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Do I have Sjogrens ??
So, I saw my Rheumatologist today. She doesn't think I have Sjogrens. Positive ANA, but blood work for Sjogrens was negative. Lip Biopsy suggests Sjogrens. Parathesia ranges from tolerable to miserable. I have virtually no pain.She prescribed 300 mg. Plaquenil daily 10 days ago. She tells me my symptoms
So, I saw my Rheumatologist today. She doesn't think I have Sjogrens. Positive ANA, but blood work for Sjogrens was negative. Lip Biopsy suggests Sjogrens. Parathesia ranges from tolerable to miserable. I have virtually no pain.She prescribed 300 mg. Plaquenil daily 10 days ago. She tells me my symptoms
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
6 years ago
New Member
Hi Everyone I have been told by my oral specialist that I have Sjogrens. She wants to do a lip biopsy to confirm. I also have oral lichen planus and GAVE. Is there any need to find out if I have Sjogrens. Can't i just continue to treat symptoms. What is the prognosis for Sjogrens will it worsen or just
Hi Everyone I have been told by my oral specialist that I have Sjogrens. She wants to do a lip biopsy to confirm. I also have oral lichen planus and GAVE. Is there any need to find out if I have Sjogrens. Can't i just continue to treat symptoms. What is the prognosis for Sjogrens will it worsen or just
SuzanneMaree123
in
The Australian Sjögren's Syndrome Association
6 years ago
RLS Mistake
I really messed up, maybe this will help someone else. Had legs mainly under control with clonapin, lyrica & trazadone. I felt like I was augmenting on clonapin. Had some leftover Requip which I thought would help since it's been months since I augmented on it. Well, now my rls is coming on 2 hours
I really messed up, maybe this will help someone else. Had legs mainly under control with clonapin, lyrica & trazadone. I felt like I was augmenting on clonapin. Had some leftover Requip which I thought would help since it's been months since I augmented on it. Well, now my rls is coming on 2 hours
Ikeeptrying
in
Restless Legs Syndrome
6 years ago
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Breastfeeding and morning after pill pain!!
After having a disaster with a condom on the 1st July, which naturally is around ovulation time for me 🙈 I took the levonelle morning after pill on the Tuesday, we are now nearly 1 week after the morning after pill and man breastfeeding is hurting me sooooo bad my nipples are so sore like my LO has
After having a disaster with a condom on the 1st July, which naturally is around ovulation time for me 🙈 I took the levonelle morning after pill on the Tuesday, we are now nearly 1 week after the morning after pill and man breastfeeding is hurting me sooooo bad my nipples are so sore like my LO has
LauraMegan
in
Pregnancy and Parenting Support
6 years ago
Post sepsis
I had sepsis after a clinical procedure thwart I had in February 2018 I was only supposed to be in hospital overnight I eventually was discharged four months later after being in 2 induced coma’s and onlife support I lost nearly four stone ! I have been home 6 weeks now and my hair has started to come
I had sepsis after a clinical procedure thwart I had in February 2018 I was only supposed to be in hospital overnight I eventually was discharged four months later after being in 2 induced coma’s and onlife support I lost nearly four stone ! I have been home 6 weeks now and my hair has started to come
Rachelm1
in
ICUsteps
6 years ago
Pramipexole and anxiety
I’m quite sure that I have augmentation with my pramipexole. One thing I have noticed is increased anxiety. I’ve been on 0.25 x 3 in late afternoon for several years. I don’t even know what it feels like to be off the med. I use hydrocodone for backup. I think I could get by with just that after
I’m quite sure that I have augmentation with my pramipexole. One thing I have noticed is increased anxiety. I’ve been on 0.25 x 3 in late afternoon for several years. I don’t even know what it feels like to be off the med. I use hydrocodone for backup. I think I could get by with just that after
Yakester
in
Restless Legs Syndrome
6 years ago
Missed miscarriage confirmed, devastated beyond words😓😭
Hi Ladies. I just had my viability scan. Sadly I miscarried. There was no heartbeat and foetal pole stopped growing. Words cannot express our sadness right now, we are totally broken. This journey has been so painful for me, both physically and mentally and financially we are drained too. I have been
