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Rheumatologist diagnosis
Hi My Rheumy says my PMR is atypical with a normal CRP . My ESR is 39 . Which she believes is normal and it’s due to my weight - 14 stone . Wants to refer me to physio, this will be excruciating . The pain already makes me feel sick and like I’m going to pass out . She did ‘query’ inflammatory arthritis
Hi My Rheumy says my PMR is atypical with a normal CRP . My ESR is 39 . Which she believes is normal and it’s due to my weight - 14 stone . Wants to refer me to physio, this will be excruciating . The pain already makes me feel sick and like I’m going to pass out . She did ‘query’ inflammatory arthritis
TedTheMaineCoon
in
PMRGCAuk
6 months ago
Fibroscan CAP scores
There are a few things that I don’t understand about Fibroscan CAP scores. I have looked at the NICE 49 full guideline which can be found here: https://www.nice.org.uk/guidance/ng49/evidence/full-guideline-pdf-2548213310 Fibroscan CAP scores are discussed in detail on pages 62 to 74; the CAP scores
There are a few things that I don’t understand about Fibroscan CAP scores. I have looked at the NICE 49 full guideline which can be found here: https://www.nice.org.uk/guidance/ng49/evidence/full-guideline-pdf-2548213310 Fibroscan CAP scores are discussed in detail on pages 62 to 74; the CAP scores
mickeymouse42
in
British Liver Trust
6 months ago
Vitamin D dropped again
Hi everyone I had my Vitamin tested in January and I was deficient. January 2024: Vitamin D deficient (Vitamin D: 27.4 ng/ml (Low) ….(30-100) I decided to sit outside instead of supplement (weather has been very mild) I just got my results for April 2024 and Im worse off… April 2024: Vitamin
Hi everyone I had my Vitamin tested in January and I was deficient. January 2024: Vitamin D deficient (Vitamin D: 27.4 ng/ml (Low) ….(30-100) I decided to sit outside instead of supplement (weather has been very mild) I just got my results for April 2024 and Im worse off… April 2024: Vitamin
Batty1
in
Thyroid UK
14 days ago
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Introducing a new member
Hello folks, this is me here :-) My mother had and my 3 siblings and I still share a history of hypothyroidism. Each of us takes levothyroxine on a daily basis, except my mother died a few months ago at the age of 90 after many years of slow physical and cognitive decline. I've been taking it for
Hello folks, this is me here :-) My mother had and my 3 siblings and I still share a history of hypothyroidism. Each of us takes levothyroxine on a daily basis, except my mother died a few months ago at the age of 90 after many years of slow physical and cognitive decline. I've been taking it for
Fairflow
in
Thyroid UK
6 months ago
Calcium supplements in 2nd trimester
Hello all, I’m 17 weeks pregnant now. Any suggestions for best calcium tablets or calcium brand name to start in the 2nd trimester? I explored many but most of the calcium tablets comes with either vitamin D or Magnesium for better absorption. I’m already taking “Pregnacare original” since start of
Hello all, I’m 17 weeks pregnant now. Any suggestions for best calcium tablets or calcium brand name to start in the 2nd trimester? I explored many but most of the calcium tablets comes with either vitamin D or Magnesium for better absorption. I’m already taking “Pregnacare original” since start of
SonaSharma
in
Pregnancy and Parenting Support
6 months ago
B12 deficiency: a hidden trigger of inflammation?
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
helvella
Thyroid UK
in
Thyroid UK
15 days ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
15 days ago
Blood Test for vits (and thyroid)
Hello all. Following advice from SlowDragon, got GP to agree to Vit testing as T3 low and as SlowDragon though they would, they drew blood for Thyroid levels , too! Must say here, too, after GPS lowered my Levo, because I had too many hypo symptoms return, I upped the dose from 175 to 200 as on 200
Hello all. Following advice from SlowDragon, got GP to agree to Vit testing as T3 low and as SlowDragon though they would, they drew blood for Thyroid levels , too! Must say here, too, after GPS lowered my Levo, because I had too many hypo symptoms return, I upped the dose from 175 to 200 as on 200
Lottyplum
in
Thyroid UK
6 months ago
Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
Technoid
in
Pernicious Anaemia Society
18 days ago
thyroid medication and maintaining bone health
i recently read that thyroid medication affects bone health, doc didn't mention it! i've been on and off them for years. plus largely bedbound for 10 of the last 15 years. best i can do is diet and supplements, as i can't exercise much, though i can walk around a bit thankfully, just can not do the
i recently read that thyroid medication affects bone health, doc didn't mention it! i've been on and off them for years. plus largely bedbound for 10 of the last 15 years. best i can do is diet and supplements, as i can't exercise much, though i can walk around a bit thankfully, just can not do the
MayGodBlessYou
in
Bone Health and Osteoporosis UK
6 months ago
Blood results
Hi, I have made another post regarding subacute thyroiditis. I had subacute thyroiditis Feb - June 2022 painless. It never quite went away with some slight hyper symptoms on and off. Roll on to Feb 2022 it kicks back in but alot worse and I have been house bound since. I have very few hyper symptoms
Hi, I have made another post regarding subacute thyroiditis. I had subacute thyroiditis Feb - June 2022 painless. It never quite went away with some slight hyper symptoms on and off. Roll on to Feb 2022 it kicks back in but alot worse and I have been house bound since. I have very few hyper symptoms
Dizzy2016
in
Thyroid UK
6 months ago
Switching to NDT or adding T3?
