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Vitamin B12 / Folic acid
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Alendronic acid
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Caulkhead63
in
PMRGCAuk
27 days ago
Can B12 Injections Give Muscle Twitches?
Good day Good people of this forum. I recently started more aggressive B12 injections, 1cc every other day. I have been having small muscle twitches for last 2+ years but noticed then being worse since I started injecting more B12 Any thoughts?
Good day Good people of this forum. I recently started more aggressive B12 injections, 1cc every other day. I have been having small muscle twitches for last 2+ years but noticed then being worse since I started injecting more B12 Any thoughts?
Canadian77
in
Pernicious Anaemia Society
5 months ago
Can b12 injections make you VERY very thirsty?
Hey, me again, Can b12 injections make you very thirsty all the time? Reversing out - having internal tremors, nausea, VERY thirsty, muscle tightness, some palpitations, and my anxiety is absolutely through the roof. Help! Any advice is appreciated 🙏🏼
Hey, me again, Can b12 injections make you very thirsty all the time? Reversing out - having internal tremors, nausea, VERY thirsty, muscle tightness, some palpitations, and my anxiety is absolutely through the roof. Help! Any advice is appreciated 🙏🏼
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
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Thyroid question please...
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Suffering_sunny
in
Thyroid UK
5 months ago
B12 and Ferritin
I said I would post after my haematology consultation. I had a ferritin infusion in February after suspecting that I was ferritin/iron deficient as a result of research into ranges etc. I discovered that 30 can be regarded as ferritin deficient, a lot more than the bottom of the range 11 regarded as
I said I would post after my haematology consultation. I had a ferritin infusion in February after suspecting that I was ferritin/iron deficient as a result of research into ranges etc. I discovered that 30 can be regarded as ferritin deficient, a lot more than the bottom of the range 11 regarded as
Orchard33
in
Pernicious Anaemia Society
5 months ago
Thorne Basic B Alternative
Good morning team! I started taking Thorne Basic B yesterday and I am not reacting well to it. My private blood results should be back today and I'll hold off purchasing anything else until then but I was hoping someone could recommend a complex with lower dosages, please? I don't know if it's the
Good morning team! I started taking Thorne Basic B yesterday and I am not reacting well to it. My private blood results should be back today and I'll hold off purchasing anything else until then but I was hoping someone could recommend a complex with lower dosages, please? I don't know if it's the
Opposite
in
Thyroid UK
5 months ago
Blood Test Results
Hi I have trouble getting a GP appointment - in that I never get one. Test results are relayed via the receptionist so never any opportunity to ask questions. This is the latest test and as a result I've been told to vary my dose (normally 125mcg) taking 100mcg alternate days, 125mcg on the others.
Hi I have trouble getting a GP appointment - in that I never get one. Test results are relayed via the receptionist so never any opportunity to ask questions. This is the latest test and as a result I've been told to vary my dose (normally 125mcg) taking 100mcg alternate days, 125mcg on the others.
Polly8855
in
Thyroid UK
5 months ago
long term omeprazole use
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
Chickens44
in
Pernicious Anaemia Society
5 months ago
Origin of Loading
Does anyone know the origin of the practice of prescribing loading doses? For lack of better information I have been using the assumption that it is a hol over from when B12 was first synthesized over 1/2 a century ago. That the practice originated when B12 deficiency was thought to be a hematological
Does anyone know the origin of the practice of prescribing loading doses? For lack of better information I have been using the assumption that it is a hol over from when B12 was first synthesized over 1/2 a century ago. That the practice originated when B12 deficiency was thought to be a hematological
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Please Take Note.....
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Just a moan - appointment cancelled
So just need a quick rant to people who understand so I can move on and get on with my day. Booked my 8 weekly jab no options on the day only 2 days before or a week late, was told they'd have to message the GP for permission to book early so I explained that by a week late I will be feeling very ill
So just need a quick rant to people who understand so I can move on and get on with my day. Booked my 8 weekly jab no options on the day only 2 days before or a week late, was told they'd have to message the GP for permission to book early so I explained that by a week late I will be feeling very ill
Clare184
in
Pernicious Anaemia Society
5 months ago
symptoms flare-up
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
MuppDog
in
Pernicious Anaemia Society
5 months ago
Posted on The PBC Foundation FB page
Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here:
Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here:
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Alendronic acid for oa ?
Having had a dexa scan, my doctor wants me to take Alendrolic acid, once a week 75 mg. Having read the leaflet, it says not to take steroids whilst using? I have at least 4 lung infections every year and prednisolone has to be taken with antibiotics and dies help a lot. I am concerned that I can’t
Having had a dexa scan, my doctor wants me to take Alendrolic acid, once a week 75 mg. Having read the leaflet, it says not to take steroids whilst using? I have at least 4 lung infections every year and prednisolone has to be taken with antibiotics and dies help a lot. I am concerned that I can’t
Shalz
in
Lung Conditions Community Forum
1 month ago
I Don't Want to Inject
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Advice needed
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
bohica666
in
Endometriosis UK
1 month ago
A One Time Experience
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Erasing Bad Memories Boosts Long-Term Parkinson's Care
Erasing Bad Memories Boosts Long-Term Parkinson's Care 9 July 2024
https://www.miragenews.com/erasing-bad-memories-boosts-long-term-1271295/ University of Alabama at Birmingham BIRMINGHAM, Ala. — Common treatments for Parkinson's disease can address short-term symptoms but can also cause extensive
Erasing Bad Memories Boosts Long-Term Parkinson's Care 9 July 2024
https://www.miragenews.com/erasing-bad-memories-boosts-long-term-1271295/ University of Alabama at Birmingham BIRMINGHAM, Ala. — Common treatments for Parkinson's disease can address short-term symptoms but can also cause extensive
Bolt_Upright
in
Cure Parkinson's
1 month ago
creatine monohydrate
I have been reading a lot of posts regarding creatine and if it's safe to take it,I have locally advanced prostate cancer psa 0.04 my testosterone has never recovered since finishing treatment rt/ht 2016,and my testosterone has never recovered and now I have osteoporosis, I have had 2 infusions of zoledronic
I have been reading a lot of posts regarding creatine and if it's safe to take it,I have locally advanced prostate cancer psa 0.04 my testosterone has never recovered since finishing treatment rt/ht 2016,and my testosterone has never recovered and now I have osteoporosis, I have had 2 infusions of zoledronic
Radars
in
Bone Health and Osteoporosis UK
1 month ago
Please share experience or advice re Risedronic acid and zoledronic acid use for low T score/ osteoporosis in GCA/PMR.
I have recently had a follow up Dexa scan. The last one was 2 years ago. I have GCA and PMR. At 20 mg pred and reducing after a recent flare of GCA. The scan has shown a significant deterioration in my lumbar spine but not in my hips/femur region which are still osteopenic. L1-L4 5/6/2024. BMD
I have recently had a follow up Dexa scan. The last one was 2 years ago. I have GCA and PMR. At 20 mg pred and reducing after a recent flare of GCA. The scan has shown a significant deterioration in my lumbar spine but not in my hips/femur region which are still osteopenic. L1-L4 5/6/2024. BMD
Golfers1
in
PMRGCAuk
1 month ago
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