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Experiences with
Vitamin B12 deficiency
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Started Interferon
About two weeks ago I put a post on here about my anxiety around changing my treatment plan from Hydroxy to Peg Interferon. I had been sent the vaccine but not given any specific instruction about how to self inject. I appreciated the advice I was given from others who had trodden this path before
About two weeks ago I put a post on here about my anxiety around changing my treatment plan from Hydroxy to Peg Interferon. I had been sent the vaccine but not given any specific instruction about how to self inject. I appreciated the advice I was given from others who had trodden this path before
Reggieroo
in
MPN Voice
28 days ago
Peptic Liquid/ Gaviscon & B12 Injections
Hello! I was diagnosed with low B12 at the end of last year and on 3 monthly injections at my GP surgery… following a visit to my ENT consultant for ongoing ear issues and horrendous hay fever, he diagnosed me with silent reflux and suggested Gaviscon.. my question is, when I have my B12 injection would
Hello! I was diagnosed with low B12 at the end of last year and on 3 monthly injections at my GP surgery… following a visit to my ENT consultant for ongoing ear issues and horrendous hay fever, he diagnosed me with silent reflux and suggested Gaviscon.. my question is, when I have my B12 injection would
Hidden
in
Pernicious Anaemia Society
28 days ago
Painful indigestion
I have pernicious anaemia treated with vit b12 injections. Prior to being diagnosed I suffered with terrible indigestion and the usual meds, like gaviscon, windeze, omprezole did nothing to alleviate it. Since starting the b12 injections the indigestion is less frequent but still very painful and wakes
I have pernicious anaemia treated with vit b12 injections. Prior to being diagnosed I suffered with terrible indigestion and the usual meds, like gaviscon, windeze, omprezole did nothing to alleviate it. Since starting the b12 injections the indigestion is less frequent but still very painful and wakes
Kangarooiom
in
Pernicious Anaemia Society
29 days ago
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Can't use Panpharma 😫
Although I'm prescribed B12 ampoules via my gp, I can only use certain brands without agonising stinging and burning. My local pharmacy hasn't been able to source anything for over a month. It's the added sodium acrylate that I react to. Decided to order online and I thought I'd thoroughly researched
Although I'm prescribed B12 ampoules via my gp, I can only use certain brands without agonising stinging and burning. My local pharmacy hasn't been able to source anything for over a month. It's the added sodium acrylate that I react to. Decided to order online and I thought I'd thoroughly researched
Myoldcat
in
Pernicious Anaemia Society
1 month ago
Bit of a success with frequency of B12 injections
Hi, I just wanted to share a bit of a positive experience. I had about a year long history of feeling jittery, bit light headed, palpitations, classic anxiety symptoms. In desperation I asked the GP if she could check to make sure there was no physical reason for this. She kindly ran some basic checks
Hi, I just wanted to share a bit of a positive experience. I had about a year long history of feeling jittery, bit light headed, palpitations, classic anxiety symptoms. In desperation I asked the GP if she could check to make sure there was no physical reason for this. She kindly ran some basic checks
Charlie2024
in
Pernicious Anaemia Society
1 month ago
Parkinsons
Hello My dad has parkinsons and I have read that most patients with a parkinsons diagnosis have low b12. My dad has been taking cyanocobalamin for years so he must have had a low reading at some point. It frustrates me that this hasn't been reviewed. When we arrange a test, will he be required to
Hello My dad has parkinsons and I have read that most patients with a parkinsons diagnosis have low b12. My dad has been taking cyanocobalamin for years so he must have had a low reading at some point. It frustrates me that this hasn't been reviewed. When we arrange a test, will he be required to
RedOne1
in
Pernicious Anaemia Society
1 month ago
High vitamin D results but have symptoms of low D. Is this possible?
I have osteoporosis, and spinal stenosis, waiting for surgery.My latest blood test for vit. D is - Serum total 25-hydroxy vitamin D levels. 174nmol/L. [. >51]at risk of toxicity, consider discontinuation of suppliments. I have discontinued but I remember reading somewhere that as I have coeliacs disease
I have osteoporosis, and spinal stenosis, waiting for surgery.My latest blood test for vit. D is - Serum total 25-hydroxy vitamin D levels. 174nmol/L. [. >51]at risk of toxicity, consider discontinuation of suppliments. I have discontinued but I remember reading somewhere that as I have coeliacs disease
Everdean
in
Thyroid UK
1 month ago
Feeling dismissed on results, am I clutching at straws??
