Vitamins or supplement suggestions

[RadRuby]

Hi, any suggestions will be appreciated..

Looking to see what people are taking & finding beneficial vitiman/supplement wise.

I’m taking 10g HU weekly and aspirin daily.

I'm pretty fatigued and need a pick me up or a good tonic/vitamin to help.

Diagnosed in the latter last year with ET Calr - so still a bit spooked/shocked - but deffo feeling like I need a new multivitamin or something.

thanks in advance

Lil

[hunter5582]

Fatigue is the most common of the MPN constitutional symptoms. Fatigue in the form of asthenia/dyspnea are also a common HU adverse effect. Sometimes timing is the only way to sort out which is which. This is an issue worth reviewing with a MPN Specialist.

Here is some information on dealing with fatigue.

mpnvoice.org.uk/living-with...

mympnteam.com/resources/man...

patientpower.info/myeloprol...

Regarding a nutritional supplement, it might help; however, blindly taking a vitamin is unlikely to do much good. It is worth doing a nutritional assessment to see if you have any deficiencies. My Integrative medicine doc did a full nutritional panel I was found deficient in Vit B/Folate, Vit D, and magnesium. Now taking supplements for all three.

[Joey1025 in reply to hunter5582]

Very useful information. Thank you hunter, always very supportive.

[RadRuby in reply to hunter5582]

Thank you kindly Hunter 🫶🏼

[Roxanne22]

Yes it's important also to be aware that some vits and supps may not suit us with MPNs iron and Vit K are obvious ones which may be included in an overall supp (for example Vit K is often combined with Vit D to aid its absorption but in fact increases clotting too, so a no no for us) Good luck in your efforts to find out more on what your body needs. Meanwhile Vit D without the K, a multi B vit and Vit C would be a good start and generally well received and required in modern life. I have also found a quality CoQ10 to help with fatigue as its assists the energy metabolism (in the cell's mitochondria) making the most of our energy levels - all best wishes to you RadRuby xx

[ainslie in reply to Roxanne22]

As far as I am aware K2 doesn’t increase clotting, K1 maybe

[Carol0925 in reply to ainslie]

I understand this to be correct too. When I informed my Specialist about supplements I’m taking, he wasn’t concerned at all with D3+K2.

[Carol0925 in reply to Roxanne22]

K2 stops the build up of Calcium and transports where needed. My MPN Specialist showed no concerns with me taking combined D3+K2. K1 potentially a concern.

[Roxanne22]

Thanks Ainslie - that is something for further question for us as I know that the Vit k (not sure which one) is often combined with Vit D Supps, and certainly in the Northern hemisphere most of us don't make sufficient Vit D for optimum health in the winter especially - in the summer it's advisable for even fair skinned folk to give themselves 'some' non sunscreen exposure - even if only half an hour a day it makes a big difference. Thank you once again for your reply.

[marlenablue]

I take a multivitamin, turmeric supplement and vitamin D. I try to follow an antiinflammatory diet. I find that when I eat beets, I feel amazing!