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Coming off of Enbrel and Methotrexate before Operation
Dear All, I would be very grateful for others experiences whilst on a weekly Biologic prefilled and weekly Methotrexate tablets with Folic Acid 5mg 6 days a week. My daughter is 32 years old and having a Laparoscopy Operation to remove bilateral ovarian dermoid cysts on 16 May. When should she come
Dear All, I would be very grateful for others experiences whilst on a weekly Biologic prefilled and weekly Methotrexate tablets with Folic Acid 5mg 6 days a week. My daughter is 32 years old and having a Laparoscopy Operation to remove bilateral ovarian dermoid cysts on 16 May. When should she come
MJSlide1958
in
NRAS
2 months ago
How long will this last for?
Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain wouldn’t allow me keep going. I also started noticing trembling, tingling, pins and needles and headaches/migraines. I reached the point that I was
Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain wouldn’t allow me keep going. I also started noticing trembling, tingling, pins and needles and headaches/migraines. I reached the point that I was
Peacelily24
in
Pernicious Anaemia Society
2 months ago
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
2 months ago
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TPO high, GP not helpful, and I’m looking for advice
Hello, Sorry if this is a bit long. I have been struggling with symptoms of hypothyroidism for about 5 - 6 years. I also have a long family history of hypothyroidism and all of my female relatives battled their way to a diagnosis, and I seem to be following suit. Just before covid struck, my then
Hello, Sorry if this is a bit long. I have been struggling with symptoms of hypothyroidism for about 5 - 6 years. I also have a long family history of hypothyroidism and all of my female relatives battled their way to a diagnosis, and I seem to be following suit. Just before covid struck, my then
TheMudRunner
in
Thyroid UK
2 months ago
Bad batch of B12
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
Calcium, Vitamin D, Bone mineral density,
I am reading that Cal & Vit D during ATD will also cause cardiovascular problems. I take 1500MG plus D daily. plus weight lifting & cardio. What to do?
I am reading that Cal & Vit D during ATD will also cause cardiovascular problems. I take 1500MG plus D daily. plus weight lifting & cardio. What to do?
Stevegr
in
Advanced Prostate Cancer
2 months ago
Ferritin, B12 and folate results
Hi all I’d be grateful for any advice on the following results and details of the best supplements to take if you think I should boost them? The ferritin seems particularly low (even if it is technically in range). I eat red meat and leafy greens but struggle with things like liver so I guess I’d
Hi all I’d be grateful for any advice on the following results and details of the best supplements to take if you think I should boost them? The ferritin seems particularly low (even if it is technically in range). I eat red meat and leafy greens but struggle with things like liver so I guess I’d
Mogget
in
Thyroid UK
2 months ago
Private blood results
Hello So this page has been so helpful so after publishing my Dr's nhs results I was advised to pay and get private ones done. After 2 failed blood attempts and multiple needles late finally have my results. If anyone could give me some guidance I'd be extremely greatful. CRP 0.305 Ferritin 30.8
Hello So this page has been so helpful so after publishing my Dr's nhs results I was advised to pay and get private ones done. After 2 failed blood attempts and multiple needles late finally have my results. If anyone could give me some guidance I'd be extremely greatful. CRP 0.305 Ferritin 30.8
Tinkerbell_84
in
Thyroid UK
2 months ago
GP must have B12 deficiency too.
So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated? How often do they have injections? Do they come up against the same issues we do in the general population? It would be amazingly useful for
So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated? How often do they have injections? Do they come up against the same issues we do in the general population? It would be amazingly useful for
Beckburybelle
in
Pernicious Anaemia Society
2 months ago
Nattokinase
Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.
Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.
Zabb
in
CLL Support
2 months ago
So very grateful for Thyroid UK
I just have to express my gratitude to this forum and the admins who give of their time to help us who are or have been floundering with NHS input (or lack of input+even dismissiveness of our thyroid journey) with regard to our thyroid and other connected issues. My son will be 48 this year and that’
I just have to express my gratitude to this forum and the admins who give of their time to help us who are or have been floundering with NHS input (or lack of input+even dismissiveness of our thyroid journey) with regard to our thyroid and other connected issues. My son will be 48 this year and that’
Lottyplum
in
Thyroid UK
5 months ago
How to change from T3 only to T4?
I'm currently self medicating on 50mcg Tiromel and have been for a few years. My doctor prescribed me 75 mcg Eutirox 5 x week and 88 on the weekends. It just wasn't working for me, so after a lot of reading I assumed I was just someone with a faulty conversion gene and decided to try alternatives.
I'm currently self medicating on 50mcg Tiromel and have been for a few years. My doctor prescribed me 75 mcg Eutirox 5 x week and 88 on the weekends. It just wasn't working for me, so after a lot of reading I assumed I was just someone with a faulty conversion gene and decided to try alternatives.
Nikkkita
in
Thyroid UK
2 months ago
tiredness
I’m post quad bypass 5 years now and have been struggling with tiredness Been to the doctors one said it’s my age get used to it another said some people just get tired I’m on bisoprolol small dose rosuvastatin min dose I take b12 iron and coq10 all tests put me in the normal range So it appears
I’m post quad bypass 5 years now and have been struggling with tiredness Been to the doctors one said it’s my age get used to it another said some people just get tired I’m on bisoprolol small dose rosuvastatin min dose I take b12 iron and coq10 all tests put me in the normal range So it appears
Dogchasers
in
British Heart Foundation
2 months ago
Weeping eye
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
madeline05
in
Thyroid UK
2 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
5 months ago
B Vitamins and the Brain: Mechanisms, Dose and Efficacy
B vitamins are essential for brain function and are generally safe to consume in higher amounts than recommended. However, many people and definitely PWP, have deficiencies in one or more B vitamins, which can negatively affect brain function. Previous research has focused on three B vitamins (folate
B vitamins are essential for brain function and are generally safe to consume in higher amounts than recommended. However, many people and definitely PWP, have deficiencies in one or more B vitamins, which can negatively affect brain function. Previous research has focused on three B vitamins (folate
Esperanto
in
Cure Parkinson's
3 months ago
how quickly did you regress after B12 loading?
I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like I did before; irritable, weepy, fatigued, constipated and so on. I really can’t believe I need monthly injections so am thinking I am imagining
I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like I did before; irritable, weepy, fatigued, constipated and so on. I really can’t believe I need monthly injections so am thinking I am imagining
TheLabSquad
in
Pernicious Anaemia Society
2 months ago
Does anyone else experience this? pain of the deltoid and trapezius muscles, possibly due to IM b12 both by PCP (monthly) and SI (EOD)
hi there I’m trying to figure out if the IM b12 injections are starting to cause this pain I feel on both sides of my body … areas as specified above. I also SI in my leg muscle. I have a system to work around the four areas of my body. I have autoimmune PA so I need to figure this out. Maybe I
hi there I’m trying to figure out if the IM b12 injections are starting to cause this pain I feel on both sides of my body … areas as specified above. I also SI in my leg muscle. I have a system to work around the four areas of my body. I have autoimmune PA so I need to figure this out. Maybe I
Schpsych2414
in
Pernicious Anaemia Society
2 months ago
Benfotiamine B1 5 Day Trial
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Misdiagnosis? Fibromyalgia or PA?
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
Chickens44
in
Pernicious Anaemia Society
2 months ago
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