Hi Ladies. I just had my viability scan. Sadly I miscarried. There was no heartbeat and foetal pole stopped growing. Words cannot express our sadness right now, we are totally broken. This journey has been so painful for me, both physically and mentally and financially we are drained too. I have been
cryst4l
in
Fertility Network UK
6 years ago
Dyskinesia from pramipexole
Hello, First time poster here :) I've had great success with pramipexole for just over a year, but some months ago, I developd a tic that my doctor diagnosed as dyskinesia. She then switched me to ropinirole (Requip), which I have been taking for 3 nights. My question is this: How long can I expect
Hello, First time poster here :) I've had great success with pramipexole for just over a year, but some months ago, I developd a tic that my doctor diagnosed as dyskinesia. She then switched me to ropinirole (Requip), which I have been taking for 3 nights. My question is this: How long can I expect
Esben
in
Restless Legs Syndrome
6 years ago
Celebrities on the NHS Frontline - BBC1
I have just watched some of this programme, which includes Dr Michael Mosley and Ann Widdecombe. I'm seething - the NHS is so two faced and hypocritical. Quote from consultant - "it's cheaper to carry out expensive procedures (eg £50k heart operation on an 88 year old lady) than to not do it". Why
I have just watched some of this programme, which includes Dr Michael Mosley and Ann Widdecombe. I'm seething - the NHS is so two faced and hypocritical. Quote from consultant - "it's cheaper to carry out expensive procedures (eg £50k heart operation on an 88 year old lady) than to not do it". Why
marigold22
in
Thyroid UK
6 years ago
Travel Insurance
Does anyone have any recomendations on where to get travel insurance from ? I always used to get it through my bank but they won't insure me anymore because of my RA, I've also not long ago had knee replacement surgery so this may have gone against me too.
Does anyone have any recomendations on where to get travel insurance from ? I always used to get it through my bank but they won't insure me anymore because of my RA, I've also not long ago had knee replacement surgery so this may have gone against me too.
Kerry-78
in
NRAS
6 years ago
Clomid and bemfola cycle
Hello ladies. First scan of cycle three done. Last dose of norethisterone tomorrow and then start stimming when AF arrives. We are taking clomid and bemfola this cycle. I was wondering if anyone had tried this or something similar and what their experience/outcome was. I’ve previously had poor quality
Hello ladies. First scan of cycle three done. Last dose of norethisterone tomorrow and then start stimming when AF arrives. We are taking clomid and bemfola this cycle. I was wondering if anyone had tried this or something similar and what their experience/outcome was. I’ve previously had poor quality
Ash2016
in
Fertility Network UK
6 years ago
RSL & Reflexology
Hi All, Just wondered what thoughts were on reflexology for RSL. Mine sort of settled for a while when I started taking Pregabalin (200mg increased to 250mg recently due to breakthrough at night)and I also take co-codamol. My legs/ankles seem to be starting now before I go to bed so it's hard to settle
Hi All, Just wondered what thoughts were on reflexology for RSL. Mine sort of settled for a while when I started taking Pregabalin (200mg increased to 250mg recently due to breakthrough at night)and I also take co-codamol. My legs/ankles seem to be starting now before I go to bed so it's hard to settle
VJ29
in
Restless Legs Syndrome
6 years ago
Try try then drop trying
Right everyone the emails we all share seem to head in the same direction we just don't know so for us all I have scoured the entire universe to see what can be done for six years I have been totally dependendent on wheel chairs etc untill recently look i have been trying two new meds on secret trail
Right everyone the emails we all share seem to head in the same direction we just don't know so for us all I have scoured the entire universe to see what can be done for six years I have been totally dependendent on wheel chairs etc untill recently look i have been trying two new meds on secret trail
Mat08
in
Functional Neurological Disorder - FND Hope
6 years ago
Hypermobility or more?
