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Vitamin D deficiency
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Active B12 gone down
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Maldeerum
in
Pernicious Anaemia Society
2 months ago
B12 or something else?
Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself
Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself
Justine_Case
in
Pernicious Anaemia Society
8 months ago
The effect of a B complex on raised liver enzymes with discomfort/pain
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
Noelnoel
in
Thyroid UK
2 months ago
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Storing B12 Depot
Good morning again..... I have just received a parcel of Panpharma B12 Depot..my first..great emotion...........Thank you to those who have helped and encouraged me....I'm frightened and a little excited at the whole prospect of SI.......and maybe I'll feel better than I have for the last 8 years (at
Good morning again..... I have just received a parcel of Panpharma B12 Depot..my first..great emotion...........Thank you to those who have helped and encouraged me....I'm frightened and a little excited at the whole prospect of SI.......and maybe I'll feel better than I have for the last 8 years (at
edeuweed
in
Pernicious Anaemia Society
2 months ago
Hello all, sone advise please.
I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my life. I have a friend who does have a diagnosis and hers 3 monthly injections of the NHS and I can’t understand how she is coping, but she was
I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my life. I have a friend who does have a diagnosis and hers 3 monthly injections of the NHS and I can’t understand how she is coping, but she was
Lowbattry03
in
Pernicious Anaemia Society
2 months ago
B12 and Ferritin results
Just had blood tests and results for B12 are 201 (110-900) and ferritin 59 (30-337). Am I right in thinking these should be higher?
Just had blood tests and results for B12 are 201 (110-900) and ferritin 59 (30-337). Am I right in thinking these should be higher?
Girlslovescifi
in
Thyroid UK
2 months ago
high inflammation markers but no pain.
I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests as I had been to the doctor complaining about lethargy and tiredness. I remain active, going to the gym 3x a week although struggling somewhat
I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests as I had been to the doctor complaining about lethargy and tiredness. I remain active, going to the gym 3x a week although struggling somewhat
Cycleman
in
PMRGCAuk
2 months ago
Extra folate & biotin?
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
KingJohnVII
in
Thyroid UK
2 months ago
Private GP visit
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
Chickens44
in
Pernicious Anaemia Society
2 months ago
Test Result Feedback
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Curious123
in
Thyroid UK
2 months ago
Duloxetine and/or Pyridoxine
Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice from my nurse specialist and have an appointment with my consultant soon, but I’d like to know if anyone has experience of either of the above
Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice from my nurse specialist and have an appointment with my consultant soon, but I’d like to know if anyone has experience of either of the above
Irisisme
in
My Ovacome
2 months ago
NDT has raised my thyroid anti-bodies. What's next?
Hi All, As I just made a post with my update on NDT (good T3 and T4 levels, but TSH is 0.017, so too low), I received my latest anti-bodies results. And they went up! I've heard some people shared how their anti-bodies went up as well on NDT. Yes, I'm on a gluten-free, whole food diet, been on
Hi All, As I just made a post with my update on NDT (good T3 and T4 levels, but TSH is 0.017, so too low), I received my latest anti-bodies results. And they went up! I've heard some people shared how their anti-bodies went up as well on NDT. Yes, I'm on a gluten-free, whole food diet, been on
Juliet_22
in
Thyroid UK
11 months ago
Waiting for diagnosis
Hi, It's been 12 months and i am still waiting for a diagnosis for my tiredness. It started in August 2022 and i had extreme tiredness. My Doctor prescribed folic acid as my folate level was low. I did that for 4 months and then had bloods again. My vitamin D was low so i did another 4 month course.
Hi, It's been 12 months and i am still waiting for a diagnosis for my tiredness. It started in August 2022 and i had extreme tiredness. My Doctor prescribed folic acid as my folate level was low. I did that for 4 months and then had bloods again. My vitamin D was low so i did another 4 month course.
HannahCB92
in
Myalgic Encephalomyelitis Community
11 months ago
B12 jabs and tablets giving me palpitations. Anyone else have trouble
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
john159
in
Pernicious Anaemia Society
2 months ago
Would be grateful for your thoughts on my blood results before endo apt please, still feeling exhausted and weak. Thank you
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hopetoheal22
in
Thyroid UK
2 months ago
Unrelated PMR question, but asking for a desperate friend in need …
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
LemonZest11
in
PMRGCAuk
2 months ago
Supplements still necessary?
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Aumshantii
in
Pernicious Anaemia Society
2 months ago
Phantom Pain and Vitamin D
Recently at Amputee Physio someone (not an amputee or physio) told me the way to alleviate was to take high doses of Vitamin D although they didn't know how high high was! This sounds like nonsense to me. I have been on 1000 IU per day for a few years since a blood test showed my level to be 24% of
Recently at Amputee Physio someone (not an amputee or physio) told me the way to alleviate was to take high doses of Vitamin D although they didn't know how high high was! This sounds like nonsense to me. I have been on 1000 IU per day for a few years since a blood test showed my level to be 24% of
MichaelJH
in
Pain Concern
1 year ago
failed first round / Vitamins /supplements for next -low ovarian reserve
hello ladies It’s taken me some time to come back on this site as I have really struggled with facing the facts my first round failed I put way to much expectation on it and really had high hopes I am 32 and have a low AMH and not many eggs at all - my first cycle I had two eggs retrieved only one
hello ladies It’s taken me some time to come back on this site as I have really struggled with facing the facts my first round failed I put way to much expectation on it and really had high hopes I am 32 and have a low AMH and not many eggs at all - my first cycle I had two eggs retrieved only one
RoxyRhani
in
Fertility Network UK
5 months ago
b1 vitamins
what has been your experience with taking B1 supplements? Dosage and frequency?
what has been your experience with taking B1 supplements? Dosage and frequency?
Teacher111
in
Cure Parkinson's
2 months ago
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