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PMR/GCA
Such a relief: doctor called and my ESR well below average as were other inflammation markers. Panic over, back to 5mgs a day and hopefully a lull in headaches and eye pain. Very relieved. Thank you everyone for the super support snd guidance. Have a good day!
Such a relief: doctor called and my ESR well below average as were other inflammation markers. Panic over, back to 5mgs a day and hopefully a lull in headaches and eye pain. Very relieved. Thank you everyone for the super support snd guidance. Have a good day!
Lollybygolly
in
PMRGCAuk
4 years ago
RA/GCA Emergency
A year ago I was diagnosed with RA, having ground to a halt physically was joyous that 30mgs Pred gave me my life back. Painted around 70-80 pictures this year. Five weeks ago headaches and eye pain started just after Vax so I ignored them. Had to call 111 in agony last night and today everything moved
A year ago I was diagnosed with RA, having ground to a halt physically was joyous that 30mgs Pred gave me my life back. Painted around 70-80 pictures this year. Five weeks ago headaches and eye pain started just after Vax so I ignored them. Had to call 111 in agony last night and today everything moved
Lollybygolly
in
PMRGCAuk
4 years ago
How do I accept the news of some vision loss?
7weeks ago I received a diagnosis of glaucoma in both eyes. Am in a state of utter shock & worry. A healthy 59yr old woman traumatised & very low (am usually chirpy). High pressures of 30 since 2018 & failed many field tests in right eye. My comments since 2019 to my optician of greyness in my right
7weeks ago I received a diagnosis of glaucoma in both eyes. Am in a state of utter shock & worry. A healthy 59yr old woman traumatised & very low (am usually chirpy). High pressures of 30 since 2018 & failed many field tests in right eye. My comments since 2019 to my optician of greyness in my right
Hidden
in
Glaucoma UK
4 years ago
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Double vision and 3D vision with wet AMD
Hello generous community, Have any of you with wet AMD (I have left wet and right dry...so far) experienced what feels like double vision and/or sort of 3D visual effects? Perhaps more pronounced following injections for wet? Can nicking of blood vessel in eye during injection process result in worsening
Hello generous community, Have any of you with wet AMD (I have left wet and right dry...so far) experienced what feels like double vision and/or sort of 3D visual effects? Perhaps more pronounced following injections for wet? Can nicking of blood vessel in eye during injection process result in worsening
riverpipes
in
Macular Society
4 years ago
Trab Surgery
Hello all, I am new here, and have had Glaucoma for a number of years, and take three different types of drops, which as far as I'm concerned are working fine, but apparently they are not, in my right eye. I woke up one morning a couple of years ago with the bottom third of my vision in the right eye
Hello all, I am new here, and have had Glaucoma for a number of years, and take three different types of drops, which as far as I'm concerned are working fine, but apparently they are not, in my right eye. I woke up one morning a couple of years ago with the bottom third of my vision in the right eye
floki7
in
Glaucoma UK
4 years ago
Health anxiety worried about numbing drops glaucoma
Hi I will be as brief as possible, I’m 51 I have bad health anxiety, but this time I wasn’t prepared to be told I had a health issue rather than thinking I had one. Went to spec savers my eyes were running as I had make-up on ... Pressure test fine, field of vision fine, then she totally freaked me
Hi I will be as brief as possible, I’m 51 I have bad health anxiety, but this time I wasn’t prepared to be told I had a health issue rather than thinking I had one. Went to spec savers my eyes were running as I had make-up on ... Pressure test fine, field of vision fine, then she totally freaked me
Athena123
in
Glaucoma UK
4 years ago
Starting Besremi
Hi, As Pegasys, Ruxolitnib and Hydroxy are no longer appropriate for my PV I have just started to transition to Besremi. The treatment consists of an injection every 2 weeks with a special syringe which I am finding easier to use than the Pegasys syringe as the needle is finer making for a painless
Hi, As Pegasys, Ruxolitnib and Hydroxy are no longer appropriate for my PV I have just started to transition to Besremi. The treatment consists of an injection every 2 weeks with a special syringe which I am finding easier to use than the Pegasys syringe as the needle is finer making for a painless
JohnSC
in
MPN Voice
4 years ago
New here
I am new here not sure how this is going to go. I have suffered from depression and anxiety and was recently diagnosed with ptsd for over half my life. I know the problems that make my issues worse but I am the type of person who avoids conflict so I can’t bring myself to say anything to my family it
I am new here not sure how this is going to go. I have suffered from depression and anxiety and was recently diagnosed with ptsd for over half my life. I know the problems that make my issues worse but I am the type of person who avoids conflict so I can’t bring myself to say anything to my family it
Greengarden31
in
Anxiety and Depression Support
3 years ago
Azarga eye drops
Hello. Is anyone here having trouble getting hold of Azarga eye drops? Thanks for any answers.