Hello! New here and hoping for some advice from people with a bit more knowledge.Ended up having some private bloods done (was afternoon, have now seen first time in morning best) due to really struggling over the last 12 months. Under the care of a rheumatologist for inflammatory arthritis but have
Hello! New here and hoping for some advice from people with a bit more knowledge.Ended up having some private bloods done (was afternoon, have now seen first time in morning best) due to really struggling over the last 12 months. Under the care of a rheumatologist for inflammatory arthritis but have
weedee41
in
Thyroid UK
1 month ago
at last
more than 12 months several trips to neurologist, scans and blood tests I’ve now been put back on B12 injections (on the advice of the neurologist to the GP surgery) every 8 weeks, my original GP said my levels were high enough to last for years and he thought it was masking something else so he stopped
more than 12 months several trips to neurologist, scans and blood tests I’ve now been put back on B12 injections (on the advice of the neurologist to the GP surgery) every 8 weeks, my original GP said my levels were high enough to last for years and he thought it was masking something else so he stopped
Imcn1960
in
Pernicious Anaemia Society
1 month ago
Does any1 know if immunoglobulin treatment inhosp for someone recently diagnosed peripheral neuropathy/lots infections linked tob12inanyway?
Hi, I'm not sure of all the facts but wonder if anyone can help advise please? it's a family member of a family member. He has been in and out of hosp this year, now in again with more breathing problems, tho has covid on top of it this time. He's recently been diagnosed with peripheral neuropathy last
Hi, I'm not sure of all the facts but wonder if anyone can help advise please? it's a family member of a family member. He has been in and out of hosp this year, now in again with more breathing problems, tho has covid on top of it this time. He's recently been diagnosed with peripheral neuropathy last
Jo5454
in
Pernicious Anaemia Society
1 month ago
Monitoring
Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it short and sweet. I am a pernicious anemia sufferer since diagnosis in 2012 and have been on injections ever since now I don't know if it's just me
Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it short and sweet. I am a pernicious anemia sufferer since diagnosis in 2012 and have been on injections ever since now I don't know if it's just me
Davy28
in
Pernicious Anaemia Society
1 month ago
Neuropathy fatty liver
Hi, I have fatty liver with minimal scarring. For last 6 years both my big toes have been numb from neuropathy. Recently I have started getting numbness in my thumbs and thighs. Has anyone else had such problems and what to do about it? My Dr prescribed 300mg gabapentin 2 times a day but doesn't really
Hi, I have fatty liver with minimal scarring. For last 6 years both my big toes have been numb from neuropathy. Recently I have started getting numbness in my thumbs and thighs. Has anyone else had such problems and what to do about it? My Dr prescribed 300mg gabapentin 2 times a day but doesn't really
glander2405
in
British Liver Trust
1 month ago
Advice on B12 injections
Hello :) I’ve not used this before, so hoping I’m writing in the right place! A couple of years ago my B12 was lowish at 160 - and the Dr advised that I take supplements - which I did . A couple of months ago I started to feel really rotten and very very tired, with bad headaches - I got some bloods
Hello :) I’ve not used this before, so hoping I’m writing in the right place! A couple of years ago my B12 was lowish at 160 - and the Dr advised that I take supplements - which I did . A couple of months ago I started to feel really rotten and very very tired, with bad headaches - I got some bloods
olive1010101
in
Pernicious Anaemia Society
1 month ago
New thyroid tests
Hi all,can someone please help and interpret my latest Thyroid results from medichecks from June 2024. My B12 is much better but I still feel fatigued and now getting hip pain as well as back pain? my active B12 is up from 49 pmo/l (sept 23) to 150 pmo/L so SI seems to be doing the Job! (Monthly).
