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low folate again
Hi, I was wondering if folate levels stay low over a long period of time and neurological symptoms occur can this cause long term effects? Can it be irreversible? My folate has been low for years despite supplementing either prescription for 3 months then on to multivitamins and eating well, my b12 deficiency
Hi, I was wondering if folate levels stay low over a long period of time and neurological symptoms occur can this cause long term effects? Can it be irreversible? My folate has been low for years despite supplementing either prescription for 3 months then on to multivitamins and eating well, my b12 deficiency
Leigh33
in
Pernicious Anaemia Society
1 year ago
High Blood Pressure In Between injections
Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para thesis in my arm/ hand - I’ve now had 22 injections of B12 since the end of Feb and continuing whilst my GP awaits advice from a haematologist. Every time the injections are stopped or a gap longer than a week my BP shoots
Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para thesis in my arm/ hand - I’ve now had 22 injections of B12 since the end of Feb and continuing whilst my GP awaits advice from a haematologist. Every time the injections are stopped or a gap longer than a week my BP shoots
Karenedawson
in
Pernicious Anaemia Society
2 months ago
labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
2 months ago
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Thyroid Results
Could I please get some advice on these results. I did not know that the Dr would want to do a blood draw so had taken my Teva Levothyroxine that morning before my appt. However, I was fasting. B12 - 506 pg/ml (197-771) Folate 9.3 ng/ml (3.9-26.8) Ferritin 41.7 ug/L (13.0-150.0) Iron 21.8 umol/L
Could I please get some advice on these results. I did not know that the Dr would want to do a blood draw so had taken my Teva Levothyroxine that morning before my appt. However, I was fasting. B12 - 506 pg/ml (197-771) Folate 9.3 ng/ml (3.9-26.8) Ferritin 41.7 ug/L (13.0-150.0) Iron 21.8 umol/L
revitalise
in
Thyroid UK
9 months ago
am I going to remission? how does FT3,FT4&TSH work? how could i know the right dosage of my ATD?
Hi. Im a female turning 40 y/o and lives in UK. I was diagnose of hyperthyroidism last April this year. My lab test were: April 4 2024 TSH = <0.01 (0.3-5.0) FT4= 52.7 (7.9-16) FT3= 19.6 (3.8-6.0) doctor started me with carbimazole 10mg once a day and propanalol 20mg twice a day. After 2 weeks done
Hi. Im a female turning 40 y/o and lives in UK. I was diagnose of hyperthyroidism last April this year. My lab test were: April 4 2024 TSH = <0.01 (0.3-5.0) FT4= 52.7 (7.9-16) FT3= 19.6 (3.8-6.0) doctor started me with carbimazole 10mg once a day and propanalol 20mg twice a day. After 2 weeks done
Thyroidproblemcarb
in
Thyroid UK
2 months ago
Panpharma B12 Depot
Apohealth.de currently have these in stock. Have successfully placed an order this evening (18th May)
Apohealth.de currently have these in stock. Have successfully placed an order this evening (18th May)
headgirl
in
Pernicious Anaemia Society
2 months ago
Supplements
Hi, I have always taken high dose supplements, does it help the ataxia? I don't know!Looked at Patrick Holfords supplements and "Brain Food" sounded interesting. An assortment of different supplements to support Brain and neuron function. They are expensive, come in a blister pack to be taken twice a
Hi, I have always taken high dose supplements, does it help the ataxia? I don't know!Looked at Patrick Holfords supplements and "Brain Food" sounded interesting. An assortment of different supplements to support Brain and neuron function. They are expensive, come in a blister pack to be taken twice a
penelope2
in
Ataxia UK
2 months ago
Full set of test results finally
After some delays and other issues, finally got test done and more delays before getting back here. Test Result Normal Range Biochemistry CRP 1.19 <5.0 mg/L Ferritin 233.0 30 - 400 ug/L Magnesium 0.97 0.66 - 0.99 mmol/L Hormones Cortisol (Random) 492.0 6am -
After some delays and other issues, finally got test done and more delays before getting back here. Test Result Normal Range Biochemistry CRP 1.19 <5.0 mg/L Ferritin 233.0 30 - 400 ug/L Magnesium 0.97 0.66 - 0.99 mmol/L Hormones Cortisol (Random) 492.0 6am -
Jasper79
in
Thyroid UK
9 months ago
Hypocellular bone marrow. Can anyone tell me more?
