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Non-Necrotising Scleritis
Can it get any worse ðŸ˜ðŸ˜ Ended up back in hospital for a week with severe pain in my left eye. Have been diagnosed with Diffuse Anterior Non-Necrotising Scleritis in both eyes. Both are really red and sore. Feels like a thousand pins are pressing on my eye balls. I look like the She Devil 😢 Preds
Can it get any worse ðŸ˜ðŸ˜ Ended up back in hospital for a week with severe pain in my left eye. Have been diagnosed with Diffuse Anterior Non-Necrotising Scleritis in both eyes. Both are really red and sore. Feels like a thousand pins are pressing on my eye balls. I look like the She Devil 😢 Preds
Loopy1971
in
LUPUS UK
2 years ago
Non information
Hi there, new to this group. Started having blurred vision 12 months ago, after referral from opticians and lost results from eye clinic. Fast track to specialist who told me I need very rare and complex operation, been bounced around 3 local consultants. Today I received a copy of letter to my GP telling
Hi there, new to this group. Started having blurred vision 12 months ago, after referral from opticians and lost results from eye clinic. Fast track to specialist who told me I need very rare and complex operation, been bounced around 3 local consultants. Today I received a copy of letter to my GP telling
Winnie1967
in
Glaucoma UK
2 years ago
Any ideas please?
Have had wet & dry amd for 15+ years. Many injections holding back the wet amd so far. Recently diagnosed with mix of osteoarthritis that I have had for most of my life mixed with rheumatoid arthritis. The Consultant wants to treat this with Hydroxchlororoquine asap. Only problem with this drug is that
Have had wet & dry amd for 15+ years. Many injections holding back the wet amd so far. Recently diagnosed with mix of osteoarthritis that I have had for most of my life mixed with rheumatoid arthritis. The Consultant wants to treat this with Hydroxchlororoquine asap. Only problem with this drug is that
cormorin
in
Macular Society
2 years ago
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Hi I would appreciate any feedback you can kindly offer. I had covid back in jan and although it was mild my eyes went red. I have had all the symptoms of subacute thyroiditis since . Good and bad days. Dry eyes tired ,soft stools, weird anxiety, teeth weird sore neck and the feeling of a marble in my
Hi I would appreciate any feedback you can kindly offer. I had covid back in jan and although it was mild my eyes went red. I have had all the symptoms of subacute thyroiditis since . Good and bad days. Dry eyes tired ,soft stools, weird anxiety, teeth weird sore neck and the feeling of a marble in my
Billyboby
in
Thyroid UK
2 years ago
Travel coolers
Hello everyone, I am planning to travel for 6 weeks and it will be the first time after I have been diagnosed with ET-jack2. I live in Australia and going to Europe so a 24 hour plane journey. I am on 90mcg of pegasys every second week. Looking for a recommendation please on a good travel pack to keep
Hello everyone, I am planning to travel for 6 weeks and it will be the first time after I have been diagnosed with ET-jack2. I live in Australia and going to Europe so a 24 hour plane journey. I am on 90mcg of pegasys every second week. Looking for a recommendation please on a good travel pack to keep
Adamidis
in
MPN Voice
2 years ago
Best Information.
I took out a subscription to the Macular Society after a 6 months free trial. I have been a member for over 3 years. You receive a magazines in large print and it’s the most comprehensive and informative magazine on AMD. Interesting personal stories, It keeps you informed of all the latest trials
I took out a subscription to the Macular Society after a 6 months free trial. I have been a member for over 3 years. You receive a magazines in large print and it’s the most comprehensive and informative magazine on AMD. Interesting personal stories, It keeps you informed of all the latest trials
Whitegoose
in
Macular Society
2 years ago
Thyroid eye disease
Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I have all the symptoms of it. I’m really confused though as the GP did loads of blood tests that came back fine for thyroid function. I have an appt with a thyroid eye specialist at the end of July and in
Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I have all the symptoms of it. I’m really confused though as the GP did loads of blood tests that came back fine for thyroid function. I have an appt with a thyroid eye specialist at the end of July and in
Solstice11
in
Thyroid UK
2 years ago
RED LIGHT HELMET can cause increased ‘reactive oxygen species’ (ROS) production, according to this study
https://pubmed.ncbi.nlm.nih.gov/33530211/ This study included 18 patients (not mice!) to determine the safety and effectiveness of photobiomodulation (PBM) + hydrogen water (H2), stating H2 may clear additional ROS produced by PBM All participants received daily PBM + H2 therapy for 2 weeks. The UPDRS
https://pubmed.ncbi.nlm.nih.gov/33530211/ This study included 18 patients (not mice!) to determine the safety and effectiveness of photobiomodulation (PBM) + hydrogen water (H2), stating H2 may clear additional ROS produced by PBM All participants received daily PBM + H2 therapy for 2 weeks. The UPDRS
Jennyjenny2
in
Cure Parkinson's
2 years ago
Time to decide about leaving the initial NON TIME LIMITED Captivate trial because of potential toxicity
Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until MRD. When MRD was achieved, a blind was set up for placebo vs Ibrutinib indefinitely, or until progression/toxicity. Since MRD, we have settled
Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until MRD. When MRD was achieved, a blind was set up for placebo vs Ibrutinib indefinitely, or until progression/toxicity. Since MRD, we have settled
I282much
in
CLL Support
2 years ago
I can feel that old fybro feeling again, in 2020 in full isolation from Covid, lack of mobility, developed fybromyalgia [undiagnosed]?
