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I have ALL of the symptoms of PA and it is ruining my life. My GPs won't look further.
Hello, I have been suffering for a year with all of the symptoms of PA. My b12 levels have fallen from 550 to 280 within a year... my b12 tests come back low normal or normal and my GP doesn't believe me that I could still have PA - in the form of a functional b12 deficiency. They have been SO quick
Hello, I have been suffering for a year with all of the symptoms of PA. My b12 levels have fallen from 550 to 280 within a year... my b12 tests come back low normal or normal and my GP doesn't believe me that I could still have PA - in the form of a functional b12 deficiency. They have been SO quick
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
Blood work
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Jojomcc
in
Thyroid UK
5 months ago
Thyroid, HRT
2 weeks ago I rang my GP in desperation, I told him I can't go on feeling like this, I asked to try HRT again, he asked what levo I was on was it 100mg, I said no I had increased it, he said he could stop my medication if I was increasing it without him saying I could.He wanted another blood test and
2 weeks ago I rang my GP in desperation, I told him I can't go on feeling like this, I asked to try HRT again, he asked what levo I was on was it 100mg, I said no I had increased it, he said he could stop my medication if I was increasing it without him saying I could.He wanted another blood test and
Dawney63
in
Thyroid UK
5 months ago
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NHS in NI
There are some on here who are absolutely brilliant at advice. . . . Bookish, Narwhal just two of so many who take the time to answer often the same queries over and over. . . . . God Bless all here if it makes any odds. . . . . . The help I have received here has been a godsend But I know NI
There are some on here who are absolutely brilliant at advice. . . . Bookish, Narwhal just two of so many who take the time to answer often the same queries over and over. . . . . God Bless all here if it makes any odds. . . . . . The help I have received here has been a godsend But I know NI
OldmanD
in
Pernicious Anaemia Society
5 months ago
B12 order
Just thought I'd post this info,....All suppliers I tried today were out of the Panpharma b12 Depot ( Hydroxocobalamin ) so, I've ordered Panpharma Cynocobalamin from Apohealth .I was amazed how easy it was to pay them with PayPal plus delivery was only €4.22.....it quoted 3-5days delivery.....fingers
Just thought I'd post this info,....All suppliers I tried today were out of the Panpharma b12 Depot ( Hydroxocobalamin ) so, I've ordered Panpharma Cynocobalamin from Apohealth .I was amazed how easy it was to pay them with PayPal plus delivery was only €4.22.....it quoted 3-5days delivery.....fingers
WWWJAN
in
Pernicious Anaemia Society
5 months ago
Ferritin Questions
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Monkharris
in
Pernicious Anaemia Society
5 months ago
Alendronic acid
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Mercat
in
PMRGCAuk
5 months ago
Test results.. Confused..
Hi. Peeps... Confused about recent blood tests.... My last thyroid test approx 5 months ago i forgot to take my t3 within 12 hrs of test, ( last dose was 4 pm day before am test) so theoretical it may have been lower than it should have been.. Since then i increased my T 3 slightly from 17.5 mcg
Hi. Peeps... Confused about recent blood tests.... My last thyroid test approx 5 months ago i forgot to take my t3 within 12 hrs of test, ( last dose was 4 pm day before am test) so theoretical it may have been lower than it should have been.. Since then i increased my T 3 slightly from 17.5 mcg
MrsClanger
in
Thyroid UK
6 months ago
10yo daughters results…HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Pernicious Anaemia Society
5 months ago
10yo daughters results HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Thyroid UK
5 months ago
What deficiencies could B12 injection cause?
Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini vibrations / electricity / agitation. It's particularly bad in the night and I wake with it. I had worked out that it's tolerable by reducing injection
Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini vibrations / electricity / agitation. It's particularly bad in the night and I wake with it. I had worked out that it's tolerable by reducing injection
Sunnysidoop
in
Pernicious Anaemia Society
5 months ago
Help please
Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to place an order..thanks
Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to place an order..thanks
WWWJAN
in
Pernicious Anaemia Society
5 months ago
B12 expiry date
I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a positive note I took a chance to call my GP surgery for a prescription it must be my lucky year, they said yes!! I had previously saved conversations
I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a positive note I took a chance to call my GP surgery for a prescription it must be my lucky year, they said yes!! I had previously saved conversations
pinkpaddleboarder
in
Pernicious Anaemia Society
5 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Vitamins to help circulation
Leg pain due to low blood circulation. Help with ways to improve circulation.
Leg pain due to low blood circulation. Help with ways to improve circulation.
84withb12d
in
Circulation Foundation
7 months ago
Curious. . . . . Cobalamin Germany
I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the delivery address correct which seems a bit of an uphill battle for some I use Amazon.de. . . . . . Am I the only one . . . . Am I paying
I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the delivery address correct which seems a bit of an uphill battle for some I use Amazon.de. . . . . . Am I the only one . . . . Am I paying
OldmanD
in
Pernicious Anaemia Society
5 months ago
Vitamins or supplement suggestions
Hi, any suggestions will be appreciated.. Looking to see what people are taking & finding beneficial vitiman/supplement wise. I’m taking 10g HU weekly and aspirin daily. I'm pretty fatigued and need a pick me up or a good tonic/vitamin to help. Diagnosed in the latter last year with ET Calr -
Hi, any suggestions will be appreciated.. Looking to see what people are taking & finding beneficial vitiman/supplement wise. I’m taking 10g HU weekly and aspirin daily. I'm pretty fatigued and need a pick me up or a good tonic/vitamin to help. Diagnosed in the latter last year with ET Calr -
RadRuby
in
MPN Voice
7 months ago
Vit C study for this group?
Sanjay Gupta, York cardiologist, has several interesting Youtube vdeos on A F as I am sure you all know. On the vitamin C one he talks about how it might be helpful in reducing AF but big pharma are never going to sponsor a study as there is no money in it for them. He suggests it is something patients
Sanjay Gupta, York cardiologist, has several interesting Youtube vdeos on A F as I am sure you all know. On the vitamin C one he talks about how it might be helpful in reducing AF but big pharma are never going to sponsor a study as there is no money in it for them. He suggests it is something patients
AKatieD
in
Atrial Fibrillation Support
5 months ago
Why I now use Methylcobalamin rather than any other form.
I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them
I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the same method as medication with no regards to effectiveness of healing and therefore not credible. Same with amounts and frequency. It suits them
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Antidepressants
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Pa234aw
in
Pernicious Anaemia Society
5 months ago
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