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Hypo Dr lowered dose!
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Lowestoft
in
Thyroid UK
2 months ago
B12 over 4000 with injections, any need to worry?
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Bertiepuss
in
Pernicious Anaemia Society
2 months ago
Courage
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
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New Thyroid Results - Conversion Issue?
Hi, After an emotional Thyroid rollercoaster these past couple years (post partial thyroidectomy 12/2/21 in combination with an Endo who doesn't believe in compounded medication), I finally seem to be settling into a medication and dose that works okay. I'd have to say that I'm still a bit tired and
Hi, After an emotional Thyroid rollercoaster these past couple years (post partial thyroidectomy 12/2/21 in combination with an Endo who doesn't believe in compounded medication), I finally seem to be settling into a medication and dose that works okay. I'd have to say that I'm still a bit tired and
KarmaMaya
in
Thyroid UK
3 months ago
ferritin level!??
My ferritin level has come back at - 43.5 ug/L (20.0 - 130.0) Folate - 11.7 ug/L (2.0. - 18.7) B12 This is so frustrating as I eat lots of fresh red meat and also supplement with iron 😩 B12 - 736 (197 - 771) Can anyone advice….?? Many thanks in advance 😞
My ferritin level has come back at - 43.5 ug/L (20.0 - 130.0) Folate - 11.7 ug/L (2.0. - 18.7) B12 This is so frustrating as I eat lots of fresh red meat and also supplement with iron 😩 B12 - 736 (197 - 771) Can anyone advice….?? Many thanks in advance 😞
ThyroidObsessed
in
Thyroid UK
2 months ago
Which Brand B12 NHS injections please ?
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
Spritze
in
Pernicious Anaemia Society
2 months ago
friend with MS… interesting parallels
hi just sharing as this intrigued me. Visited a friend I haven’t seen for 12 years recently, she moved away. She was diagnosed with MS just before she left and talking to her I learned the following. MS support group recommended loading dose of 40,000 iu Vit D then 8,000 a day more in winter. This
hi just sharing as this intrigued me. Visited a friend I haven’t seen for 12 years recently, she moved away. She was diagnosed with MS just before she left and talking to her I learned the following. MS support group recommended loading dose of 40,000 iu Vit D then 8,000 a day more in winter. This
Regenallotment
in
Thyroid UK
2 months ago
Link between Vitamin B12 Deficiency and MS
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
BettysMom
in
My MSAA Community
2 months ago
Low cortisol
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
redhead41
in
Thyroid UK
2 months ago
Flying with b12 medication
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Suffering_sunny
in
Pernicious Anaemia Society
2 months ago
A positive tale...so far
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Myoldcat
in
Pernicious Anaemia Society
2 months ago
Supplies of b12 injections
Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏
Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏
Mrsmr
in
Pernicious Anaemia Society
2 months ago
Thyroid bloods if anyone can have a peep?
Hi folks, so finally got my thyroid bloods back, any ideas? thank you so much x Anti-Thyroid Peroxidase Ab's 1.4 IU/mL range 0 - 8.9 Free T3 5.4 pmol/L Range 3.8 - 6.0 Free T4 14.4 pmol/L Range 7.9 - 14.4 TSH
Hi folks, so finally got my thyroid bloods back, any ideas? thank you so much x Anti-Thyroid Peroxidase Ab's 1.4 IU/mL range 0 - 8.9 Free T3 5.4 pmol/L Range 3.8 - 6.0 Free T4 14.4 pmol/L Range 7.9 - 14.4 TSH
madeline05
in
Thyroid UK
2 months ago
Falling apart
Just had my first ever Medichecks results through and some (most) are pretty bad although all have that lovely green mark!All supplements were stopped about 6 weeks ago - long story but I've only just got round to doing the test. Test taken at 9am with just water beforehand and last dose of Levothyroxine
Just had my first ever Medichecks results through and some (most) are pretty bad although all have that lovely green mark!All supplements were stopped about 6 weeks ago - long story but I've only just got round to doing the test. Test taken at 9am with just water beforehand and last dose of Levothyroxine
Jingley
in
Thyroid UK
2 months ago
Osteopenia?
A chat with the doctor's nurse and the diagnosis of of osteopenia. Osteopenia is the first stage before osteoporosis. Osteoporosis is when you break bones by falling. I fall now and then but it's because of peroneal nerve entrapment. The peroneal nerve lifts my toes. Without its help I trip
A chat with the doctor's nurse and the diagnosis of of osteopenia. Osteopenia is the first stage before osteoporosis. Osteoporosis is when you break bones by falling. I fall now and then but it's because of peroneal nerve entrapment. The peroneal nerve lifts my toes. Without its help I trip
kaypeeoh
in
Cure Parkinson's
2 months ago
B12 loading dose
Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than
Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say I have low B12 and need to have loading doses and they have made me an appointment with the nurse (absolutely no further information other than
mully
in
Pernicious Anaemia Society
2 months ago
B12 Injections
Hi I wonder if anyone can tell me of their experiences of B12 injections I have just been told I am deficient in B12 and need too have some loading doses Did this cause a flare up of your MS I'm especially worried as I also have Trigeminal Neuralgia and fear the pain not being controlled Thanks
Hi I wonder if anyone can tell me of their experiences of B12 injections I have just been told I am deficient in B12 and need too have some loading doses Did this cause a flare up of your MS I'm especially worried as I also have Trigeminal Neuralgia and fear the pain not being controlled Thanks
mully
in
My MSAA Community
2 months ago
Long-awaited Advanced Thyroid Test from Medichecks.
I’d be very grateful for your views on my recent test results. I can see that there has been some improvement since Nov 2022, perhaps not enough in some areas? CRP - 1.76 range <3 Ferritin - 164 range 30-650 Folate - 10.5 r <7 B12 - 73.7 r 37.5-188 Vit D - 103 r 50-250 TSH - 0.515 r 0.27-4.2
I’d be very grateful for your views on my recent test results. I can see that there has been some improvement since Nov 2022, perhaps not enough in some areas? CRP - 1.76 range <3 Ferritin - 164 range 30-650 Folate - 10.5 r <7 B12 - 73.7 r 37.5-188 Vit D - 103 r 50-250 TSH - 0.515 r 0.27-4.2
Calceolaria
in
Thyroid UK
2 months ago
RBC advice
Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for around 9-10 months now along with 1100mg of gabapentin (unfortunately)and though I am feeling alive again in so many ways I am still struck every
Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for around 9-10 months now along with 1100mg of gabapentin (unfortunately)and though I am feeling alive again in so many ways I am still struck every
brenanddave
in
Pernicious Anaemia Society
2 months ago
Starting B12 Injections - What To Expect?
Hi! I am now going to be starting Vitamin B12 injections in a couple of weeks, one every other day for 2 weeks then one every three months. I just wondered what others experiences are with these injections - how quickly did you start to feel better? Any side effects? And how is it after I finish the
Hi! I am now going to be starting Vitamin B12 injections in a couple of weeks, one every other day for 2 weeks then one every three months. I just wondered what others experiences are with these injections - how quickly did you start to feel better? Any side effects? And how is it after I finish the
Hidden
in
Pernicious Anaemia Society
2 months ago
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