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ANA test results
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
PurpleKoala24
in
LUPUS UK
16 days ago
Best friend has cancer
My best friend has stage 4 colon cancer, and we are on opposite sides of the country. I'm so worried for him and upset, and the oncologist says he can't have chemo until he heals from his recent surgeries. I'm almost completely gutted with concern for my friend. Any support or insight would be appreciated
My best friend has stage 4 colon cancer, and we are on opposite sides of the country. I'm so worried for him and upset, and the oncologist says he can't have chemo until he heals from his recent surgeries. I'm almost completely gutted with concern for my friend. Any support or insight would be appreciated
Skydreamer42
in
Colon Cancer Connected
6 months ago
Oesophageal Sphincter
Hello. My wife had gastro-oesophageal cancer 12 years ago and had surgery to remove the cancer. Thankfully all was successful and she leads a very normal life. As one knows, post surgery one cannot lie down flat as the oesophageal sphincter has been removed thus causing acid to come up from the stomach
Hello. My wife had gastro-oesophageal cancer 12 years ago and had surgery to remove the cancer. Thankfully all was successful and she leads a very normal life. As one knows, post surgery one cannot lie down flat as the oesophageal sphincter has been removed thus causing acid to come up from the stomach
CarlF
in
Oesophageal & Gastric Cancer
6 months ago
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Not about PCa, but worth checking...CRISPR in oncology phase 1-2
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
Maxone73
in
Advanced Prostate Cancer
6 months ago
Any ladies had cytoreductive surgery for recurrence?
lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in Chemotherapy this time with Carly? A year ago my cancer came back after over 4 years NED. I understood the CT scan had caught it early and went
lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in Chemotherapy this time with Carly? A year ago my cancer came back after over 4 years NED. I understood the CT scan had caught it early and went
Towergirl
in
My Ovacome
6 months ago
Good news
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Uniquem
in
My Ovacome
6 months ago
How to Know When Disimpaction is Complete
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
Maplelover
in
ERIC
3 months ago
TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
6 months ago
worried
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Sarah1611
in
Crohn's and Colitis Support
3 months ago
unknown rash
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
Demaso33
in
LUPUS UK
24 days ago
ibs an a wee rant
Hi, it’s been a while since I last posted re ibs. It’s been 20 odd years that I’ve gradually suffered (more) with what I thought and was told was ibs. I’ve tried various diets/ over counter meds/ prescribed meds, basically spent a small fortune trying out various things. Over the last few years my diarrhoea
Hi, it’s been a while since I last posted re ibs. It’s been 20 odd years that I’ve gradually suffered (more) with what I thought and was told was ibs. I’ve tried various diets/ over counter meds/ prescribed meds, basically spent a small fortune trying out various things. Over the last few years my diarrhoea
BaneOfRagnar
in
IBS Network
3 months ago
*Long Read Warning* How do you know if you’re getting better mentally?
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Bear2024
in
Above & Beyond
25 days ago
Feeling a bit nervous. What next?
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Skyeplus
in
My Ovacome
6 months ago
Inulin
Hi AllLooking for some advice on Inulin...dietary fibre. Wondering wether to give it a go reading about it, seems to benefit just about everything!! Is it good for us 'Thyroids' though? Has anyone tried it? And does it cause bloatedness/flatulance/diarrhoea? If it helps constipation, cholesterol, belly
Hi AllLooking for some advice on Inulin...dietary fibre. Wondering wether to give it a go reading about it, seems to benefit just about everything!! Is it good for us 'Thyroids' though? Has anyone tried it? And does it cause bloatedness/flatulance/diarrhoea? If it helps constipation, cholesterol, belly
MissDemeanour191
in
Thyroid UK
3 months ago
Next steps after radiotherapy
Hi, In Oct 2023, My dad's MRI revealed that cancer had spread to few vertebral bones and has reached a rib bone. He got a PET scan and then underwent ~20 days of radiotherapy in Nov 2023. But his doctor has not asked him to do any follow-up tests after the radiotherapy ended. Is this the norm? Should
Hi, In Oct 2023, My dad's MRI revealed that cancer had spread to few vertebral bones and has reached a rib bone. He got a PET scan and then underwent ~20 days of radiotherapy in Nov 2023. But his doctor has not asked him to do any follow-up tests after the radiotherapy ended. Is this the norm? Should
QuestionsAbtMyDad
in
Prostate Cancer Network
6 months ago
Latest results - 6 weeks pregnant
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Molly161018
in
Thyroid UK
3 months ago
Update on Cancer Diagnosis
Correction to recent post: I should have stated that I have been recently diagnosed with Lung Cancer. I could not see anywhere that I could edit my Post.
Correction to recent post: I should have stated that I have been recently diagnosed with Lung Cancer. I could not see anywhere that I could edit my Post.
cpt13
in
NRAS
6 months ago
Update: opinions please
Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?
Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?
Popcorn12345
in
Pernicious Anaemia Society
3 months ago
hole in windpipe
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
Von66
in
Oesophageal & Gastric Cancer
3 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
3 months ago
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