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Ferritin Questions
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Monkharris
in
Pernicious Anaemia Society
3 months ago
Alendronic acid
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Mercat
in
PMRGCAuk
3 months ago
10yo daughters results…HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Pernicious Anaemia Society
3 months ago
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10yo daughters results HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Thyroid UK
3 months ago
What deficiencies could B12 injection cause?
Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini vibrations / electricity / agitation. It's particularly bad in the night and I wake with it. I had worked out that it's tolerable by reducing injection
Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini vibrations / electricity / agitation. It's particularly bad in the night and I wake with it. I had worked out that it's tolerable by reducing injection
Sunnysidoop
in
Pernicious Anaemia Society
3 months ago
Help please
Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to place an order..thanks
Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to place an order..thanks
WWWJAN
in
Pernicious Anaemia Society
3 months ago
B12 expiry date
I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a positive note I took a chance to call my GP surgery for a prescription it must be my lucky year, they said yes!! I had previously saved conversations
I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a positive note I took a chance to call my GP surgery for a prescription it must be my lucky year, they said yes!! I had previously saved conversations
pinkpaddleboarder
in
Pernicious Anaemia Society
3 months ago
pulmonary fibrosis
hi everyone I have been prescribed ninintab haven't taken yet but the nurse said can't take NAC and quercetin and lots of other vitamins and alchhol and other rules, does anyone know anything about this seems like a change of lifestyle to me im supposed to use ambulatory oxegen as welwell !
hi everyone I have been prescribed ninintab haven't taken yet but the nurse said can't take NAC and quercetin and lots of other vitamins and alchhol and other rules, does anyone know anything about this seems like a change of lifestyle to me im supposed to use ambulatory oxegen as welwell !
Currygirl
in
Living with Interstitial Lung Disease (ILD)
5 months ago
Curious. . . . . Cobalamin Germany
I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the delivery address correct which seems a bit of an uphill battle for some I use Amazon.de. . . . . . Am I the only one . . . . Am I paying
I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the delivery address correct which seems a bit of an uphill battle for some I use Amazon.de. . . . . . Am I the only one . . . . Am I paying
OldmanD
in
Pernicious Anaemia Society
3 months ago
Vit C study for this group?
Sanjay Gupta, York cardiologist, has several interesting Youtube vdeos on A F as I am sure you all know. On the vitamin C one he talks about how it might be helpful in reducing AF but big pharma are never going to sponsor a study as there is no money in it for them. He suggests it is something patients
Sanjay Gupta, York cardiologist, has several interesting Youtube vdeos on A F as I am sure you all know. On the vitamin C one he talks about how it might be helpful in reducing AF but big pharma are never going to sponsor a study as there is no money in it for them. He suggests it is something patients
AKatieD
in
AF Association
3 months ago
Why I now use Methylcobalamin rather than any other form.
I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them
I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Antidepressants
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Pa234aw
in
Pernicious Anaemia Society
3 months ago
Alzheimer's drug - Panorama
Has anyone seen the recent Panorama programme on Lecanumab, the latest drug for Alzheimer's? The presenter reveals how the drug causes major side effects and brain enlargement. It is considered a step forward for Alzheimer's treatment but sadly only effective when caught at an early stage. To highlight
Has anyone seen the recent Panorama programme on Lecanumab, the latest drug for Alzheimer's? The presenter reveals how the drug causes major side effects and brain enlargement. It is considered a step forward for Alzheimer's treatment but sadly only effective when caught at an early stage. To highlight
Pickle500
in
Pernicious Anaemia Society
3 months ago
Bright yellow urine, Flank pain, Flakes in urine
Hello, I have not been diagnosed with kidney disease, and actually do not think that what I have is primarily kidney disease - although the kidneys seem to be involved. I am posting my story here (or, some of it - since it is quite long and involved) in case anyone may have some advice for me, or if
Hello, I have not been diagnosed with kidney disease, and actually do not think that what I have is primarily kidney disease - although the kidneys seem to be involved. I am posting my story here (or, some of it - since it is quite long and involved) in case anyone may have some advice for me, or if
Polaris_Ab
in
Kidney Disease
1 year ago
Ferritin and B12D/PA
Some time ago (on this forum?) I read that 80% of PA people had peripheral neuropathy and 20% did not. I have dizziness, brain fog and tinnitus but not PN. I believe the above are related to the central nervous system rather than the peripheral nervous system.What I'm discovering in my case is that the
Some time ago (on this forum?) I read that 80% of PA people had peripheral neuropathy and 20% did not. I have dizziness, brain fog and tinnitus but not PN. I believe the above are related to the central nervous system rather than the peripheral nervous system.What I'm discovering in my case is that the
Orchard33
in
Pernicious Anaemia Society
3 months ago
New Study Suggests Tripling Recommended Amount of Vitamin D
https://www.theepochtimes.com/health/new-study-suggests-tripling-recommended-amount-of-vitamin-d-5578731?utm_source=ref_share&utm_campaign=copy
https://www.theepochtimes.com/health/new-study-suggests-tripling-recommended-amount-of-vitamin-d-5578731?utm_source=ref_share&utm_campaign=copy
BettysMom
in
My MSAA Community
3 months ago
Advice re latest blood tests
Hi all, please can I ask for advice on my latest Medichecks test results? - 14/2/24 - 6 weeks after increasing Levo to 50 mcg daily TSH - 4.74 (0.27-4.2) T4 - 16.5. (12-22) T3 - 5.1 (3.1-6.8) Ferritin - 66.9 was 38 Vit D - 110. was 87 Folate - 45.4 (7- 46.8) B12 active
Hi all, please can I ask for advice on my latest Medichecks test results? - 14/2/24 - 6 weeks after increasing Levo to 50 mcg daily TSH - 4.74 (0.27-4.2) T4 - 16.5. (12-22) T3 - 5.1 (3.1-6.8) Ferritin - 66.9 was 38 Vit D - 110. was 87 Folate - 45.4 (7- 46.8) B12 active
Cat_bluenote
in
Thyroid UK
3 months ago
Folate and B12
Both my Folate and Active B12 are only just over 40% through range. Can anyone recommend good, and hopefully not too expensive, supplements please.
Both my Folate and Active B12 are only just over 40% through range. Can anyone recommend good, and hopefully not too expensive, supplements please.
Puddleperson
in
Thyroid UK
3 months ago
Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
3 months ago
Could Someone Explain The TTGIgA Test Please?
Hello! I have recently had some blood tests done due to low vitamin B12 and long term issues with iron deficiency. My GP did some tests to rule out Celiacs as a cause, and I just wondered if somebody could explain the Tissu Transglutaminase IgA test please - my result came back at 0.4 (range 0-6.9) I
Hello! I have recently had some blood tests done due to low vitamin B12 and long term issues with iron deficiency. My GP did some tests to rule out Celiacs as a cause, and I just wondered if somebody could explain the Tissu Transglutaminase IgA test please - my result came back at 0.4 (range 0-6.9) I
Hidden
in
Gluten Free Guerrillas
3 months ago
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