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Vitamin B12 / Folic acid
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Wondering if iron dose age should vary depending on weight please?
Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows which is on its way, it asks for weight to work out a daily dose. Mine came to needing between 20 and 40ish a day. I’ve been & until it arrives
Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows which is on its way, it asks for weight to work out a daily dose. Mine came to needing between 20 and 40ish a day. I’ve been & until it arrives
Jo5454
in
Pernicious Anaemia Society
28 days ago
Catsmud
I had my b12 3 weeks ago but 4 days ago started to have head rushes and dizziness bout 5 times throughout the day really scary especially driving doesn’t last more than seconds leaves me with headache is this a side effect.. or would it happen if it was a different batch of serum maybe
I had my b12 3 weeks ago but 4 days ago started to have head rushes and dizziness bout 5 times throughout the day really scary especially driving doesn’t last more than seconds leaves me with headache is this a side effect.. or would it happen if it was a different batch of serum maybe
Catsmud
in
Pernicious Anaemia Society
9 months ago
help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
5 months ago
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Grandmother, 88 being denied B12 injections
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
TMur1990
in
Pernicious Anaemia Society
9 months ago
Higher CSF/serum free-T4 ratio is associated with improvement of quality of life during treatment with L-thyroxine
An interesting paper. Note a parallel with Pernicious Anaemia/B12 deficiency in which some have low CSF B12 while having high serum B12. Asking the question, though the answer is almost certan, has anyone ever had their CSF thryoid hormone levels tested? On Twitter: [i]Johannes W. Dietrich @drjwdietrich
An interesting paper. Note a parallel with Pernicious Anaemia/B12 deficiency in which some have low CSF B12 while having high serum B12. Asking the question, though the answer is almost certan, has anyone ever had their CSF thryoid hormone levels tested? On Twitter: [i]Johannes W. Dietrich @drjwdietrich
helvella
Thyroid UK
in
Thyroid UK
9 months ago
Anyone with alendronate side effects?
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
ohsuzyq
in
Osteoporosis Support
8 months ago
Results
Opinions please gratefully received TSH. 0.13. (0.27- 4.2) Free T4. 16.8 ( 10 - 21) Folate 3.7 (1.5 - 20) B12. 324. ( 180 - 2000 )
Opinions please gratefully received TSH. 0.13. (0.27- 4.2) Free T4. 16.8 ( 10 - 21) Folate 3.7 (1.5 - 20) B12. 324. ( 180 - 2000 )
foamfollower
in
Thyroid UK
5 months ago
Changing from Levo to NDT - dosing advice needed
Hello everyone, I'm looking for advice on dosing - switching from levothyroxine 75mcg to NDT (most probably ERFA or Thyroid S) but I've been advised by pennyannie that ERFA might be best as I have hashimotos. So what should I aim to be on with NDT? My vitamin levels are good as I supplement with Vit
Hello everyone, I'm looking for advice on dosing - switching from levothyroxine 75mcg to NDT (most probably ERFA or Thyroid S) but I've been advised by pennyannie that ERFA might be best as I have hashimotos. So what should I aim to be on with NDT? My vitamin levels are good as I supplement with Vit
Jenyren
in
Thyroid UK
5 months ago
Thyroid medication update
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
Nora3
in
Thyroid UK
9 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
Suesue246
in
Pernicious Anaemia Society
9 months ago
New to the forum
Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes so painful, it actually spurred me into going to the GPs, after a several visits and many blood tests, i was told I have PA. I was given the
Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes so painful, it actually spurred me into going to the GPs, after a several visits and many blood tests, i was told I have PA. I was given the
polarbear69
in
Pernicious Anaemia Society
9 months ago
Correct me if I am wrong. Please
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
t12 and calcium supplement
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
Radars
in
Bone Health and Osteoporosis UK
8 months ago
Canker Sores/Mouth ulcer
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Tramezzini
in
PBC Foundation
9 months ago
My doctors won’t investigate
Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L (low) and in my FBC my MCV is 95.5 (just below higher cut off) and MCH is 32.1 (slightly high - comment on blood test is ‘no action despite having
Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L (low) and in my FBC my MCV is 95.5 (just below higher cut off) and MCH is 32.1 (slightly high - comment on blood test is ‘no action despite having
Lorynne
in
Pernicious Anaemia Society
2 months ago
After 16 days into a 1/8gr NDT increase im starting to feel worse (did feel better for it) is this T4 kicking in or its converted T3 ?
Hi All, I was feeling better for 2 weeks on an 1/8 gr NDT increase from 1 1/4gr pr dy to 1 3/8gr pr dy. Day 16 and im starting to sweat at night, feel jittery inside which wears off 7 hours after meds. Would this be the additional T4 thats effecting me or the additional T3 thats coverted from the
Hi All, I was feeling better for 2 weeks on an 1/8 gr NDT increase from 1 1/4gr pr dy to 1 3/8gr pr dy. Day 16 and im starting to sweat at night, feel jittery inside which wears off 7 hours after meds. Would this be the additional T4 thats effecting me or the additional T3 thats coverted from the
Gillybean1
in
Thyroid UK
5 months ago
😩 STRESS
I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12 ampoules I've just found out the named person is a receptionist at my new surgery . ( old one closed ) It was cancelled on starting there then
I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12 ampoules I've just found out the named person is a receptionist at my new surgery . ( old one closed ) It was cancelled on starting there then
Nackapan
in
Pernicious Anaemia Society
9 months ago
B12 Injections and Folic Acid question
Hi! I am starting my course of B12 injections on Monday and my GP also gave me a prescription for folic acid tablets too but said not to start them until my injections. I just wondered, did anyone else take folic acid with their injections and when did you start? On day one of the injections? My prescription
Hi! I am starting my course of B12 injections on Monday and my GP also gave me a prescription for folic acid tablets too but said not to start them until my injections. I just wondered, did anyone else take folic acid with their injections and when did you start? On day one of the injections? My prescription
Hidden
in
Pernicious Anaemia Society
5 months ago
Out of Kilter
Blood Test Results: 18.09.23 Serum Vitamin B12 183 (145-169) Serum Folate 25.4 (8.8-60.8) Serum Iron Level 23.9 (5.8-34.5) Serum Transferrin 2.1 (2.0-3.6) Transferrin Saturation Index 45% (15-45) Serum Ferritin 71 (13-150) Serum 25-HO vit D3 level 79 (no range) 30.11.23 TSH <0.02 (0.27-4.20
Blood Test Results: 18.09.23 Serum Vitamin B12 183 (145-169) Serum Folate 25.4 (8.8-60.8) Serum Iron Level 23.9 (5.8-34.5) Serum Transferrin 2.1 (2.0-3.6) Transferrin Saturation Index 45% (15-45) Serum Ferritin 71 (13-150) Serum 25-HO vit D3 level 79 (no range) 30.11.23 TSH <0.02 (0.27-4.20
AppleOrchard
in
Thyroid UK
5 months ago
iron infusion + b12 injection side effects
Had my iron infusion and first B12 injection yesterday and this evening I have diarrhoea. Anyone else had this side effect after?
Had my iron infusion and first B12 injection yesterday and this evening I have diarrhoea. Anyone else had this side effect after?
Chickens44
in
Pernicious Anaemia Society
2 months ago
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