I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice from my nurse specialist and have an appointment with my consultant soon, but I’d like to know if anyone has experience of either of the above drugs.
My problem is worsening neuropathy. I’ve been on Pregabalin but have now been prescribed Duloxetine and Pyridoxine, which I have researched (of course, as I always do 😉). I think it’s the Duloxetine which is causing horrible side effects but has anyone out there experienced side effects from either of these drugs? Please reply if you have been on either drug.
Thanks for reading this and sending you all Luck and Hugs,
Iris🍀🤗
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Irisisme
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I’ve been on pyridoxine since October 22 150mg a day. I’ve not had any side effects but also not sure what good it’s doing for my neuropathy either? but I continue to take it 🤷🏻♀️xx Jen
I have a friend that suffers from neuropathy post-treatment. She's not at my hospital but I can get my sister to ask her what she has been given and what side fx were. x
Well, sorry to say not much to relate as friend is not taking anything. Hers is discomfort rather than pain. She applies Vicks Vaporub to feet before bed. Has also been advised capsican cream is good (my sister uses this for her back). Another friend used a foot spa regularly. xx
Thank you Pixie, lots of luck to you, there are many of us living with OC although we don’t hear much about it in the media, we can still enjoy our lives although there may be restrictions.
Hi Irisisme, I have been on duloxetine for years with no problems( 30 mgs.). Lately, I have been trying this every other day and I don’t seem to notice any big problem. Maybe your dosage is different. My GP prescribed these before I was diagnosed with OC. By the way, I just was reading your wonderful essay from years ago. You have a pleasant smile on your photo also. Best wishes, Donna
hi irisisme .. I’ve no experience on either of these drugs but your 5 th line and 9 year struggle is inspiring .. I hope & pray 🙏🏼 I struggle as long . Also in the uk I’m in the NE ( chilly ) 🩵🩵 good luck x
I am on duloxetine and zi have had no side effects. It has been the best thing for be because I was in horrible pain from neuropathy waking up screaming at night. I didn’t want to take it but I was in too much pain to care at that point and it immediately stopped all the pain. I have the numbness and tingling, of course, but I’m not suffering. Everyone is different and you may not have my experience, but I recommend it. I may be getting a small emotional lift from it since it’s an antidepressant, but it’s causing no harm,
Hi, it's so encouraging when you read that you were diagnosed 9 yrs ago & even though you are on 5th line, which I am sure is hard, you still give the rest of us hope so thank you . You are obviously a very strong lady 👏. I have never been on either of those chemo's but I am suffering with Neuropathy in my feet this time . It feels like I am walking on pebbles all the time. I found this ointment when I was in my first chemo & I have bought it again. It's called "Nelson's Arnica cooling gel" & it helps ease the Neuropathy for awhile . I got it in my local pharmacy but I think Boots stores or Holland & Barrett also stock it . It might be worth trying & hopefully you will get some relief too. Take care 💕
Thank you Tulips66. I will send my very supportive hubby on a mission to find this cream. My oncologist has reduced the dose of DULOXETINE, which was the problem drug, so maybe I can stay on it.
I have been lucky but it does help if you can stay positive. However bad I feel I still plan for my future - although maybe not quite as far into the future as I used to 😂
Hi again Iris, I think they changed the name to Arnicare now, not Arnica as I said in my reply yesterday . You are right you have to stay positive as much as possible otherwise you would never get through it. I often wonder when people say to me " you are so positive" do they expect me to crawl into a corner in a heap & not live your life as much as this disease allows you too. I understand they sometimes don't know what to say to you but I live my life as best as I can ,especially for my hubby & my daughter's who were only 16 & 19 when I was first diagnosed . If I didn't stay positive I would never have seen them finish school , graduate from college & start working so giving up has never been an option for me . Hopefully the reduced dose will be better for you now & you can get on with your life .🤞I wish you well going forward & I hope you will always have the same strength that has got you 9 yrs since diagnosis. Take care 💞Mag X
Hi- I am also a 5th liner!. I have not been on either of those drugs, but I have been hanging in since diagnosis in 2008. Whenever I have a reoccurrence, we are able to knock it back. I pray that that continues for both of us. Wishing you the best of luck with your “journey”. Hugs.
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