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember but I was only recently formally diagnosed with having Hypermobility Syndrome. The rheumatologist I saw spoke to me about genetic testing and I'm wondering if it's
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember but I was only recently formally diagnosed with having Hypermobility Syndrome. The rheumatologist I saw spoke to me about genetic testing and I'm wondering if it's
PixiePie97
in
Ehlers-Danlos Support UK
6 years ago
Diagnosis override and lack of awareness in NHS of EDS
I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. Anyway I was doagnosed with fibro in May by another rheumatologist. The app went ok. When the letter came she dropped my diagnosis of hypermobility syndrome and
I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. Anyway I was doagnosed with fibro in May by another rheumatologist. The app went ok. When the letter came she dropped my diagnosis of hypermobility syndrome and
angie610
in
Ehlers-Danlos Support UK
6 years ago
Amnio pain
I had my amniocentesis on monday its now friday and i am still cramping and sore, should i call triage ? Baby is still moving not as much but still there 24 weeks
I had my amniocentesis on monday its now friday and i am still cramping and sore, should i call triage ? Baby is still moving not as much but still there 24 weeks
Ceden273
in
Pregnancy and Parenting Support
6 years ago
Oh dear, more kit
So, I saw a bargain on the Adidas website and bagged myself a really lightweight running jacket ready for when the heatwave ends and normal British summer resumes. It’s mainly white with a bit of grey and some reflective bits, so should be good in the dark. It arrived earlier in the week. And then
So, I saw a bargain on the Adidas website and bagged myself a really lightweight running jacket ready for when the heatwave ends and normal British summer resumes. It’s mainly white with a bit of grey and some reflective bits, so should be good in the dark. It arrived earlier in the week. And then
Jay66UK
Graduate
in
Couch to 5K
6 years ago
Restless leg
I am currently taking Gabapenten and Amytriptolin for my restless leg. Medical Marijuana is illegal in my state. I started taking Hemp Cannibus Oil (30mg every morning) and taking a few hits on a bong every evening. I have cut down to 2, 500mg of Gabapentin a day instead of the 3 pills. I gave run out
I am currently taking Gabapenten and Amytriptolin for my restless leg. Medical Marijuana is illegal in my state. I started taking Hemp Cannibus Oil (30mg every morning) and taking a few hits on a bong every evening. I have cut down to 2, 500mg of Gabapentin a day instead of the 3 pills. I gave run out
Chileman
in
Restless Legs Syndrome
6 years ago
Rls
Was informed by my doctor yesterday that taking ropinirol well pregnant is a big no no I ad a miscarriage in March and it was from taking this medication doctors didn't tell me about this and I've now stopped it from yesterday and started taking magnesium vitamins +b6 as I've been told this helps guna
Was informed by my doctor yesterday that taking ropinirol well pregnant is a big no no I ad a miscarriage in March and it was from taking this medication doctors didn't tell me about this and I've now stopped it from yesterday and started taking magnesium vitamins +b6 as I've been told this helps guna
Melanie1978
in
Restless Legs Syndrome
6 years ago
And now for the good news
From the research section of the RLS Foundation. The lovely Doctor Ondo is working for us. 'The RLS Foundation has awarded a $37,000 grant to Dr William G. Ondo of Houston Methodist Neurological Institute to study a new medicine to treat RLS patients who have augmentation. "Augmentation is a condition
From the research section of the RLS Foundation. The lovely Doctor Ondo is working for us. 'The RLS Foundation has awarded a $37,000 grant to Dr William G. Ondo of Houston Methodist Neurological Institute to study a new medicine to treat RLS patients who have augmentation. "Augmentation is a condition
Parminter
in
Restless Legs Syndrome
6 years ago
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