I was never able to be fully diagnosed as I am vulnerably disabled, then lo and behold, I developed a colourful reaction to AZ vaccine,in 2021 which reacted to my schwannomatosis NF3, then slowly very slowly wearing off, with all symptoms of the fibro [not a recommended way of getting rid of the condition
I was never able to be fully diagnosed as I am vulnerably disabled, then lo and behold, I developed a colourful reaction to AZ vaccine,in 2021 which reacted to my schwannomatosis NF3, then slowly very slowly wearing off, with all symptoms of the fibro [not a recommended way of getting rid of the condition
Adlon57
in
Fibromyalgia Action UK
2 years ago
Graves' Ophthalmopathy in the Setting of Primary Hypothyroidism
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Adalimumab effect only lasting 10 days
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
vonniesims
in
NRAS
2 years ago
Taking Flecainide even when in Permanent Afib
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Malhouse
in
Atrial Fibrillation Support
2 years ago
Am I heading for a PMR flareup?
After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild symptoms in the mornings until the preds had kicked in for the day. My last blood test showed my inflammation had reduced down to nearly nothing
After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild symptoms in the mornings until the preds had kicked in for the day. My last blood test showed my inflammation had reduced down to nearly nothing
Washingup
in
PMRGCAuk
2 years ago
Scared
Had my eye test today I’ve had glaucoma for 6 years so far my pressure has been good today was up to 36 my dr was not very happy and used some very negative words like aggressive glaucoma . I was very upset and told him so . He put my on 2x drops a day and potentially laser surgery in a few months .
Had my eye test today I’ve had glaucoma for 6 years so far my pressure has been good today was up to 36 my dr was not very happy and used some very negative words like aggressive glaucoma . I was very upset and told him so . He put my on 2x drops a day and potentially laser surgery in a few months .
pinks223
in
Glaucoma UK
2 years ago
Recent new Glaucoma diagnosis - should I wait 3mths for next appointment?
Hello all, hope you are all keeping well as can be and enjoying the pleasant recent weather. New to the site as only recently been diagnosed. Apologies in advance if this becomes a long post, but I think I'll bullet point my story and questions in order to make this post more easily digestible. *
Hello all, hope you are all keeping well as can be and enjoying the pleasant recent weather. New to the site as only recently been diagnosed. Apologies in advance if this becomes a long post, but I think I'll bullet point my story and questions in order to make this post more easily digestible. *
glauca
in
Glaucoma UK
2 years ago
Low IOP and blurred vision after Trab
It's been nearly three weeks after Trab and my blurred vision is coming back frustratingly and worryingly slow. I have a double vision and difficult to read my phone however close it is. Meanwhile, I had a check up and the doctor confirmed the op went well and the bleb is working fine and eye is healing
It's been nearly three weeks after Trab and my blurred vision is coming back frustratingly and worryingly slow. I have a double vision and difficult to read my phone however close it is. Meanwhile, I had a check up and the doctor confirmed the op went well and the bleb is working fine and eye is healing
charles555
in
Glaucoma UK
2 years ago
Second Pegasys injection and I’m weak as a kitten!
Update/ I took my second Pegasys yesterday evening. I sweat ALL night long. I feel fatigued and so weak. Also had a headache and some nausea last night. I have planted myself on the couch, today, and am depending on my husband to keep refilling my water glass. I am hoping this passes by tomorrow, when
Update/ I took my second Pegasys yesterday evening. I sweat ALL night long. I feel fatigued and so weak. Also had a headache and some nausea last night. I have planted myself on the couch, today, and am depending on my husband to keep refilling my water glass. I am hoping this passes by tomorrow, when
Wewo01
in
MPN Voice
2 years ago
newbie & fearful
Hello everyone, Im new here but been reading the posts with interest. I had high eye pressures as was referred to the eye hospital, they told me I had glaucoma and cataracts in both eyes and suggested operation. I was so shocked and terrified of an op on eyes whilst your awake so they said they would
Hello everyone, Im new here but been reading the posts with interest. I had high eye pressures as was referred to the eye hospital, they told me I had glaucoma and cataracts in both eyes and suggested operation. I was so shocked and terrified of an op on eyes whilst your awake so they said they would
Gilly1959
in
Glaucoma UK
2 years ago
Lysine Is An Effective Preventative In Medical Professionals Dealing With Covid-19 Patients Everyday For 3 Months
Yesterday I made a reply to one of Marc's recent posts, but there was some very interesting information in that post that I would like to highlight as I feel it is very important for anyone living on this planet in the age of Covid! In my reply to Marc, I linked to a July 2021 study that showed that
Yesterday I made a reply to one of Marc's recent posts, but there was some very interesting information in that post that I would like to highlight as I feel it is very important for anyone living on this planet in the age of Covid! In my reply to Marc, I linked to a July 2021 study that showed that
chartist
in
Cure Parkinson's
2 years ago
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