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Vitamin B12 / Folic acid
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Info needed before sending letter to GP
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
BeachArt
in
Pernicious Anaemia Society
5 months ago
Help needed !
Hello, this is my first post though I am a member and read everything everyday and am so very grateful for all your knowledge and kindness. I was diagnosed with PA in 2015 with a positive IF antibodies test . Lucky eh, 1st time. I had the loading doses then went on to every 2 months ( couldn't manage
Hello, this is my first post though I am a member and read everything everyday and am so very grateful for all your knowledge and kindness. I was diagnosed with PA in 2015 with a positive IF antibodies test . Lucky eh, 1st time. I had the loading doses then went on to every 2 months ( couldn't manage
purpleabc
in
Pernicious Anaemia Society
11 months ago
Questions about TSH and advice on results over the past year much appreciated
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Heybella
in
Thyroid UK
4 months ago
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Daughter, still really not great and cannot get through to medics
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Polo22
in
Pernicious Anaemia Society
4 months ago
Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
7 months ago
Concerned Wife
Hi, hope this is OK to post. My husband has had mild RLS for many years but last weekend his symptoms suddenly became extreme and constant, seemingly out of the blue. For context, he is 30, and has taken antidepressants for many years without any increase in symptoms. He has also been taking amipiprazole
Hi, hope this is OK to post. My husband has had mild RLS for many years but last weekend his symptoms suddenly became extreme and constant, seemingly out of the blue. For context, he is 30, and has taken antidepressants for many years without any increase in symptoms. He has also been taking amipiprazole
Hidden
in
Restless Legs Syndrome
11 months ago
B12 supplement without fillers
I have my injections 8 weekly at my doctors I would like to start taking a daily supplement as well looking for recommendations for high dosage B12 without fillers please hoping this might also help my atrophic gastritis ..worthy of a try !
I have my injections 8 weekly at my doctors I would like to start taking a daily supplement as well looking for recommendations for high dosage B12 without fillers please hoping this might also help my atrophic gastritis ..worthy of a try !
davina70
in
Pernicious Anaemia Society
11 months ago
GP still dosing by TSH - help
My GP doses according to TSH results disregarding any symptoms. Over the past five months I have had to change my dose several times 75, then 75/100 alternate days then to 100, when he saw my TSH was below the lowest level he put me back on 75 without discussing it with me, I had been on this level since
My GP doses according to TSH results disregarding any symptoms. Over the past five months I have had to change my dose several times 75, then 75/100 alternate days then to 100, when he saw my TSH was below the lowest level he put me back on 75 without discussing it with me, I had been on this level since
Watamu
in
Thyroid UK
11 months ago
Errors?
First I have written here often that the more B12 I supplement the less I suffer. That is not an error. However it may be the frequency as whenever I have increased there has also been an increase in frequency. Second I have written that whenever I increase there is a uptick in how I feel followed
First I have written here often that the more B12 I supplement the less I suffer. That is not an error. However it may be the frequency as whenever I have increased there has also been an increase in frequency. Second I have written that whenever I increase there is a uptick in how I feel followed
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
New results after being discharged by endocrinologist.