Hi all,can someone please help and interpret my latest Thyroid results from medichecks from June 2024. My B12 is much better but I still feel fatigued and now getting hip pain as well as back pain? my active B12 is up from 49 pmo/l (sept 23) to 150 pmo/L so SI seems to be doing the Job! (Monthly).
Doris11
in
Thyroid UK
1 month ago
My symptoms seem to be getting worse
I have had PA for years, it was discovered because I had a mini stroke at 34. Once discovered I was put on B12 injections. After some time my energy came back but, the pins and needles, electric shock headaches, aches and pains never left - learnt to live with them. However, recently my stomach hurts
I have had PA for years, it was discovered because I had a mini stroke at 34. Once discovered I was put on B12 injections. After some time my energy came back but, the pins and needles, electric shock headaches, aches and pains never left - learnt to live with them. However, recently my stomach hurts
outlander28
in
Pernicious Anaemia Society
1 month ago
Can You Refuse Certain Blood Tests
I had a consult with a Livi doctor last week for non thyroid related issue, he wanted me to have a load of bloods done. I've checked online and see what he's ordered. It includes B12, which is pointless as I'm on jabs and have been for years, so B12 always very high. ( the lab always moan and point this
I had a consult with a Livi doctor last week for non thyroid related issue, he wanted me to have a load of bloods done. I've checked online and see what he's ordered. It includes B12, which is pointless as I'm on jabs and have been for years, so B12 always very high. ( the lab always moan and point this
Sparklingsunshine
in
Thyroid UK
1 month ago
B12 and piece of mind. Coming to terms with being sick.
Every time I feel I am dealing with this, something troubles me. As well as low B12 I seem to have had cystitis again recently and am antibiotics, I can’t describe how worn down I am. I also have to inject a drug called Humira. This drug has many risks involved including cancers. Due to blood being in
Every time I feel I am dealing with this, something troubles me. As well as low B12 I seem to have had cystitis again recently and am antibiotics, I can’t describe how worn down I am. I also have to inject a drug called Humira. This drug has many risks involved including cancers. Due to blood being in
Gobbozoid
in
Pernicious Anaemia Society
1 month ago
Abdominal Cutaneous Nerve Entrapment
I have been suffering with bloating, nausea and burning pain from my hip down to my groin, and across my abdomen for over two years. I have seen many specialists trying to find the cause, without success, apart from saying it’s neuropathic. I have concluded it is Abdominal Cutaneous Nerve entrapment
I have been suffering with bloating, nausea and burning pain from my hip down to my groin, and across my abdomen for over two years. I have seen many specialists trying to find the cause, without success, apart from saying it’s neuropathic. I have concluded it is Abdominal Cutaneous Nerve entrapment
Chickens44
in
Pernicious Anaemia Society
1 month ago
new Medichecks results June 2024
Hi all, my new medichecks results from June 2024 are as follows… my active B12 is up from 49 pmo/l (sept 23) to 150 pmo/L so SI seems to be doing the Job! (Monthly). My CRP HS is raised from 3.98 mg/L (sept 23) to 4.470 mg/L (June 24) and am wondering if this is due to my reactive gastritis? Can I please
Hi all, my new medichecks results from June 2024 are as follows… my active B12 is up from 49 pmo/l (sept 23) to 150 pmo/L so SI seems to be doing the Job! (Monthly). My CRP HS is raised from 3.98 mg/L (sept 23) to 4.470 mg/L (June 24) and am wondering if this is due to my reactive gastritis? Can I please
Doris11
in
Thyroid UK
1 month ago
Weight Loss Plateau
Hi everyone. I've been on a calorie deficit (managing suprisingly well) and do up to 7 hours of exercise (usually cardio classes) a week, since January. I also stopped drinking alcohol 3 months ago. I take daily multivitamins with iron, vitaminc c and b12. I've lost 22 pounds so far but my progress has
Hi everyone. I've been on a calorie deficit (managing suprisingly well) and do up to 7 hours of exercise (usually cardio classes) a week, since January. I also stopped drinking alcohol 3 months ago. I take daily multivitamins with iron, vitaminc c and b12. I've lost 22 pounds so far but my progress has
Healthbefore30
in
Weight Loss Support
1 month ago
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