Search
Search
About
Log in
Join
Experiences with
Vitamin B12 / Folic acid
Posts
Communities
51,307 public posts
Filter results
USA Travel
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
MrsTuft
in
Pernicious Anaemia Society
4 months ago
Feeling worse
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Cabbages123
in
Thyroid UK
4 months ago
Vestibular Neuritis
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Ipsofacto01
in
Pernicious Anaemia Society
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
update
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
6236
in
Restless Legs Syndrome
4 months ago
How quickly would B12 Levels drop post injection?
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Sparkleros
in
Pernicious Anaemia Society
4 months ago
Hello everyone 😊
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Elizajoe102
in
Thyroid UK
4 months ago
Is 3 times enough? And inherit.
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
MrJustatip
in
Pernicious Anaemia Society
4 months ago
Help with b12 deficiency
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
Vegan10
in
Changing Faces
4 months ago
Hello and happy new year everyone!! Aching legs when I walk more then 50 yards (in a nutshell)!!
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
sheenah
in
Thyroid UK
4 months ago
Tablets v Injections
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Redmusic
in
Pernicious Anaemia Society
4 months ago
Hello!
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hidden
in
Pernicious Anaemia Society
4 months ago
IBS and B12
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
Ctadds1
in
Pernicious Anaemia Society
4 months ago
Recent blood results, help interpreting
I used to get this sometimes when my thyroid levels were bad, but I'm wondering whether these symptoms can be caused by overdosing in
B12
,
folic
acid
, selenium or
vitamin
D?
I used to get this sometimes when my thyroid levels were bad, but I'm wondering whether these symptoms can be caused by overdosing in
B12
,
folic
acid
, selenium or
vitamin
D?
thyroidqueen12
in
Thyroid UK
4 months ago
NICE Guidelines Delay?
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
RoseFlowerDew
in
Pernicious Anaemia Society
4 months ago
Iron and B12
Just caught the back end of a TV programme where a "doctor" was advising that an iron deficiency and vit B12 deficiency may be the cause of peoples T issues. Anyone been down this route or have I misheard the TV? Tried using search function in the forum but never found anything TIA
Just caught the back end of a TV programme where a "doctor" was advising that an iron deficiency and vit B12 deficiency may be the cause of peoples T issues. Anyone been down this route or have I misheard the TV? Tried using search function in the forum but never found anything TIA
mingsbeard
in
Tinnitus UK
4 months ago
Blood results
Have recently had a private blood test done to check my B12, results were 47.4 (range 37.5-188) It was an active B12 test. Notes from doctor were it is borderline, and for me to get a mma blood test next, is this something the gp will do for me even though my results are not low?
Have recently had a private blood test done to check my B12, results were 47.4 (range 37.5-188) It was an active B12 test. Notes from doctor were it is borderline, and for me to get a mma blood test next, is this something the gp will do for me even though my results are not low?
Kayls32
in
Pernicious Anaemia Society
4 months ago
best place for b12 ampoules
well now I know my out of date stock isn’t worth using where are people buying their b12 for injections? I last bought before the final brexit from Germany but prices have gone through the roof!
well now I know my out of date stock isn’t worth using where are people buying their b12 for injections? I last bought before the final brexit from Germany but prices have gone through the roof!
Mag999
in
Pernicious Anaemia Society
4 months ago
Daughter thyroid results
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
PennB
in
Thyroid UK
4 months ago
rotexmedica bbe dates
hi I have several boxes of b12 ampoules which are best before 02/24. Is it safe to carry on using it? Thanks.
hi I have several boxes of b12 ampoules which are best before 02/24. Is it safe to carry on using it? Thanks.
Mag999
in
Pernicious Anaemia Society
4 months ago
Feeling anxious about appointment....
Just wondering if anyone can shed any information that may help me understand. I've been unwell most of 2023, was in hospital for 8 days with suspected pneumonia. Prior to this I've had abnormal blood tests for a while. I'm anemic but my iron levels, vitamin b12 levels are fine... I've had a number
Just wondering if anyone can shed any information that may help me understand. I've been unwell most of 2023, was in hospital for 8 days with suspected pneumonia. Prior to this I've had abnormal blood tests for a while. I'm anemic but my iron levels, vitamin b12 levels are fine... I've had a number
Suncheek1991
in
Early CKD Support
4 months ago
1
...
20
21
22
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
21369 results
Pernicious Anaemia Society
13003 results
Cure Parkinson's
1533 results
View top 10 communities
Sort by
Most Relevant
Newest