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good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
5 months ago
ALENDRONIC ACID
Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x
Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x
Purple4710
in
NRAS
2 months ago
Ask Your Questions
Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife
Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
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I haven't posted for a while....
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Mmrr
in
NRAS
2 months ago
Alendronic Acid
I have been taking the above for 5 years and until a visit to my Dentist to have a loose tooth removed, I wasn't aware taking it can cause dental problems and hair loss.How long should it be taken for? Christine
I have been taking the above for 5 years and until a visit to my Dentist to have a loose tooth removed, I wasn't aware taking it can cause dental problems and hair loss.How long should it be taken for? Christine
Purple4710
in
NRAS
2 months ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
5 months ago
Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
5 months ago
Alendronic acid
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Caulkhead63
in
PMRGCAuk
2 months ago
Nd Thyroid to thyroxine
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Bridb
in
Thyroid UK
5 months ago
Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
5 months ago
A weird dynamic.
When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by a downturn of 5 +- days which I assume is my body healing which is hard on my body and I need a lot of rest. This dynamic was not apparent until
When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by a downturn of 5 +- days which I assume is my body healing which is hard on my body and I need a lot of rest. This dynamic was not apparent until
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
stomach polyps
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Bacca
in
Pernicious Anaemia Society
5 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
5 months ago
It’s ok to be deficient if you inflicted it upon yourself..
Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the use of b12 injections. Self administered. Daily!! Even providing an instruction video to show how easy and convenient it is to do. I can only
Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the use of b12 injections. Self administered. Daily!! Even providing an instruction video to show how easy and convenient it is to do. I can only
MorningMist
in
Pernicious Anaemia Society
5 months ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
5 months ago
Methyl or Hydro B12 injections - is it safe to switch between both each month?
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
LaraPA
in
Pernicious Anaemia Society
5 months ago
How long will this last for?
Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain wouldn’t allow me keep going. I also started noticing trembling, tingling, pins and needles and headaches/migraines. I reached the point that I was
Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain wouldn’t allow me keep going. I also started noticing trembling, tingling, pins and needles and headaches/migraines. I reached the point that I was
Peacelily24
in
Pernicious Anaemia Society
5 months ago
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
5 months ago
TPO high, GP not helpful, and I’m looking for advice
Hello, Sorry if this is a bit long. I have been struggling with symptoms of hypothyroidism for about 5 - 6 years. I also have a long family history of hypothyroidism and all of my female relatives battled their way to a diagnosis, and I seem to be following suit. Just before covid struck, my then
Hello, Sorry if this is a bit long. I have been struggling with symptoms of hypothyroidism for about 5 - 6 years. I also have a long family history of hypothyroidism and all of my female relatives battled their way to a diagnosis, and I seem to be following suit. Just before covid struck, my then
TheMudRunner
in
Thyroid UK
5 months ago
Please Take Note.....
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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