Hello. Is anyone here having trouble getting hold of Azarga eye drops? Thanks for any answers.
warwickshire_singh
in
Glaucoma UK
3 years ago
Need Sjogren's advice
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Piscesdreamer
in
Hughes Syndrome APS Forum
4 years ago
Need Sjogren's advice
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Piscesdreamer
in
LUPUS UK
4 years ago
Need APS Specialist in Daytona Beach FL USA area
Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight,
Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight,
Piscesdreamer
in
LUPUS UK
4 years ago
Aps Specialist near Daytona Beach FL?
UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms
UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms
Piscesdreamer
in
Hughes Syndrome APS Forum
4 years ago
Alcohol and anxiety
so it’s been like at least 2 yrs since I drunk a lot of alcohol enough to get tipsy and I quit for a reason because back then it made me feel very anxious I’m having a bad aftermath like bad anxiety ptsd type vibes and I’m not liking it has anyone else been Through this??🤔
so it’s been like at least 2 yrs since I drunk a lot of alcohol enough to get tipsy and I quit for a reason because back then it made me feel very anxious I’m having a bad aftermath like bad anxiety ptsd type vibes and I’m not liking it has anyone else been Through this??🤔
Jamescrider
in
Anxiety Support
3 years ago
ICU Recovery
Hello, I am 27 years old. I’ve had brain tumor surgery, because of a surgical complication i stayed in the icu for almost 4 weeks mechanically ventilated, and then 2 more weeks in the ward, its been almost two months since i left the hospital at first i could barely sit on the bed now i can walk independently
Hello, I am 27 years old. I’ve had brain tumor surgery, because of a surgical complication i stayed in the icu for almost 4 weeks mechanically ventilated, and then 2 more weeks in the ward, its been almost two months since i left the hospital at first i could barely sit on the bed now i can walk independently
Abbas1
in
ICUsteps
4 years ago
Military Service related PTSD....Does it ever get manageable?
Over 50 years ago. I experienced a series of events that culminated in undiagnosed and misdiagnosed PTSD. At the time little was known about PTSD. It was thought to be only experienced by " Combat troops " Now it's well known that this is not necessarily the case. Also. Being a Blue Water sailor, the
Over 50 years ago. I experienced a series of events that culminated in undiagnosed and misdiagnosed PTSD. At the time little was known about PTSD. It was thought to be only experienced by " Combat troops " Now it's well known that this is not necessarily the case. Also. Being a Blue Water sailor, the
Hidden
in
Heal My PTSD
3 years ago
First Run without Michael J!!
Morning All, So amid thoughts of should I have a go.. or do I need another day’s rest- having completed W9 &R3 on Thursday. I didn’t drive to the park that I’d been going to for the last 9 weeks. Took a Deep breath. Out of the door. Music on. Used Nike Run Club App (as recommended by fellow runner
Morning All, So amid thoughts of should I have a go.. or do I need another day’s rest- having completed W9 &R3 on Thursday. I didn’t drive to the park that I’d been going to for the last 9 weeks. Took a Deep breath. Out of the door. Music on. Used Nike Run Club App (as recommended by fellow runner
Kingfishers
Graduate
in
Couch to 5K
3 years ago
Update to my recent post re bleed behind eye
I had retinal surgery today for a vitreous haemorrhage which caused a detached retina. I dont think it is related to taking anticoagulants but next week I will contact my GP to discuss, hospital thinks it was wear and tear and age related. So relieved I decided to seek help from Moorfields, they were
I had retinal surgery today for a vitreous haemorrhage which caused a detached retina. I dont think it is related to taking anticoagulants but next week I will contact my GP to discuss, hospital thinks it was wear and tear and age related. So relieved I decided to seek help from Moorfields, they were
Jeans1234
in
AF Association
4 years ago
Tsh level 8.4
Hi I’m a newbie here, my 19 year old son had not been well for over 8 months now , he’s very tired , bad eye floaters, feeling out of it all the time .we got eyes checked and all good , had bloods done and everything perfect apart from his tsh level was 8.3 . Doc wants to wait 3 months to check but his
Hi I’m a newbie here, my 19 year old son had not been well for over 8 months now , he’s very tired , bad eye floaters, feeling out of it all the time .we got eyes checked and all good , had bloods done and everything perfect apart from his tsh level was 8.3 . Doc wants to wait 3 months to check but his
Vincent512
in
Thyroid UK
4 years ago
Eye pain
To all GCA people! In my determination to get fitter, I’m having problems with pain behind my eyes when I try to push myself a bit further. Do others have the same body-response when trying to increase their fitness? I can walk, briskly, up hills for about 20 minutes and then a further 20 mins on
To all GCA people! In my determination to get fitter, I’m having problems with pain behind my eyes when I try to push myself a bit further. Do others have the same body-response when trying to increase their fitness? I can walk, briskly, up hills for about 20 minutes and then a further 20 mins on
PuttyPenguin
in
PMRGCAuk
4 years ago
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