I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when debilitating exhaustion was putting my job at risk. Doctors assumed diet related because I was usually vegan at home but still ate meat and fish two or three times a week. I am diary intolerant with eczema (but crave custard
I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when debilitating exhaustion was putting my job at risk. Doctors assumed diet related because I was usually vegan at home but still ate meat and fish two or three times a week. I am diary intolerant with eczema (but crave custard
newlandvale
in
Pernicious Anaemia Society
2 months ago
I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
Whoa182
in
Pernicious Anaemia Society
11 months ago
Iron & PLMD
I had an iron panel done a while back, is there any explanation or link to PLMD & the transferrin % being so high? My ferritin test from about a month ago was 200ug/l & had previously been about 250ug/l. I did start regular b12 jabs around the time of the 250 test,so that might account for the ferritin
I had an iron panel done a while back, is there any explanation or link to PLMD & the transferrin % being so high? My ferritin test from about a month ago was 200ug/l & had previously been about 250ug/l. I did start regular b12 jabs around the time of the 250 test,so that might account for the ferritin
drover123
in
Restless Legs Syndrome
2 months ago
New to the group
I have had restless legs for 14 years I have been getting treatment from a neurologist. Started with Ropinerol cried the first time I took it because I didn't have any restlessness after the first dose. I didn't know much about it then. The doctor took some labs in the beginning iron was low so
I have had restless legs for 14 years I have been getting treatment from a neurologist. Started with Ropinerol cried the first time I took it because I didn't have any restlessness after the first dose. I didn't know much about it then. The doctor took some labs in the beginning iron was low so
Hidden
in
Restless Legs Syndrome
2 months ago
Vitamins
Can anyone remind me please why it is necessary to take a full Bcomplex if one often has low folate and also struggles to maintain B12 ? I went on holiday recently and forgot to take my BComplex but had my Folate/B12 drops with me so just took those as a stopgap. I actually felt better than when I
Can anyone remind me please why it is necessary to take a full Bcomplex if one often has low folate and also struggles to maintain B12 ? I went on holiday recently and forgot to take my BComplex but had my Folate/B12 drops with me so just took those as a stopgap. I actually felt better than when I
SilverSavvy
in
Thyroid UK
9 months ago
Blood results help
Currently undiagnosed but feeling awful, sore muscles, fatigue, hoarse voice, dry hair and skin, eyebrow loss on the outer third, constipation etc. My TSH was tested in September for some GI issues which turned out to be lactose related and it was 2.9 (ref 0.5-5.5) These are my results from last week
Currently undiagnosed but feeling awful, sore muscles, fatigue, hoarse voice, dry hair and skin, eyebrow loss on the outer third, constipation etc. My TSH was tested in September for some GI issues which turned out to be lactose related and it was 2.9 (ref 0.5-5.5) These are my results from last week
Chillibilli
in
Thyroid UK
2 months ago
Changing room Chat. May. Week 3... Too HOT to Handle?
Hello everyone. Here we are once more...still at the Yoga Studio, but today... the windows are wide open, the shades are drawn and it is wonderfully cool. The weather, for a fair few of us, is changing, and as usual with the UK weather, it can take a bit of getting used to, From chilly winds, and
Hello everyone. Here we are once more...still at the Yoga Studio, but today... the windows are wide open, the shades are drawn and it is wonderfully cool. The weather, for a fair few of us, is changing, and as usual with the UK weather, it can take a bit of getting used to, From chilly winds, and
Oldfloss
Administrator
in
Strength & Flex
2 months ago
B12 serum stains?
They come out of fabric right…right🫠 Tend to SI on my bed, and this week’s linen is a summery off white (in literal linen) that now has red blotches all over it from spilt drops of serum depot🙃🙂 this is fine Thinking of going in with a sponge and white vinegar—is that going to work well?
They come out of fabric right…right🫠 Tend to SI on my bed, and this week’s linen is a summery off white (in literal linen) that now has red blotches all over it from spilt drops of serum depot🙃🙂 this is fine Thinking of going in with a sponge and white vinegar—is that going to work well?
a-wonderful-seed
in
Pernicious Anaemia Society
2 months ago
Help with results please 🙏
Hi, been Hashimotos/hypothyroid about 10 years. Was always on 225mg. Since perimenopause they've dropped me to 150 which I was reluctant but had to do. Stayed like this for 3 years but new Dr, new results - she wants to drop me again. Trying to balance HRT to help all pain and symptoms. Scared of how
Hi, been Hashimotos/hypothyroid about 10 years. Was always on 225mg. Since perimenopause they've dropped me to 150 which I was reluctant but had to do. Stayed like this for 3 years but new Dr, new results - she wants to drop me again. Trying to balance HRT to help all pain and symptoms. Scared of how
Julesb02
in
Thyroid UK
2 months ago
B12 and fatty Liver
Good day friends. I always though B12 helps with the liver issues. Can anyone comment on this study? Says high levels can cause fatty liver https://www.frontiersin.org/articles/10.3389/fnut.2023.1015046/full
Good day friends. I always though B12 helps with the liver issues. Can anyone comment on this study? Says high levels can cause fatty liver https://www.frontiersin.org/articles/10.3389/fnut.2023.1015046/full
Canadian77
in
Pernicious Anaemia Society
2 months ago
Low B12 and ferritin questions
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
bakedbean5007
in
Pernicious Anaemia Society
2 months ago
Input for lab results
I just had my thyroid labs done and just want some input …. Im on 100mcg T4 and 10mcg T3 …. 2 weeks ago I had Iron infusion almost 4 weeks on 50,000 Iu of Vitamin D once a week. FT3: 3.0 (2.0-4.4) THIS NEVER CHANGES FT4: 1.40 (0.82-1.77) this jumped up too T3: 130 (71-180) this jumped up TSH: 0.503
I just had my thyroid labs done and just want some input …. Im on 100mcg T4 and 10mcg T3 …. 2 weeks ago I had Iron infusion almost 4 weeks on 50,000 Iu of Vitamin D once a week. FT3: 3.0 (2.0-4.4) THIS NEVER CHANGES FT4: 1.40 (0.82-1.77) this jumped up too T3: 130 (71-180) this jumped up TSH: 0.503
Batty1
in
Thyroid UK
2 months ago
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