Hi I will add my previous post but I will also give a quick recap: I first came on with low T4 levels but TSH in range. The doctors did regular tests saying it wasn't being tested properly. I eventually got referred to an endocrinologist. After a while of more testing I was discharged and told that
Hi I will add my previous post but I will also give a quick recap: I first came on with low T4 levels but TSH in range. The doctors did regular tests saying it wasn't being tested properly. I eventually got referred to an endocrinologist. After a while of more testing I was discharged and told that
Moviegeek7
in
Thyroid UK
4 months ago
Advice Needed Following Test Results
I was diagnosed with hypothyroidism in November 2023 and started on a 50mcg dose of Levothyroxine. In March this year, my GP increased this to 75mcg (50mcg Accord and 25mcg Mercury Pharma). This week I took a private blood test to check my latest thyroid and vitamin status. These are my latest thyroid
I was diagnosed with hypothyroidism in November 2023 and started on a 50mcg dose of Levothyroxine. In March this year, my GP increased this to 75mcg (50mcg Accord and 25mcg Mercury Pharma). This week I took a private blood test to check my latest thyroid and vitamin status. These are my latest thyroid
slblue7629
in
Thyroid UK
3 months ago
An Enlightening Endocrine Adventure
After appeasing an endocrinologist worried about my suppressed TSH by a cunning lab trick -- withholding NDT for three days before going for the blood work -- I realized I needed to titrate up the dose. Many thanks to those who replied with their NDT experience. I cranked it up to nearly double what
After appeasing an endocrinologist worried about my suppressed TSH by a cunning lab trick -- withholding NDT for three days before going for the blood work -- I realized I needed to titrate up the dose. Many thanks to those who replied with their NDT experience. I cranked it up to nearly double what
RockyPath
in
Thyroid UK
2 months ago
confused re meds
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Cooper02
in
PMRGCAuk
4 months ago
Parkinson’s: A friend asked for advice to give a friend
1) Don’t start Carbidopa/Levodopa or change. (I won’t say don’t follow doctor’s instructions, but most doctors are not aware of HDT and please discuss with your doctors, mine says if helps—great, and I have had changed her instructions via discussion.) 2) Read Dap1948's book “Parkinson’s and the
1) Don’t start Carbidopa/Levodopa or change. (I won’t say don’t follow doctor’s instructions, but most doctors are not aware of HDT and please discuss with your doctors, mine says if helps—great, and I have had changed her instructions via discussion.) 2) Read Dap1948's book “Parkinson’s and the
Gcf51
in
Cure Parkinson's
7 months ago
I would love to see a Clinical Trial on TTFD
I gave up on TTFD (thiamine tetrahydrofurfuryl disulfide - a B1 derivative) because; I would settle in on a sweet-spot, within a few weeks I would overdose, I lowered my dose and repeated again & again. Thinking maybe that wouldn’t be a bad thing — could it be a cure and would I get down to just recommended
I gave up on TTFD (thiamine tetrahydrofurfuryl disulfide - a B1 derivative) because; I would settle in on a sweet-spot, within a few weeks I would overdose, I lowered my dose and repeated again & again. Thinking maybe that wouldn’t be a bad thing — could it be a cure and would I get down to just recommended
Gcf51
in
Cure Parkinson's
7 months ago
merry Christmas please help - do I reduce the medication due to bones?
hi all My stomach finally working but found out osteoporosis is severe Do I reduce my medication? T3 - 6.3 but that was 10 hours after last dose T4 21 (12 to 22) Tsh less than 0.01 please advise as in a pickle - I don’t convert at all it seems before starting t3 my t3 was 2.1 (4.1 to 6.8
hi all My stomach finally working but found out osteoporosis is severe Do I reduce my medication? T3 - 6.3 but that was 10 hours after last dose T4 21 (12 to 22) Tsh less than 0.01 please advise as in a pickle - I don’t convert at all it seems before starting t3 my t3 was 2.1 (4.1 to 6.8
Chouchou1234
in
Thyroid UK
7 months ago
Increase T4 or stick and natural antidepressants?
Good morning lovely people. Wonder if I could have some advise please? Latest blood results from MMH (eventually!) 4/3/24. FT3 6 (3.1-6.8) FT4 13.9 (12-22) TSH 0.23 (0.27-4.2) Taking 20mcg Thybon Henning and 75mcg 3 days and 50mcg 4 days of Levo Medichecks 15/1/24 FT3 5.1 (3.1-6.8) FT4 12.2 (
Good morning lovely people. Wonder if I could have some advise please? Latest blood results from MMH (eventually!) 4/3/24. FT3 6 (3.1-6.8) FT4 13.9 (12-22) TSH 0.23 (0.27-4.2) Taking 20mcg Thybon Henning and 75mcg 3 days and 50mcg 4 days of Levo Medichecks 15/1/24 FT3 5.1 (3.1-6.8) FT4 12.2 (
Auders
in
Thyroid UK
4 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
2 months ago
Adding more T3? or keep as is?
Hello All, I am looking to see any suggestions regarding adding more T3 to my current regimen. I am on 175 Tirosint T4 and 10mcg T3; I have Hashimoto’s and have been working on my iron by adding iron bisglycinate, which has helped as I am not dizzy, lightheaded, and have more focus. I also noticed
Hello All, I am looking to see any suggestions regarding adding more T3 to my current regimen. I am on 175 Tirosint T4 and 10mcg T3; I have Hashimoto’s and have been working on my iron by adding iron bisglycinate, which has helped as I am not dizzy, lightheaded, and have more focus. I also noticed
Kava3
in
Thyroid UK
4 months ago
Taking Metformin?
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
Thyroid UK
in
Thyroid UK
10 months ago
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