Aimovig: I wanted to let people know... - National Migraine...

National Migraine Centre

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Aimovig

headachequeen profile image
13 Replies

I wanted to let people know about the success I've had after my first Aimovig injection. I self injected on September 19 (my first of two free samples). I've only taken three Amerge (for migraine) since. The first two Amerge were during the first four days after the shot, but they say it takes 6 days for the full benefit to kick in. The last Amerge I took was October 1, and it was more of a headachey feeling that was causing me to take too much Excedrin and ibuprofen. So I took a pill. I'm over the moon ecstatic. Plus, I don't constantly have that headachey and neck achey feeling I've lived with for 30 years. I hope it works for others too. I thought I should describe my headaches in case anyone sounds similar. I normally average 18 Amerge per month plus countless aspirin-free Excedrin. I have enough scoliosis to cause constant muscle strain in my upper back and trapezius muscles. I'm constantly stretching the sides of my neck. So there is constant muscle and nerve simulation in that area. I think the nerve thing is a huge part of it. The best ways for me to get a migraine in less than a minute is to wear a hat, or necklace, or scarf, or racer-back anything. The nerves are overstimulated and can't take any more. The Excedrin takes care of most daily tension type headaches. But when it fails I know to take Amerge. I also get a menstrual migraine either before or after my period. Amerge doesn't help with that one. I just deal with it for two days. But I didn't have that migraine this month either. I'll use my second injection October 19. For those who don't know, Aimovig is new. It's the first med that sort of insulates the stuff that causes the blood vessels to dilate. So the usual triggers don't trigger. Twice I've had a couple of cocktails.... No migraine. I actually had a glass of red wine with dinner... No migraine. I can sit in less than a ram-rod straight position without getting a headache. I can even rest my head against the side of the chairback and not get a migraine. This is all huge for me. I haven't tried a hat or scarf yet lol. I'm enjoying feeling normal too much to really test it. Sorry this is so long. I'll update after month two. One more thing...a few times I felt like I was trying to get a migraine but rubbing my ibuprofen gel on sides of neck or taking Advil or Excedrin made it go away. Normally when the sides of the neck inflame it's all over.

UPDATE: today is Nov 30. I've had three injections starting Sept 19. I've only taken six Amerge (triptan) during that time. Ibuprofen is generally enough for me now if migraine starts to occur. I could not be happier. I did start to get a menstrual migraine in October (they come on hard and fast). Amerge usually doesn't phase those, but that time one Amerge and some ice and ibuprofen took care of it. :)

Update 12/23/18. Realized today that I haven't taken any Amerge for SIX WEEKS.

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headachequeen
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13 Replies

Hello headache queen!

Thanks for posting the good news. So glad that you are not experiencing all those migraines. Waiting for my neuro to let me know when available in Canada. I have chronic migraines with aura. I also have scoliosis - never made the connections. Thanks for that. Will check that out with neuro ... hope!

Kathybishop profile image
Kathybishop

So pleased for you. Maybe just maybe I can get relief too although I don’t suffer as much as you. Mine are menopause / hormones related mainly X

designer111 profile image
designer111

Not too long at all! So great to hear your news thanks

Winnie77 profile image
Winnie77

I am so excited for you. I also have migraines/neck pain, hormonal issues much as you do. I am waiting for my first Aimovig to be delivered to the house. My neurologist is very excited by the results his patients are getting. Yay!!

headachequeen profile image
headachequeen in reply toWinnie77

I hope you get the results I have! Fingers crossed!!

Winnie77 profile image
Winnie77

🤞

Leylabell53 profile image
Leylabell53

Does anyone know how much aimovig costs in the UK?

teresaconboy profile image
teresaconboy in reply toLeylabell53

Hi it costs almost £400 per injection.

tiredBFmum profile image
tiredBFmum in reply toteresaconboy

teresaconboy Leylabell53 Can you get it in the uk? Where from? My sister might be taking it in australia tomorrow but I was wondering if anyone knows side effects. its very new

headachequeen profile image
headachequeen in reply totiredBFmum

Side effects may include irritation around injection site (I had none) and constipation (I'm fine if I drink a lot of water).

Sunsapphire profile image
Sunsapphire

Hi ya I’m at my wits end I know what you mean it all sounds familiar to me just hope my gp will prescribe it fo me so happy for you

headachequeen profile image
headachequeen in reply toSunsapphire

Go to Aimovig.com and see if you can still get two free trial injections. Take the info to your doc. It may save you some time. Each injection is $500 (monthly), so the free trial is great. They also have a program that will mostly pay for five injections per year, but you can't apply the costs toward your insurance deductible if you use that program. Best of luck to you.

Sunsapphire profile image
Sunsapphire

Thank you so much

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