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NHS stopping B12
Why are they doing this???
Why are they doing this???
Donny21
in
Pernicious Anaemia Society
1 month ago
HU side affects
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the Hydroxycarbamide that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the Hydroxycarbamide that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Birdlady2021
in
MPN Voice
1 month ago
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Wendy39
in
LUPUS UK
1 month ago
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High Ferritin - suspected Graves
Hi I have posted before. Please click on profile for past posts I'm being investigated for Graves disease, I'm type 2 diabetic ( in remission) only med I take is 10mg daily Carbimazole since January 2024. I wanted to keep a check my Thyroid levels but mainly vitamin levels. These are the results of
Hi I have posted before. Please click on profile for past posts I'm being investigated for Graves disease, I'm type 2 diabetic ( in remission) only med I take is 10mg daily Carbimazole since January 2024. I wanted to keep a check my Thyroid levels but mainly vitamin levels. These are the results of
Gutsy2
in
Thyroid UK
1 month ago
Good News
Thought I should share this...after getting my shocking news of HF in December 2022 due to cause "unknown".....my EF was 37...when you get this diagnosis it is very frightening..LBBB..I was prescribed Entresto and Bisoprolol..my first dosages were higher than I could tolerate..and my BP and pulse were
Thought I should share this...after getting my shocking news of HF in December 2022 due to cause "unknown".....my EF was 37...when you get this diagnosis it is very frightening..LBBB..I was prescribed Entresto and Bisoprolol..my first dosages were higher than I could tolerate..and my BP and pulse were
Elsabounre
in
British Heart Foundation
1 month ago
At A Loss
Hi, I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working. I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I
Hi, I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working. I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I
Dottie44
in
Thyroid UK
1 month ago
Serum ferritin too high?
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Krysagnes
in
Pernicious Anaemia Society
1 month ago
absorbing b12 in cells with liquid sublingual on days not injecting
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
Face swelling on the left side
I am Hypothyroid/Hashimoto's and insulin resistant and vitamin D and B-12 deficient Just wondering - what would cause the left side of your face to swell. It comes and goes. Been to the dentist several times thinking it was a tooth. But no. Its not a dental issue any ideas?
I am Hypothyroid/Hashimoto's and insulin resistant and vitamin D and B-12 deficient Just wondering - what would cause the left side of your face to swell. It comes and goes. Been to the dentist several times thinking it was a tooth. But no. Its not a dental issue any ideas?
marchm2016
in
Thyroid UK
1 month ago
Lack of Information
I just recently found out I am in Stage 3b. I am a 71 year old female. If I hadn't pointed out my unusual lab results to my family doctor, I might still not know. I had been told for years that they were "going to keep an eye on it." Yet no one did. I had to request to see a specialist. Now that
I just recently found out I am in Stage 3b. I am a 71 year old female. If I hadn't pointed out my unusual lab results to my family doctor, I might still not know. I had been told for years that they were "going to keep an eye on it." Yet no one did. I had to request to see a specialist. Now that
JESUSHASGOTTHIS
in
Kidney Dialysis
1 month ago
Blood test results - anxiety
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
ci00aaj
in
Thyroid UK
2 months ago
B12 website - Norway (Norge / Noreg)
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
Sleepybunny
in
Pernicious Anaemia Society
2 months ago
hopefully getting somewhere!!
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
AtoZ24
in
Thyroid UK
2 months ago
Experience with Covid and hypo/hashis
Hi all, I’ve been quite stable for a number of years now. I was on NDT and doing ok but not perfect, adding a small amount of Levo to my NDT at the end of 2019 made me feel really well, pulling my FT4 up in the range a bit made a big difference. At the beginning of May this year I thought I caught
Hi all, I’ve been quite stable for a number of years now. I was on NDT and doing ok but not perfect, adding a small amount of Levo to my NDT at the end of 2019 made me feel really well, pulling my FT4 up in the range a bit made a big difference. At the beginning of May this year I thought I caught
Littledancingtiger
in
Thyroid UK
2 months ago
A Blip in time!
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
Barney50
in
MPN Voice
2 months ago
Could a member please explain the T3 feedback loop?
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
BlueGreenHealer
in
Thyroid UK
2 months ago
GP has asked for data/study on safety of frequent B12 injections
Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her understanding of the recommendation of 1mg per 3 months and anymore is unsafe...arghh! My current GP is asking for information - thank heavens!!
Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her understanding of the recommendation of 1mg per 3 months and anymore is unsafe...arghh! My current GP is asking for information - thank heavens!!
auldreekie
in
Pernicious Anaemia Society
2 months ago
Folate brand
I'm going to start taking Folate, any recommendations for a brand or strength please? Last folate result was: Serum Folate 19.10 range 8.83-60.8
I'm going to start taking Folate, any recommendations for a brand or strength please? Last folate result was: Serum Folate 19.10 range 8.83-60.8
Espeegee
in
Thyroid UK
2 months ago
pernicious anemia
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Lucymay82
in
Pernicious Anaemia Society
2 months ago
After some info on cardio exercise and B12 deficiency.......
I little bit of my B12 history: diagnosed 7½ years ago, been self injecting for 7 years, and am currently SI'ing every 3 days. With this protocol I have no symptoms. I can walk for miles every day, I can do weight training at the gym 2 to 3 times a week, I work, I go out, I have a happy, healthy marriage
I little bit of my B12 history: diagnosed 7½ years ago, been self injecting for 7 years, and am currently SI'ing every 3 days. With this protocol I have no symptoms. I can walk for miles every day, I can do weight training at the gym 2 to 3 times a week, I work, I go out, I have a happy, healthy marriage
BeachArt
in
Pernicious Anaemia Society
2 months ago
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