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Vitamin B12
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Unable to SI
Sorry, slightly off topic. I do my daughters B12 injections for her, she has a needle phobia. She has just come out of hospital since an operation and is required to have 42 days of blood thinning injections, which I do each day at 7pm. There are some days where I really cannot be available.. she
Sorry, slightly off topic. I do my daughters B12 injections for her, she has a needle phobia. She has just come out of hospital since an operation and is required to have 42 days of blood thinning injections, which I do each day at 7pm. There are some days where I really cannot be available.. she
pinkpaddleboarder
in
Pernicious Anaemia Society
9 months ago
New to Peripheral Neuropathy
Hi. Apologies if this question has arisen before but I am new to this site. Shortly after hospitalisation in May for low oxygen I developed PN on the soles of my feet. I have just finished an 8 week course of B12 and go to the surgery for a blood test today. My feet seem to be improving but very, very
Hi. Apologies if this question has arisen before but I am new to this site. Shortly after hospitalisation in May for low oxygen I developed PN on the soles of my feet. I have just finished an 8 week course of B12 and go to the surgery for a blood test today. My feet seem to be improving but very, very
Headoverheels
in
Neuropathy Support
9 months ago
Help please
Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?
Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?
Popcorn12345
in
Pernicious Anaemia Society
2 months ago
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Levo being reduced, but feeling under medicated.
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Bbmamma
in
Thyroid UK
5 months ago
Surgeon in Liverpool as requested thyroid bloods and thyroid antibodies 🤗
Hi everyone ❤️ Just posting this, as some members who have been following my struggle with thyroid medication these past 4 years, I decided to discontinue the T4 teva, the silly endo put me back on after taking me off the t3 which was not working due to gastric issues, forgetting also that teva t4 did
Hi everyone ❤️ Just posting this, as some members who have been following my struggle with thyroid medication these past 4 years, I decided to discontinue the T4 teva, the silly endo put me back on after taking me off the t3 which was not working due to gastric issues, forgetting also that teva t4 did
birkie
in
Thyroid UK
5 months ago
Hi all
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
Doris11
in
Pernicious Anaemia Society
5 months ago
Serum B12 level question
Having read some recent posts regarding B12, I checked my last results.In May 2022 my serum B12 blood test result was 345ng/L range 180-999 I started supplementing liquid B12 around Xmas 2023 . In April 2024 my serum B12 blood test result was 1952ng/L range 180-999. Following the last result, my
Having read some recent posts regarding B12, I checked my last results.In May 2022 my serum B12 blood test result was 345ng/L range 180-999 I started supplementing liquid B12 around Xmas 2023 . In April 2024 my serum B12 blood test result was 1952ng/L range 180-999. Following the last result, my
DandyButch
in
Thyroid UK
2 months ago
Do I need to increase folic acid/folate intake with B12 shots?
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
JazzSoprano
in
Pernicious Anaemia Society
5 months ago
Alcohol and B12/folate deficiency
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
ClaireWF1346
in
Pernicious Anaemia Society
5 months ago
Recent bloods .. help
Hi everyone Been having problems over years on levothyroxine , think conversion low . Decided to see private endo for t3 supplementing as nhs would not prescribe . Since December 23 , he lowered my thyroxine dose which was then 125 /150 alternate days but I was having most of the typical hypo symptoms
Hi everyone Been having problems over years on levothyroxine , think conversion low . Decided to see private endo for t3 supplementing as nhs would not prescribe . Since December 23 , he lowered my thyroxine dose which was then 125 /150 alternate days but I was having most of the typical hypo symptoms
Mazste97
in
Thyroid UK
5 months ago
Filter needles for methylcobalamin
Do you use filter needles to draw up your B12? If so, where do you get them? I just received my dry methylcobalamin and normal saline ampules, and I mixed it up but then I started to worry about drawing up glass in the syringe. I'm not sure how likely this is. Is it a big risk to do it without a filter
Do you use filter needles to draw up your B12? If so, where do you get them? I just received my dry methylcobalamin and normal saline ampules, and I mixed it up but then I started to worry about drawing up glass in the syringe. I'm not sure how likely this is. Is it a big risk to do it without a filter
prettypear
in
Pernicious Anaemia Society
10 months ago
B12 injections impact on other medical tests
Hello all I recently posted about this and only got one reply so carried on researching and ….. I have stumbled across this pdf on the New Zealand govt website. It is a Panpharma pdf for hydroxycobalamin. https://www.medsafe.govt.nz/profs/Datasheet/h/HydroxocobalaminPanpharmainj.pdf It specifies
Hello all I recently posted about this and only got one reply so carried on researching and ….. I have stumbled across this pdf on the New Zealand govt website. It is a Panpharma pdf for hydroxycobalamin. https://www.medsafe.govt.nz/profs/Datasheet/h/HydroxocobalaminPanpharmainj.pdf It specifies
Rosydawn
in
Pernicious Anaemia Society
10 months ago
help please
Max is 23 Was 52 I tested negative to antibodies before the TPO etc I feel exhausted with bone pain Vit D 77
Vitamin
b12
max 799 Ferritin 60 I can’t even stand up
Max is 23 Was 52 I tested negative to antibodies before the TPO etc I feel exhausted with bone pain Vit D 77
Vitamin
b12
max 799 Ferritin 60 I can’t even stand up
Chouchou1234
in
Thyroid UK
1 year ago
Coronary artery calcification, osteoporosis and B12 deficiency- what to do next ?
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
10 months ago
B12 supplementation query
My active B12 level in 2022 was 66.1 pmol/L and following advice on our wonderful forum I began taking Thorne basic B complex. This raised my levels to 78.6 pmol/L in 2023. This year my B12 level is 76.3 pmol/L. So it hasn't continued to increase to the recommended 100 pmol/L. For the past ten days
My active B12 level in 2022 was 66.1 pmol/L and following advice on our wonderful forum I began taking Thorne basic B complex. This raised my levels to 78.6 pmol/L in 2023. This year my B12 level is 76.3 pmol/L. So it hasn't continued to increase to the recommended 100 pmol/L. For the past ten days
goingholiday
in
Thyroid UK
2 months ago
Recent blood tests , Vit B 12 and folic acid
B12
- Active 53.4 pmol/L Please note change of reference range 23 Oct 2022 (Range: 37.5 - 188) Vitamin D 95.7 nmol/L Total 25(OH) vitamin D < 25 nmol/L is deficient.
B12
- Active 53.4 pmol/L Please note change of reference range 23 Oct 2022 (Range: 37.5 - 188) Vitamin D 95.7 nmol/L Total 25(OH) vitamin D < 25 nmol/L is deficient.
Syrupafigs
in
Thyroid UK
1 year ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
2 months ago
Blood results within range. Is this a problem?
[/i] [i]I've just had another test (done at 9am) to see how things are, and again all seemed to be within parameters, apart from the
B12
(which I supplement).
[/i] [i]I've just had another test (done at 9am) to see how things are, and again all seemed to be within parameters, apart from the
B12
(which I supplement).
Barny12
in
Thyroid UK
3 months ago
Health Anxiety or MS
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Muef
in
Anxiety and Depression Support
5 months ago
B12 ampules
Why do I have more aches and pains the closer I bring my injection together.also what is the most effective b12
Why do I have more aches and pains the closer I bring my injection together.also what is the most effective b12
Mozza127
in
Pernicious Anaemia Society
2 months ago
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