Hi everyone, Related to my earlier post about sources of T3 and NDT I'd like some advice on whether and how to take these. I had an appointment with an NHS endocrinologist this week who dismissed my symptoms and refused any dose or medication changes. He insisted that the following results were '
Hi everyone, Related to my earlier post about sources of T3 and NDT I'd like some advice on whether and how to take these. I had an appointment with an NHS endocrinologist this week who dismissed my symptoms and refused any dose or medication changes. He insisted that the following results were '
Becsf
in
Thyroid UK
6 months ago
Unable to SI
Sorry, slightly off topic. I do my daughters B12 injections for her, she has a needle phobia. She has just come out of hospital since an operation and is required to have 42 days of blood thinning injections, which I do each day at 7pm. There are some days where I really cannot be available.. she
Sorry, slightly off topic. I do my daughters B12 injections for her, she has a needle phobia. She has just come out of hospital since an operation and is required to have 42 days of blood thinning injections, which I do each day at 7pm. There are some days where I really cannot be available.. she
pinkpaddleboarder
in
Pernicious Anaemia Society
6 months ago
Methotrexate and Folic acid
I know Folic Acid is not taken on same day and take Methotrexate around 6pm at night then Folic following day.Does everyone wait a full 24 hours before taking Folic acid. Pharmacy thinks needs to be full 24 hours but not seen this written down. Nurses have a three day wait for advice so seeing what others
I know Folic Acid is not taken on same day and take Methotrexate around 6pm at night then Folic following day.Does everyone wait a full 24 hours before taking Folic acid. Pharmacy thinks needs to be full 24 hours but not seen this written down. Nurses have a three day wait for advice so seeing what others
welsh12
in
NRAS
6 months ago
New to Peripheral Neuropathy
Hi. Apologies if this question has arisen before but I am new to this site. Shortly after hospitalisation in May for low oxygen I developed PN on the soles of my feet. I have just finished an 8 week course of B12 and go to the surgery for a blood test today. My feet seem to be improving but very, very
Hi. Apologies if this question has arisen before but I am new to this site. Shortly after hospitalisation in May for low oxygen I developed PN on the soles of my feet. I have just finished an 8 week course of B12 and go to the surgery for a blood test today. My feet seem to be improving but very, very
Headoverheels
in
Neuropathy Support
6 months ago
Please may I get your thoughts on 2nd round of thyroid tests?
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Bertiepuss
in
Thyroid UK
3 months ago
Vitamin/supplements
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Fee52
in
Thyroid UK
6 months ago
bite and echonocytes at 1+
ET JAK2+ for 18 months. Had sensitive liver reaction to all 3 primary drug treatments, recent one since March is peginterferon at 67 units per week. Liver enzymes started creeping up again (coincidently?) since getting flu and Covid shots two weeks apart in September. Also started taking 175 mg daily
ET JAK2+ for 18 months. Had sensitive liver reaction to all 3 primary drug treatments, recent one since March is peginterferon at 67 units per week. Liver enzymes started creeping up again (coincidently?) since getting flu and Covid shots two weeks apart in September. Also started taking 175 mg daily
Mishie14
in
MPN Voice
6 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
26 days ago
fertility supplements
hello ladies, I am 40 plus and undergoing ivf treatment. I had one cycle of failed ivf/ ICSI and have been taking pregnacare conception multivitamins plus omega 3,6,9 and vitabiotics vitamin d daily. Could you please guide on other supplements to support egg quality. My Amy is low and have low egg
hello ladies, I am 40 plus and undergoing ivf treatment. I had one cycle of failed ivf/ ICSI and have been taking pregnacare conception multivitamins plus omega 3,6,9 and vitabiotics vitamin d daily. Could you please guide on other supplements to support egg quality. My Amy is low and have low egg
EatPrayLive
in
Fertility Network UK
6 months ago
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