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Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
7 months ago
Black stools
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Petrina_gmfc
in
British Liver Trust
6 months ago
Update - friend with bronchogenic adenocarcinoma
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
marcyh
in
Lung Cancer Support
7 months ago
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looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
7 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
4 months ago
ET and colon cancer!
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Myers75
in
MPN Voice
4 months ago
Positive ANA and Symptoms
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
JCM1992
in
LUPUS UK
3 months ago
Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
3 months ago
Pelvic pain and bloating,
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Lawnmow
in
Pelvic Pain Support Network
4 months ago
Colonoscopy report
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Broseley
in
PMRGCAuk
4 months ago
interesting Xeloda trial
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
HelenWi
in
SHARE Metastatic Breast Cancer
7 months ago
Biopsy 8-month Change - progression or sampling differences?
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
adventure4me
in
Prostate Cancer Network
7 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
7 months ago
PT-112 Immunotherapy Trial
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
TeleGuy
in
Advanced Prostate Cancer
7 months ago
concerns
Hi I am a 31 year old. This year I started having vag. discharge , cramps and stomach issues , among other symptoms and was found by ob to have a 12 cm ovarian cystoma. This was removed and has not come back. I was referred to GI because months later I still have stomach issues. I have had constipation
Hi I am a 31 year old. This year I started having vag. discharge , cramps and stomach issues , among other symptoms and was found by ob to have a 12 cm ovarian cystoma. This was removed and has not come back. I was referred to GI because months later I still have stomach issues. I have had constipation
Momofthree33
in
Colon Cancer Connected
4 months ago
Annoyed!
Morning all!Quick backdrop: I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons) My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at
Morning all!Quick backdrop: I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons) My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at
wilsond
in
AF Association
4 months ago
Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
4 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
4 months ago
The Science is Coming as Fish Says
Just realised I posted on wrong community (LoL.) The AZD5069 and enzaltutamide trial has been widely reported in the UK press. Very small sample size to check the concept but it targets white myeloid blood cells which apparently can fuel tumour growth. The drug combo works is designed to block the CXCR2
Just realised I posted on wrong community (LoL.) The AZD5069 and enzaltutamide trial has been widely reported in the UK press. Very small sample size to check the concept but it targets white myeloid blood cells which apparently can fuel tumour growth. The drug combo works is designed to block the CXCR2
GreenStreet
in
Fight Prostate Cancer
7 months ago
Very promising trial!
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Maxone73
in
Advanced Prostate Cancer
7 months ago
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