo... Further episodes on it ventilated now on reslizumab but that not working....my savings are now down to.a minimum and need
Can someone please advise me if can claim.benefits ...I have took redundancy from.work due to health ...now diagnosed as severe brittle eosinophii asthma ...after being on ecmo... Further episodes on it ventilated now on reslizumab but that not working....my savings are now down to.a minimum and need
Davenpos
in
Asthma Community Forum
6 years ago
Reversible Cerebral Vasoconstriction syndrome?
Hi, I am new here and sending this post on behalf of my neice who is currently in Hospital with severe headaches. She is 37 years old. They think it might be Reversible cerebral vasoconstriction syndrome which is quite rare. Does anyone on this site have or know of the condition or should I be on a
Hi, I am new here and sending this post on behalf of my neice who is currently in Hospital with severe headaches. She is 37 years old. They think it might be Reversible cerebral vasoconstriction syndrome which is quite rare. Does anyone on this site have or know of the condition or should I be on a
GlenAlva
in
Vasculitis UK
6 years ago
Worried
Hello everyone 7 months ago I did a bilateral oophorectomy and now I passing streaks of blood and having back pain, should I be worried?
Hello everyone 7 months ago I did a bilateral oophorectomy and now I passing streaks of blood and having back pain, should I be worried?
Ramonasumi
in
My Ovacome
6 years ago
Explanation of why levo & NDT don't work?
I'm looking for an article and/or video on this subject to assist a person with this problem. Some people (I am one of them) who have gut disorders, deep nutritional deficiencies, and other conditions, cannot respond well to levo or NDT initially; these patients need work on other problems first. My
I'm looking for an article and/or video on this subject to assist a person with this problem. Some people (I am one of them) who have gut disorders, deep nutritional deficiencies, and other conditions, cannot respond well to levo or NDT initially; these patients need work on other problems first. My
Eddie83
in
Thyroid UK
6 years ago
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